Re: Soooo frustrated ....

[Guest guest]

I think it was that put to words my thoughts... tell him that he's going

to the dr's or you're going out the door.  You and your kids need him around,

and he's being completely irresponsible not going to and having things looked

at.  This isn't something he can just forget about for a few weeks and then

things will be better... he's doing more damage every day by not going and

having a checkup.

Good luck!

kim in canada

________________________________

From: milwaukeemommy <milwaukeemommy@...>

achalasia

Sent: Monday, December 12, 2011 8:46 AM

Subject: Re: Soooo frustrated ....

 

We went to my husband's work Xmas party yesterday & he seems to be eating much

better. He's still not eating a LOT but at least he's eating real food again.

This is the third time since his surgery 3 years ago that's he's had a

month-long bout of throwing up & not being able to eat anything. The first time

he swore he had the flu. Really? I've never heard of any flu that lasts a month!

So now that he's feeling better I'm sure he'll blow off going to the dr again ~

oh if only he would listen to me ~

>

> So get this -- my husband just got home from his parents house, where he was

hunting for a week. He walked in a few minutes before dinner so I set a place

for him. He didn't come to the table. When I asked if he was going to eat, he

said no. I said " let me guess .. you stopped at Mcs on the way home " . He

said no ... he hasn't eaten since WEDNESDAY! He said he can no longer keep

anything down.

>

> Are you freaking KIDDING ME?!?!?? I get that the tests are rough -- I wouldn't

want a tube shoved down my nose or throat. But what the heck is going to happen

to him? What does he THINK is going to happen to him? He'll just continue to

live without food??

>

> For those of you who don't know, my husband is STUBBORN. He was diagnosed with

A in July 2008 & had the Heller in November 2008. Had a 6 month checkup, they

ordered an endoscopy. He had it done, never called for the results & never went

back. Even after the dr sent 3 letters saying he should make an appt for another

checkup. They've continued to fill his Rx once a year, over the phone.

>

> This is especially hard right now, because my grandma went into the hospital a

week & a half ago. Something happened -- she had a stroke -- or she is suffering

from dementia -- or something -- but she's become extremely paranoid & won't

eat, because they are " out to poison her " . So she is slowly withering away.

>

> I know there's nothing I can do about my husband. I am just so angry & sad &

frustrated .... I just needed to vent!!

>

>

>

[Guest guest]

Hi Kim,

Just thought it was interesting that my middle na,e is Dawn and I am 42!!!

Anyways, I go through periods of vomiting and not being able to eat as well. I

thought it was the flu too. Maybe an already weakened immunes system leaves us

more susceptible to different strains of the flu. I wonder that myself.

Unfortunately it won't get any better and prolonging the inevitable, like

treatment, can and will make it worse.

Does anyone know iF Achalasia is considered an autoimmune disease?

Kim in Kenosha

> >

> > So get this -- my husband just got home from his parents house, where he was

hunting for a week. He walked in a few minutes before dinner so I set a place

for him. He didn't come to the table. When I asked if he was going to eat, he

said no. I said " let me guess .. you stopped at Mcs on the way home " . He

said no ... he hasn't eaten since WEDNESDAY! He said he can no longer keep

anything down.

> >

> > Are you freaking KIDDING ME?!?!?? I get that the tests are rough -- I

wouldn't want a tube shoved down my nose or throat. But what the heck is going

to happen to him? What does he THINK is going to happen to him? He'll just

continue to live without food??

> >

> > For those of you who don't know, my husband is STUBBORN. He was diagnosed

with A in July 2008 & had the Heller in November 2008. Had a 6 month checkup,

they ordered an endoscopy. He had it done, never called for the results & never

went back. Even after the dr sent 3 letters saying he should make an appt for

another checkup. They've continued to fill his Rx once a year, over the phone.

> >

> > This is especially hard right now, because my grandma went into the hospital

a week & a half ago. Something happened -- she had a stroke -- or she is

suffering from dementia -- or something -- but she's become extremely paranoid &

won't eat, because they are " out to poison her " . So she is slowly withering

away.

> >

> > I know there's nothing I can do about my husband. I am just so angry & sad &

frustrated .... I just needed to vent!!

> >

> >

> >

>

>

>

>

>

[Guest guest]

Hi ,

 

This number is for the dysphagia clinic ( trouble swallowing ) and the number is

4147-805-2901. Although when I first started going I was terrified, Froedert

took such good care of me and put my mind at ease. They have many doctors that

specialize in different swallowing disorders . My doctor is Dr Babei and he is

very good. If he can get referred to DR Massey, that would be great but oif he

can't wait that long, Dr Massey oversees the Achalasia patients anyways so he is

almost guaranteed good treatment.

 

KIm in Kenosha

________________________________

From: milwaukeemommy <milwaukeemommy@...>

achalasia

Sent: Thursday, December 8, 2011 6:30 PM

Subject: Re: Soooo frustrated ....

 

Thanks, Kim ~ I will take that number when you get a chance, just in case he

comes to his senses I haven't seen him since Sunday, but he did make some

soup over the weekend that seemed to stay down.

> > > > >

> > > > > So get this -- my husband just got home from his parents house, where

he was hunting for a week. He walked in a few minutes before dinner so I set a

place for him. He didn't come to the table. When I asked if he was going to eat,

he said no. I said " let me guess .. you stopped at Mcs on the way home " .

He said no ... he hasn't eaten since WEDNESDAY! He said he can no longer keep

anything down.

> > > > >

> > > > > Are you freaking KIDDING ME?!?!?? I get that the tests are rough -- I

wouldn't want a tube shoved down my nose or throat. But what the heck is going

to happen to him? What does he THINK is going to happen to him? He'll just

continue to live without food??

> > > > >

> > > > > For those of you who don't know, my husband is STUBBORN. He was

diagnosed with A in July 2008 & had the Heller in November 2008. Had a 6 month

checkup, they ordered an endoscopy. He had it done, never called for the results

& never went back. Even after the dr sent 3 letters saying he should make an

appt for another checkup. They've continued to fill his Rx once a year, over the

phone.

> > > > >

> > > > > This is especially hard right now, because my grandma went into the

hospital a week & a half ago. Something happened -- she had a stroke -- or she

is suffering from dementia -- or something -- but she's become extremely

paranoid & won't eat, because they are " out to poison her " . So she is slowly

withering away.

> > > > >

> > > > > I know there's nothing I can do about my husband. I am just so angry &

sad & frustrated .... I just needed to vent!!

> > > > >

> > > > >

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Thanks Kim -- I assume the " 7 " shouldn't be there correct?

He seemed to have been eating ok -- so I made meatloaf & potatoes for dinner

last night & he had one small potato, just the insides. I said " that's all

you're having " & he said he can't eat meat. I asked about the huge crock pot of

chicken soup he's made with all kinds of neat & veggies, & he said those are

soft enough, the meatloaf is hard meat.

He's off of work for the rest of the year. When I said it would be a FINE time

to make a dr appt he just glared at me. Ok, guess I'm done. Guess he'll just not

eat meat the rest of his life. Sorry I'm bitter -- my MIL was here this weekend

& that ended badly, so I'm feeling a bit hurt from that side of the family all

around.

> > > > > >

> > > > > > So get this -- my husband just got home from his parents house,

where he was hunting for a week. He walked in a few minutes before dinner so I

set a place for him. He didn't come to the table. When I asked if he was going

to eat, he said no. I said " let me guess .. you stopped at Mcs on the way

home " . He said no ... he hasn't eaten since WEDNESDAY! He said he can no longer

keep anything down.

> > > > > >

> > > > > > Are you freaking KIDDING ME?!?!?? I get that the tests are rough --

I wouldn't want a tube shoved down my nose or throat. But what the heck is going

to happen to him? What does he THINK is going to happen to him? He'll just

continue to live without food??

> > > > > >

> > > > > > For those of you who don't know, my husband is STUBBORN. He was

diagnosed with A in July 2008 & had the Heller in November 2008. Had a 6 month

checkup, they ordered an endoscopy. He had it done, never called for the results

& never went back. Even after the dr sent 3 letters saying he should make an

appt for another checkup. They've continued to fill his Rx once a year, over the

phone.

> > > > > >

> > > > > > This is especially hard right now, because my grandma went into the

hospital a week & a half ago. Something happened -- she had a stroke -- or she

is suffering from dementia -- or something -- but she's become extremely

paranoid & won't eat, because they are " out to poison her " . So she is slowly

withering away.

> > > > > >

> > > > > > I know there's nothing I can do about my husband. I am just so angry

& sad & frustrated .... I just needed to vent!!

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

Hi ,

 

Sorry -If I am not careful I type dyslexic! Yes -omit the 7! I cannot say enough

great things about Froedert. Dr Massey is the head of the GI Dept, and very well

respected nationally as a leading expert on Achalasia. So why not get the best

treatment available? I compared my invoices from Aurora Medical Ctr and Froedert

is eitehr comparable or cheaper.

And it is not uncommon for somoene with A to not eat meat or eat very little of

it. I can't seem to get it down well either. It gets stuck and causes me some

distress. I find that if I eat anything remotely solid, I have to sit down and

eat very slowly and even after I am done I have to sit still for awhile, at

least 15 minutes or it will come back up. I need to learn to blenderize. You

could probably put that in the blender for him and he could get it down.

What is MIL?

Kim in Kenosha

________________________________

From: milwaukeemommy <milwaukeemommy@...>

achalasia

Sent: Monday, December 19, 2011 6:42 AM

Subject: Re: Soooo frustrated ....

 

Thanks Kim -- I assume the " 7 " shouldn't be there correct?

He seemed to have been eating ok -- so I made meatloaf & potatoes for dinner

last night & he had one small potato, just the insides. I said " that's all

you're having " & he said he can't eat meat. I asked about the huge crock pot of

chicken soup he's made with all kinds of neat & veggies, & he said those are

soft enough, the meatloaf is hard meat.

He's off of work for the rest of the year. When I said it would be a FINE time

to make a dr appt he just glared at me. Ok, guess I'm done. Guess he'll just not

eat meat the rest of his life. Sorry I'm bitter -- my MIL was here this weekend

& that ended badly, so I'm feeling a bit hurt from that side of the family all

around.

> > > > > >

> > > > > > So get this -- my husband just got home from his parents house,

where he was hunting for a week. He walked in a few minutes before dinner so I

set a place for him. He didn't come to the table. When I asked if he was going

to eat, he said no. I said " let me guess .. you stopped at Mcs on the way

home " . He said no ... he hasn't eaten since WEDNESDAY! He said he can no longer

keep anything down.

> > > > > >

> > > > > > Are you freaking KIDDING ME?!?!?? I get that the tests are rough --

I wouldn't want a tube shoved down my nose or throat. But what the heck is going

to happen to him? What does he THINK is going to happen to him? He'll just

continue to live without food??

> > > > > >

> > > > > > For those of you who don't know, my husband is STUBBORN. He was

diagnosed with A in July 2008 & had the Heller in November 2008. Had a 6 month

checkup, they ordered an endoscopy. He had it done, never called for the results

& never went back. Even after the dr sent 3 letters saying he should make an

appt for another checkup. They've continued to fill his Rx once a year, over the

phone.

> > > > > >

> > > > > > This is especially hard right now, because my grandma went into the

hospital a week & a half ago. Something happened -- she had a stroke -- or she

is suffering from dementia -- or something -- but she's become extremely

paranoid & won't eat, because they are " out to poison her " . So she is slowly

withering away.

> > > > > >

> > > > > > I know there's nothing I can do about my husband. I am just so angry

& sad & frustrated .... I just needed to vent!!

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

LOL -- sorry, MIL is mother-in-law. Bleah.

Well he ran out of prescription & guess what -- yep, they gave it to him over

the phone. In fact, he didn't even talk to anyone. It's " press 1 to speak to an

attendant " " press 2 to request a refill " etc -- so he got it. But he still

actually wants to talk to the dr because he wants to double the rx. Every rx

he's ever taken, works for a while but after about a year he needs to take

something else. He either starts to get sick on the med, or it just doesn't work

as well as it used to. Christmas should be interesting -- my mom is making

lasagna for dinner tonight which I think he will struggle with.

Merry Christmas to all of you!!

> > > > > > >

> > > > > > > So get this -- my husband just got home from his parents house,

where he was hunting for a week. He walked in a few minutes before dinner so I

set a place for him. He didn't come to the table. When I asked if he was going

to eat, he said no. I said " let me guess .. you stopped at Mcs on the way

home " . He said no ... he hasn't eaten since WEDNESDAY! He said he can no longer

keep anything down.

> > > > > > >

> > > > > > > Are you freaking KIDDING ME?!?!?? I get that the tests are rough

-- I wouldn't want a tube shoved down my nose or throat. But what the heck is

going to happen to him? What does he THINK is going to happen to him? He'll just

continue to live without food??

> > > > > > >

> > > > > > > For those of you who don't know, my husband is STUBBORN. He was

diagnosed with A in July 2008 & had the Heller in November 2008. Had a 6 month

checkup, they ordered an endoscopy. He had it done, never called for the results

& never went back. Even after the dr sent 3 letters saying he should make an

appt for another checkup. They've continued to fill his Rx once a year, over the

phone.

> > > > > > >

> > > > > > > This is especially hard right now, because my grandma went into

the hospital a week & a half ago. Something happened -- she had a stroke -- or

she is suffering from dementia -- or something -- but she's become extremely

paranoid & won't eat, because they are " out to poison her " . So she is slowly

withering away.

> > > > > > >

> > > > > > > I know there's nothing I can do about my husband. I am just so

angry & sad & frustrated .... I just needed to vent!!

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

[Guest guest]

Not long after my HM I regurged a hamburger. My surgeon asked if it was

extra lean. It was. He said to get the regular ground beef and cook it less.

We need the fat to help it down. Rare is softer meat. Day old cold chicken

did the same.

I also have found that slowly but surely (3 years later), many of the

problems are easing ...foam in the E, regurging, spasms (all but gone), not one

bit of GERD (I had for 42 yrs since my 1st pregnancy), with the Dors Fundo,

no nite time regurg and aspirate. It still takes me time to eat, and air

swallowing is a problem. I clear the E before I eat if I feel a buildup of

foam.I drink a bit of water and roll my stomach up like a belly dancer, or

lean into the kitchen sink and press my diaphragm against the edge.

I get up and walk or stretch my arms overhead or twist and bend from the

waist up to move the air up when food is stuck on top of it during a meal.

Sodas make things worse for me.

We all have 'stuff' going on, but learn to deal with it. Happy I did

the surgery! Not perfect, but a helluva lot better off.

in Santa Barbara

[Guest guest]

,

I am glad you are feeling better and are finding ways to deal with it. I find

quirky things I can do to make it easier on me too. I am a little leary about

eating burgers but I will cook it for a shorter period of time when I am ready !

 

Kim A

________________________________

From: " julieok@... " <julieok@...>

achalasia

Sent: Saturday, December 24, 2011 11:48 AM

Subject: Re: Re: Soooo frustrated ....

 

Not long after my HM I regurged a hamburger. My surgeon asked if it was

extra lean. It was. He said to get the regular ground beef and cook it less.

We need the fat to help it down. Rare is softer meat. Day old cold chicken

did the same.

I also have found that slowly but surely (3 years later), many of the

problems are easing ...foam in the E, regurging, spasms (all but gone), not one

bit of GERD (I had for 42 yrs since my 1st pregnancy), with the Dors Fundo,

no nite time regurg and aspirate. It still takes me time to eat, and air

swallowing is a problem. I clear the E before I eat if I feel a buildup of

foam.I drink a bit of water and roll my stomach up like a belly dancer, or

lean into the kitchen sink and press my diaphragm against the edge.

I get up and walk or stretch my arms overhead or twist and bend from the

waist up to move the air up when food is stuck on top of it during a meal.

Sodas make things worse for me.

We all have 'stuff' going on, but learn to deal with it. Happy I did

the surgery! Not perfect, but a helluva lot better off.

in Santa Barbara

[Guest guest]

I just had to share this with you all -- as you know my husband refuses to go to

the dr even though he's having quite a bit of trouble. So ---- he had told me

last month that *I* needed to go to my doctor for a complete check up. Huh?

Turns out his employer's insurance company is making everyone get a physical in

order to keep the lower rates, if you choose not to, rates will go up. So I had

a check up scheduled anyway for yesterday, but I thought " Oh yay, he finally has

to go " OH NO --- he gets by with just having a nurse come in & take his BP &

some blood.

So....the results? His cholesterol is HIGH (which has always been LOW -- like

170 -- even though he's always eaten very fatty foods - I always thought NO

FAIR), including his bad cholesterol & his ratio, he's pre-hypertensive &

pre-diabetic. He also is down to 154 lbs from 175 (he's 6'3 " ). Well I haven't

seen him eat anything GOOD in months. It's all chocolate & junk food ---- lots

of butter (which I do know from all of you that butter helps get things down)

--- & LOTS of soup which out of a can, can be very fatty & unhealthy.

So I do feel for him --- he's eating what he can to survive --- but now all

these other problems have come up. Gosh, a trip to the doctor for a full work up

would be a REALLY great idea, no?

-- husband diagnosed with 'A' 7/08, Heller 11/08

>

> So get this -- my husband just got home from his parents house, where he was

hunting for a week. He walked in a few minutes before dinner so I set a place

for him. He didn't come to the table. When I asked if he was going to eat, he

said no. I said " let me guess .. you stopped at Mcs on the way home " . He

said no ... he hasn't eaten since WEDNESDAY! He said he can no longer keep

anything down.

>

> Are you freaking KIDDING ME?!?!?? I get that the tests are rough -- I wouldn't

want a tube shoved down my nose or throat. But what the heck is going to happen

to him? What does he THINK is going to happen to him? He'll just continue to

live without food??

>

> For those of you who don't know, my husband is STUBBORN. He was diagnosed with

A in July 2008 & had the Heller in November 2008. Had a 6 month checkup, they

ordered an endoscopy. He had it done, never called for the results & never went

back. Even after the dr sent 3 letters saying he should make an appt for another

checkup. They've continued to fill his Rx once a year, over the phone.

>

> This is especially hard right now, because my grandma went into the hospital a

week & a half ago. Something happened -- she had a stroke -- or she is suffering

from dementia -- or something -- but she's become extremely paranoid & won't

eat, because they are " out to poison her " . So she is slowly withering away.

>

> I know there's nothing I can do about my husband. I am just so angry & sad &

frustrated .... I just needed to vent!!

>

>

>

[Guest guest]

As hard as it is for him to eat you would think he would be ready for treatment.

Froedert has an excellent dysphagia ( swallowing disorders ) unit. He probably

should have a dilation, he would feel so much better. Most of us are on higher

carb and fat content diets because pasta, potatoes  and soups and yes lots of

butter ( I put it in my butternut squash soup ) or just carbs in general may go

down better. For now maybe you should try buying the organic soups in the big

boxes. That is what I have been doing and V8 also makes a line of healthier

soups that are more pureed. It sounds like he is really underweight which is

going to cause him lots of issues. He sounds very stubborn. What needs to happen

to him to go in for treatment???

 

Hang in there - I feel for you!

 

Kim A

________________________________

From: milwaukeemommy <milwaukeemommy@...>

achalasia

Sent: Tuesday, January 31, 2012 7:17 AM

Subject: Re: Soooo frustrated ....

 

I just had to share this with you all -- as you know my husband refuses to go to

the dr even though he's having quite a bit of trouble. So ---- he had told me

last month that *I* needed to go to my doctor for a complete check up. Huh?

Turns out his employer's insurance company is making everyone get a physical in

order to keep the lower rates, if you choose not to, rates will go up. So I had

a check up scheduled anyway for yesterday, but I thought " Oh yay, he finally has

to go " OH NO --- he gets by with just having a nurse come in & take his BP &

some blood.

So....the results? His cholesterol is HIGH (which has always been LOW -- like

170 -- even though he's always eaten very fatty foods - I always thought NO

FAIR), including his bad cholesterol & his ratio, he's pre-hypertensive &

pre-diabetic. He also is down to 154 lbs from 175 (he's 6'3 " ). Well I haven't

seen him eat anything GOOD in months. It's all chocolate & junk food ---- lots

of butter (which I do know from all of you that butter helps get things down)

--- & LOTS of soup which out of a can, can be very fatty & unhealthy.

So I do feel for him --- he's eating what he can to survive --- but now all

these other problems have come up. Gosh, a trip to the doctor for a full work up

would be a REALLY great idea, no?

-- husband diagnosed with 'A' 7/08, Heller 11/08

>

> So get this -- my husband just got home from his parents house, where he was

hunting for a week. He walked in a few minutes before dinner so I set a place

for him. He didn't come to the table. When I asked if he was going to eat, he

said no. I said " let me guess .. you stopped at Mcs on the way home " . He

said no ... he hasn't eaten since WEDNESDAY! He said he can no longer keep

anything down.

>

> Are you freaking KIDDING ME?!?!?? I get that the tests are rough -- I wouldn't

want a tube shoved down my nose or throat. But what the heck is going to happen

to him? What does he THINK is going to happen to him? He'll just continue to

live without food??

>

> For those of you who don't know, my husband is STUBBORN. He was diagnosed with

A in July 2008 & had the Heller in November 2008. Had a 6 month checkup, they

ordered an endoscopy. He had it done, never called for the results & never went

back. Even after the dr sent 3 letters saying he should make an appt for another

checkup. They've continued to fill his Rx once a year, over the phone.

>

> This is especially hard right now, because my grandma went into the hospital a

week & a half ago. Something happened -- she had a stroke -- or she is suffering

from dementia -- or something -- but she's become extremely paranoid & won't

eat, because they are " out to poison her " . So she is slowly withering away.

>

> I know there's nothing I can do about my husband. I am just so angry & sad &

frustrated .... I just needed to vent!!

>

>

>