Re: swallowing issues - advice desired

[Guest guest]

Hi ,

 

Achalasia of the upper esophagus has been mentioned in the past on this site. I

don't have much information to offer you. Based strictly upon what you have

written, the unusual nature of what is happening dictates that you set up an

appointment with Dr. Luketich, and let them know specifically the reason for it

at the time you make the appointment.

 

Dr. L is held in very high regards by the members of this group who have used

him. Please contact his office tomorrow.

 

From: pletchsr <pletchsr@...>

Subject: swallowing issues - advice desired

achalasia

Date: Sunday, December 4, 2011, 2:53 PM

 

Hi all,

Has anyone ever had problems with the actual swallowing function? Like there is

something in the back of the throat, and it won't go away? Like the back of the

tongue to the upper part of the esophagus is numb and sometimes even paralyzed?

Has anyone ever had slurred speech, or difficulty saying the G, K, and ing

syllables? Food feels like it's stuck the top of the E, about two inches down

from the ear lobes? This has been progressively getting worse since about 8

weeks after my heller myotomy with Dr. Luketich. Sometimes it's coffee related

but sometimes it just gets worse without coffee.

What would you do if this happened to you? Help! I thought achalasia was just a

problem with food not getting into the stomach. That's a lower E issue. What I

have is totally new, it's up at the top, at least from what I can tell. At least

I can eat again, I gained 11 pounds in 3 weeks! Everything still works it's just

getting slightly more paralyzed every week. I'm starting to freak out because

I've never heard of this part of A.

Gunn

[Guest guest]

Hi ,

I haven't had an HM yet, but do share upper E symptoms, however not to the

extent you mention with slurring and numbness. From what I understand, we can

develop a pouch or diverticulum in the upper E that catches food - this is

likely what I have. I do on occasion get burning and numbness at the back/upper

pharynx area. 

Please check with your doctor asap.

Kim

________________________________

From: pletchsr <pletchsr@...>

achalasia

Sent: Sunday, December 4, 2011 2:53 PM

Subject: swallowing issues - advice desired

 

Hi all,

Has anyone ever had problems with the actual swallowing function? Like there is

something in the back of the throat, and it won't go away? Like the back of the

tongue to the upper part of the esophagus is numb and sometimes even paralyzed?

Has anyone ever had slurred speech, or difficulty saying the G, K, and ing

syllables? Food feels like it's stuck the top of the E, about two inches down

from the ear lobes? This has been progressively getting worse since about 8

weeks after my heller myotomy with Dr. Luketich. Sometimes it's coffee related

but sometimes it just gets worse without coffee.

What would you do if this happened to you? Help! I thought achalasia was just a

problem with food not getting into the stomach. That's a lower E issue. What I

have is totally new, it's up at the top, at least from what I can tell. At least

I can eat again, I gained 11 pounds in 3 weeks! Everything still works it's just

getting slightly more paralyzed every week. I'm starting to freak out because

I've never heard of this part of A.

Gunn

[Guest guest]

Hey, ~~

Google Cricopharyngeal Spasm. I've had it from time to time, but then I used to

get DES, too (for 25 years/ onagain offagain). Seems stress related. So once

it starts, it creates its own stress. . .

I would *definitely* report it to my doctor!

Good luck!

xox

>

> Hi all,

> Has anyone ever had problems with the actual swallowing function? Like there

is something in the back of the throat, and it won't go away? Like the back of

the tongue to the upper part of the esophagus is numb and sometimes even

paralyzed? Has anyone ever had slurred speech, or difficulty saying the G, K,

and ing syllables? Food feels like it's stuck the top of the E, about two inches

down from the ear lobes? This has been progressively getting worse since about 8

weeks after my heller myotomy with Dr. Luketich. Sometimes it's coffee related

but sometimes it just gets worse without coffee.

>

> What would you do if this happened to you? Help! I thought achalasia was just

a problem with food not getting into the stomach. That's a lower E issue. What I

have is totally new, it's up at the top, at least from what I can tell. At least

I can eat again, I gained 11 pounds in 3 weeks! Everything still works it's just

getting slightly more paralyzed every week. I'm starting to freak out because

I've never heard of this part of A.

> Gunn

>

[Guest guest]

Hi

I have had serious upper oesophageal spasm and have just had a crycopharingeal

myotomy. I didn't have the numbness you talk about just huge amounts of mucous

and trouble with my voice box where it was spilling into it due to not being

able to get past the upper sphincter (plus constant retching when it would

finally come up). My consultant now says that it is recognised that Achalasia is

just one part of a general global spectrum on Oesophageal spasm. My advice would

be a barium swallow which shows up things so well and will tell you if this is

what the problem is. Hang in there - I totally sympathise. All the very best to

you. Kay xx

>

> Hi all,

> Has anyone ever had problems with the actual swallowing function? Like there

is something in the back of the throat, and it won't go away? Like the back of

the tongue to the upper part of the esophagus is numb and sometimes even

paralyzed? Has anyone ever had slurred speech, or difficulty saying the G, K,

and ing syllables? Food feels like it's stuck the top of the E, about two inches

down from the ear lobes? This has been progressively getting worse since about 8

weeks after my heller myotomy with Dr. Luketich. Sometimes it's coffee related

but sometimes it just gets worse without coffee.

>

> What would you do if this happened to you? Help! I thought achalasia was just

a problem with food not getting into the stomach. That's a lower E issue. What I

have is totally new, it's up at the top, at least from what I can tell. At least

I can eat again, I gained 11 pounds in 3 weeks! Everything still works it's just

getting slightly more paralyzed every week. I'm starting to freak out because

I've never heard of this part of A.

> Gunn

>

[Guest guest]

Hi ,

When my problems first began I had the feeling you describe of food getting

stuck but not the slurring issues. I was first diagnosed as a " double

swallower " and told not to swallow in quick succession as that could make the

problem worse. See this link:

http://findarticles.com/p/articles/mi_m0BUM/is_8_85/ai_n16740662/

I think I double swalloed to get the food to move down because of lack of

peristalsis in my e.

If I were you I would call my doctor to find out if they can help.

Best,

Lynn

>

> Hi all,

> Has anyone ever had problems with the actual swallowing function? Like there

is something in the back of the throat, and it won't go away? Like the back of

the tongue to the upper part of the esophagus is numb and sometimes even

paralyzed? Has anyone ever had slurred speech, or difficulty saying the G, K,

and ing syllables? Food feels like it's stuck the top of the E, about two inches

down from the ear lobes? This has been progressively getting worse since about 8

weeks after my heller myotomy with Dr. Luketich. Sometimes it's coffee related

but sometimes it just gets worse without coffee.

>

> What would you do if this happened to you? Help! I thought achalasia was just

a problem with food not getting into the stomach. That's a lower E issue. What I

have is totally new, it's up at the top, at least from what I can tell. At least

I can eat again, I gained 11 pounds in 3 weeks! Everything still works it's just

getting slightly more paralyzed every week. I'm starting to freak out because

I've never heard of this part of A.

> Gunn

>

[Guest guest]

Thanks everyone on the replies. I looked up all the info and made an appt with

my local doctor. I told Dr. Luketich in my follow up that I was having trouble

actually swallowing (on the upper part, not lower) and his PA said something

like " you will always have achalasia, that's just another part " and sort of

dismissed it. It's better now today, and I'm testing to see what foods seem to

trigger it. Corn chex. What the heck. Definitely have the double swallow

problem, and lots of air gets trapped as well. But it was scary when I was

slurring my speech on Saturday while proctoring the SAT. I'm looking for a scope

or something to just see if there is actually something stuck, or if it's like

that top part of the E/throat is paralyzed, and thus it feels different.

[Guest guest]

Thanks for the prod. Spoke to Chuck, PA for Dr Luketich today. He said it sounds

like something called Bolus (sp?). Basically he said the upper sphincter muscle

will close up as well if there is food stuck in the esophagus. Last Thursday I

got a piece of hamburger that got stuck and that's when this started to get bad.

He told me to cut out all caffeine ( a probable trigger) and go on a soft food

diet for a couple of weeks. If it doesn't get better he can do a scope and

stretch. No long term cure, and I'm worried once those nerves are gone, they're

gone. An esophagectomy wouldn't fix it because they only replace the bottom half

of the esophagus. And so I'm plugging along. Thankfully I can still eat fine,

just feels like a golf ball in the back of my throat. And difficult to say g k

and ing.

Hi ,

Achalasia of the upper esophagus has been mentioned in the past on this site. I

don't have much information to offer you. Based strictly upon what you have

written, the unusual nature of what is happening dictates that you set up an

appointment with Dr. Luketich, and let them know specifically the reason for it

at the time you make the appointment.

Dr. L is held in very high regards by the members of this group who have used

him. Please contact his office tomorrow.

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