Guest guest Posted October 28, 2011 Report Share Posted October 28, 2011 Notan and Steph.. She also indicated she was throwing up Bile.. which coroborates the LES being open. She may have an extreme cases of GERD. and the LES is opened and not closed. But she could also have an issue with the Upper Eso. and still have lack of peristalsis. Carolyn  > > > > > > ... The lady who gave us the test looked us dead in the face no its > > > not in your head your Les won't close. ... and recomended that the doc > > > may suggest a fundo type surgery ... . > > > > > > > I think your doctors are going to be doing some head scratching. > > > > I have been scratching my head and I have some questions. > > Was a high resolution manometer used or was it an older one with only > about 4 channels? > > Is there any chance the manometer did not make it into the stomach and > bent back up so the readings for the LES are incorrect? > > Aside from the LES how is your peristalsis? > > Any spasms detected? > > notan > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2011 Report Share Posted October 28, 2011 Thanks for the reminder Carolyn. So much is not understood. Scarlett - I hope you get some answers and some relief soon. We are all thinking of you today. On Oct 28, 2011, at 2:05 PM, Carolyn wrote: > Notan and Steph.. She also indicated she was throwing up Bile.. which coroborates the LES being open. She may have an extreme cases of GERD. and the LES is opened and not closed. But she could also have an issue with the Upper Eso. and still have lack of peristalsis. Carolyn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2011 Report Share Posted October 28, 2011 Carolyn wrote: > > She also indicated she was throwing up Bile.. which coroborates the > LES being open. She may have an extreme cases of GERD. and the LES is > opened and not closed. But she could also have an issue with the Upper > Eso. and still have lack of peristalsis. > The bile may or may not be meaningful. It has to come through another sphincter to get in the stomach before getting to the LES. Some people with untreated achalasia can vomit normally and others have a hard time with it and seldom complete the process. Vomiting bile may just mean she was sick, possibly from the stress and not eating or drinking, or it may mean something more. If the LES stays open why didn't the barium studies see reflux? Instead, the barium didn't go down? Or did it? How far did it go? Am I missing something? I understand that doctors can be out of their league when it comes to achalasia. On my first barium I could see the screen and I saw the barium form a vary narrow thread and almost completely disappear before showing up again in the stomach. I had no idea what achalasia or a bird's beak was but I knew something was odd. I also saw that the barium didn't move while I was on my back. In the report the radiologist described my swallowing and peristalsis as normal. Made no mention of the narrowing (birds beak). There was included in the report that the barium didn't move while I was on my back. There was no suggestion of achalasia but there was one that I maybe had esophagitis. I am guessing the radiologist figured the narrowing was because of inflammation from esophagitis. I think she may need a doctor that is expert enough to understand all the tests, not just the reports, and how the tests can go wrong, and will look at the results not just the reports, but the charts, images, whatever. What we have read is reports about what is being said. There may be something wrong with the tests, what is reported about the tests, or what is said about what is reported about the tests. Maybe we just haven't scratched our heads enough yet. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2011 Report Share Posted October 28, 2011 I agree...  I was there in the room with Cameron for the Barium swallow.. I watched the screen and could see the whole thing.. I find it odd they didn't tell her right there.... They told me..  hmm... right on the spot!Carolyn  > > She also indicated she was throwing up Bile.. which coroborates the > LES being open. She may have an extreme cases of GERD. and the LES is > opened and not closed. But she could also have an issue with the Upper > Eso. and still have lack of peristalsis. > The bile may or may not be meaningful. It has to come through another sphincter to get in the stomach before getting to the LES. Some people with untreated achalasia can vomit normally and others have a hard time with it and seldom complete the process. Vomiting bile may just mean she was sick, possibly from the stress and not eating or drinking, or it may mean something more. If the LES stays open why didn't the barium studies see reflux? Instead, the barium didn't go down? Or did it? How far did it go? Am I missing something? I understand that doctors can be out of their league when it comes to achalasia. On my first barium I could see the screen and I saw the barium form a vary narrow thread and almost completely disappear before showing up again in the stomach. I had no idea what achalasia or a bird's beak was but I knew something was odd. I also saw that the barium didn't move while I was on my back. In the report the radiologist described my swallowing and peristalsis as normal. Made no mention of the narrowing (birds beak). There was included in the report that the barium didn't move while I was on my back. There was no suggestion of achalasia but there was one that I maybe had esophagitis. I am guessing the radiologist figured the narrowing was because of inflammation from esophagitis. I think she may need a doctor that is expert enough to understand all the tests, not just the reports, and how the tests can go wrong, and will look at the results not just the reports, but the charts, images, whatever. What we have read is reports about what is being said. There may be something wrong with the tests, what is reported about the tests, or what is said about what is reported about the tests. Maybe we just haven't scratched our heads enough yet. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2011 Report Share Posted October 31, 2011 Notan, you have hit the nail on the head with me also. You know that i had the ectomy back in 2004 and had 6 dilatations post op. and everything fine until 11 months ago. About 11 months ago i had problems swallowing and finally had a dilatation eith an endoscopy back in March this year and there was a stricture in my neck. Well the balloon burst then and was swollen for a few days but was able to swallow fine after that until June this year and had a Barium Swallow. It showed a birds beak narrowing but the radiologist said that since i'd had the ectomy there was no problem showing. The consultant went on to say in clinic that though there was a narrowing in the bottom half of the stomach tube anything that i swallowed went through at a slow rate and was therefore ok. But if the narrowing was ok why is it almost impossible to get anything down and remains stuck in the top part of my stomach tube. I am only able to swallow about 5-6 teaspoons full of soft mushy food and no more. Have started to loose weight now as well. Is it Achalasia if the bottom stomach valve remains open but narrow?? Help. ________________________________ From: notan ostrich & lt;notan_ostrich@... & gt; achalasia Sent: Saturday, October 29, 2011 1:07 AM Subject: Re: Scarlett- Notan and Steph  Carolyn wrote: & gt; & gt; She also indicated she was throwing up Bile.. which coroborates the & gt; LES being open. She may have an extreme cases of GERD. and the LES is & gt; opened and not closed. But she could also have an issue with the Upper & gt; Eso. and still have lack of peristalsis. & gt; The bile may or may not be meaningful. It has to come through another sphincter to get in the stomach before getting to the LES. Some people with untreated achalasia can vomit normally and others have a hard time with it and seldom complete the process. Vomiting bile may just mean she was sick, possibly from the stress and not eating or drinking, or it may mean something more. If the LES stays open why didn & #39;t the barium studies see reflux? Instead, the barium didn & #39;t go down? Or did it? How far did it go? Am I missing something? I understand that doctors can be out of their league when it comes to achalasia. On my first barium I could see the screen and I saw the barium form a vary narrow thread and almost completely disappear before showing up again in the stomach. I had no idea what achalasia or a bird & #39;s beak was but I knew something was odd. I also saw that the barium didn & #39;t move while I was on my back. In the report the radiologist described my swallowing and peristalsis as normal. Made no mention of the narrowing (birds beak). There was included in the report that the barium didn & #39;t move while I was on my back. There was no suggestion of achalasia but there was one that I maybe had esophagitis. I am guessing the radiologist figured the narrowing was because of inflammation from esophagitis. I think she may need a doctor that is expert enough to understand all the tests, not just the reports, and how the tests can go wrong, and will look at the results not just the reports, but the charts, images, whatever. What we have read is reports about what is being said. There may be something wrong with the tests, what is reported about the tests, or what is said about what is reported about the tests. Maybe we just haven & #39;t scratched our heads enough yet. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2011 Report Share Posted October 31, 2011 What exactly is a birds beak? On Oct 31, 2011, at 2:16 AM, Hulmes wrote: > Notan, you have hit the nail on the head with me also. You know that i had the ectomy back in 2004 and had 6 dilatations post op. and everything fine until 11 months ago. About 11 months ago i had problems swallowing and finally had a dilatation eith an endoscopy back in March this year and there was a stricture in my neck. Well the balloon burst then and was swollen for a few days but was able to swallow fine after that until June this year and had a Barium Swallow. It showed a birds beak narrowing but the radiologist said that since i'd had the ectomy there was no problem showing. The consultant went on to say in clinic that though there was a narrowing in the bottom half of the stomach tube anything that i swallowed went through at a slow rate and was therefore ok. But if the narrowing was ok why is it almost impossible to get anything down and remains stuck in the top part of my stomach tube. I am only able to swallow about 5-6 teaspoons full of soft > mushy food and no more. Have started to loose weight now as well. Is it Achalasia if the bottom stomach valve remains open but narrow?? Help. > > ________________________________ > From: notan ostrich & lt;notan_ostrich@... & gt; > achalasia > Sent: Saturday, October 29, 2011 1:07 AM > Subject: Re: Scarlett- Notan and Steph > > > Carolyn wrote: > & gt; > & gt; She also indicated she was throwing up Bile.. which coroborates the > & gt; LES being open. She may have an extreme cases of GERD. and the LES is > & gt; opened and not closed. But she could also have an issue with the Upper > & gt; Eso. and still have lack of peristalsis. > & gt; > > The bile may or may not be meaningful. It has to come through another > sphincter to get in the stomach before getting to the LES. Some people > with untreated achalasia can vomit normally and others have a hard time > with it and seldom complete the process. Vomiting bile may just mean she > was sick, possibly from the stress and not eating or drinking, or it may > mean something more. If the LES stays open why didn & #39;t the barium studies > see reflux? Instead, the barium didn & #39;t go down? Or did it? How far did > it go? Am I missing something? > > I understand that doctors can be out of their league when it comes to > achalasia. On my first barium I could see the screen and I saw the > barium form a vary narrow thread and almost completely disappear before > showing up again in the stomach. I had no idea what achalasia or a > bird & #39;s beak was but I knew something was odd. I also saw that the barium > didn & #39;t move while I was on my back. In the report the radiologist > described my swallowing and peristalsis as normal. Made no mention of > the narrowing (birds beak). There was included in the report that the > barium didn & #39;t move while I was on my back. There was no suggestion of > achalasia but there was one that I maybe had esophagitis. I am guessing > the radiologist figured the narrowing was because of inflammation from > esophagitis. > > I think she may need a doctor that is expert enough to understand all > the tests, not just the reports, and how the tests can go wrong, and > will look at the results not just the reports, but the charts, images, > whatever. > > What we have read is reports about what is being said. There may be > something wrong with the tests, what is reported about the tests, or > what is said about what is reported about the tests. Maybe we just > haven & #39;t scratched our heads enough yet. > > notan > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2011 Report Share Posted October 31, 2011 : with a barium swallow, this is what an achalasia esophagus looks like: Widened at the top, narrowing down to a bird's beak (you don't lee the Lower Esophageal Sphincto (LES), you only see what it does to the esophageal *passage* into the stomach. That bird's beak is also called a " rat's tail " and it's what causes the blockage. Mine was about 5mm -- about 1/5 of an inch. Not a lot of food can get through. So it comes back. Hence all the spitting up. . . . http://en.wikipedia.org/wiki/File:Acha.JPG xox > > & gt; > > & gt; She also indicated she was throwing up Bile.. which coroborates the > > & gt; LES being open. She may have an extreme cases of GERD. and the LES is > > & gt; opened and not closed. But she could also have an issue with the Upper > > & gt; Eso. and still have lack of peristalsis. > > & gt; > > > > The bile may or may not be meaningful. It has to come through another > > sphincter to get in the stomach before getting to the LES. Some people > > with untreated achalasia can vomit normally and others have a hard time > > with it and seldom complete the process. Vomiting bile may just mean she > > was sick, possibly from the stress and not eating or drinking, or it may > > mean something more. If the LES stays open why didn & #39;t the barium studies > > see reflux? Instead, the barium didn & #39;t go down? Or did it? How far did > > it go? Am I missing something? > > > > I understand that doctors can be out of their league when it comes to > > achalasia. On my first barium I could see the screen and I saw the > > barium form a vary narrow thread and almost completely disappear before > > showing up again in the stomach. I had no idea what achalasia or a > > bird & #39;s beak was but I knew something was odd. I also saw that the barium > > didn & #39;t move while I was on my back. In the report the radiologist > > described my swallowing and peristalsis as normal. Made no mention of > > the narrowing (birds beak). There was included in the report that the > > barium didn & #39;t move while I was on my back. There was no suggestion of > > achalasia but there was one that I maybe had esophagitis. I am guessing > > the radiologist figured the narrowing was because of inflammation from > > esophagitis. > > > > I think she may need a doctor that is expert enough to understand all > > the tests, not just the reports, and how the tests can go wrong, and > > will look at the results not just the reports, but the charts, images, > > whatever. > > > > What we have read is reports about what is being said. There may be > > something wrong with the tests, what is reported about the tests, or > > what is said about what is reported about the tests. Maybe we just > > haven & #39;t scratched our heads enough yet. > > > > notan > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2011 Report Share Posted October 31, 2011 A bird's beak is where the oesophagus starts off as normal tubular shape and as you go downwards it suddenly narrows almost to a point. ________________________________ From: & lt;blondie1677@... & gt; achalasia Sent: Monday, October 31, 2011 4:27 PM Subject: Re: Scarlett- Notan and Steph What exactly is a birds beak? On Oct 31, 2011, at 2:16 AM, Hulmes wrote: & gt; Notan, you have hit the nail on the head with me also. You know that i had the ectomy back in 2004 and had 6 dilatations post op. and everything fine until 11 months ago. About 11 months ago i had problems swallowing and finally had a dilatation eith an endoscopy back in March this year and there was a stricture in my neck. Well the balloon burst then and was swollen for a few days but was able to swallow fine after that until June this year and had a Barium Swallow. It showed a birds beak narrowing but the radiologist said that since i & #39;d had the ectomy there was no problem showing. The consultant went on to say in clinic that though there was a narrowing in the bottom half of the stomach tube anything that i swallowed went through at a slow rate and was therefore ok. But if the narrowing was ok why is it almost impossible to get anything down and remains stuck in the top part of my stomach tube. I am only able to swallow about 5-6 teaspoons full of soft & gt; mushy food and no more. Have started to loose weight now as well. Is it Achalasia if the bottom stomach valve remains open but narrow?? Help. & gt; & gt; ________________________________ & gt; From: notan ostrich & amp;lt;notan_ostrich@... & amp;gt; & gt; achalasia & gt; Sent: Saturday, October 29, 2011 1:07 AM & gt; Subject: Re: Scarlett- Notan and Steph & gt; & gt; & gt; Carolyn wrote: & gt; & amp;gt; & gt; & amp;gt; She also indicated she was throwing up Bile.. which coroborates the & gt; & amp;gt; LES being open. She may have an extreme cases of GERD. and the LES is & gt; & amp;gt; opened and not closed. But she could also have an issue with the Upper & gt; & amp;gt; Eso. and still have lack of peristalsis. & gt; & amp;gt; & gt; & gt; The bile may or may not be meaningful. It has to come through another & gt; sphincter to get in the stomach before getting to the LES. Some people & gt; with untreated achalasia can vomit normally and others have a hard time & gt; with it and seldom complete the process. Vomiting bile may just mean she & gt; was sick, possibly from the stress and not eating or drinking, or it may & gt; mean something more. If the LES stays open why didn & #39;t the barium studies & gt; see reflux? Instead, the barium didn & #39;t go down? Or did it? How far did & gt; it go? Am I missing something? & gt; & gt; I understand that doctors can be out of their league when it comes to & gt; achalasia. On my first barium I could see the screen and I saw the & gt; barium form a vary narrow thread and almost completely disappear before & gt; showing up again in the stomach. I had no idea what achalasia or a & gt; bird & #39;s beak was but I knew something was odd. I also saw that the barium & gt; didn & #39;t move while I was on my back. In the report the radiologist & gt; described my swallowing and peristalsis as normal. Made no mention of & gt; the narrowing (birds beak). There was included in the report that the & gt; barium didn & #39;t move while I was on my back. There was no suggestion of & gt; achalasia but there was one that I maybe had esophagitis. I am guessing & gt; the radiologist figured the narrowing was because of inflammation from & gt; esophagitis. & gt; & gt; I think she may need a doctor that is expert enough to understand all & gt; the tests, not just the reports, and how the tests can go wrong, and & gt; will look at the results not just the reports, but the charts, images, & gt; whatever. & gt; & gt; What we have read is reports about what is being said. There may be & gt; something wrong with the tests, what is reported about the tests, or & gt; what is said about what is reported about the tests. Maybe we just & gt; haven & #39;t scratched our heads enough yet. & gt; & gt; notan & gt; & gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2011 Report Share Posted October 31, 2011 wrote: > > ... The consultant went on to say in clinic that though there was a > narrowing in the bottom half of the stomach tube anything that i > swallowed went through at a slow rate and was therefore ok. But if the > narrowing was ok why is it almost impossible to get anything down and > remains stuck in the top part of my stomach tube. ... > It sounds like the main problem could be at the top not the bottom where the narrowing is. Unlike the esophagus the stomach has more of an ability to distend functionally. I would guess that if you were eating more that the stomach tube would start to dilate to accommodate the increase. Even with gastric bypass surgery and the little bit of stomach volume it leaves, if one tries to eat like before the surgery it will stretch some to accommodate the load. There could still be a problem with the pyloric sphincter at the bottom of the stomach but with the little bit you are eating and the symptoms you report it doesn't seem like that is causing the symptoms. The problem at the top could be peristalsis problems in the esophageal stump, the anastomosis, or the UES. I am just guessing at all this but I am thinking it is in line with what your doctors are saying. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2011 Report Share Posted October 31, 2011 Ty ! Sent from my iPhone On Oct 31, 2011, at 12:49 PM, Hulmes <christine.hulmes@...> wrote: > A bird's beak is where the oesophagus starts off as normal tubular shape and as you go downwards it suddenly narrows almost to a point. > > > ________________________________ > From: & lt;blondie1677@... & gt; > achalasia > Sent: Monday, October 31, 2011 4:27 PM > Subject: Re: Scarlett- Notan and Steph > > What exactly is a birds beak? > > On Oct 31, 2011, at 2:16 AM, Hulmes wrote: > > & gt; Notan, you have hit the nail on the head with me also. You know that i had the ectomy back in 2004 and had 6 dilatations post op. and everything fine until 11 months ago. About 11 months ago i had problems swallowing and finally had a dilatation eith an endoscopy back in March this year and there was a stricture in my neck. Well the balloon burst then and was swollen for a few days but was able to swallow fine after that until June this year and had a Barium Swallow. It showed a birds beak narrowing but the radiologist said that since i & #39;d had the ectomy there was no problem showing. The consultant went on to say in clinic that though there was a narrowing in the bottom half of the stomach tube anything that i swallowed went through at a slow rate and was therefore ok. But if the narrowing was ok why is it almost impossible to get anything down and remains stuck in the top part of my stomach tube. I am only able to swallow about 5-6 teaspoons > full of soft > & gt; mushy food and no more. Have started to loose weight now as well. Is it Achalasia if the bottom stomach valve remains open but narrow?? Help. > & gt; > & gt; ________________________________ > & gt; From: notan ostrich & amp;lt;notan_ostrich@... & amp;gt; > & gt; achalasia > & gt; Sent: Saturday, October 29, 2011 1:07 AM > & gt; Subject: Re: Scarlett- Notan and Steph > & gt; > & gt; > & gt; Carolyn wrote: > & gt; & amp;gt; > & gt; & amp;gt; She also indicated she was throwing up Bile.. which coroborates the > & gt; & amp;gt; LES being open. She may have an extreme cases of GERD. and the LES is > & gt; & amp;gt; opened and not closed. But she could also have an issue with the Upper > & gt; & amp;gt; Eso. and still have lack of peristalsis. > & gt; & amp;gt; > & gt; > & gt; The bile may or may not be meaningful. It has to come through another > & gt; sphincter to get in the stomach before getting to the LES. Some people > & gt; with untreated achalasia can vomit normally and others have a hard time > & gt; with it and seldom complete the process. Vomiting bile may just mean she > & gt; was sick, possibly from the stress and not eating or drinking, or it may > & gt; mean something more. If the LES stays open why didn & #39;t the barium studies > & gt; see reflux? Instead, the barium didn & #39;t go down? Or did it? How far did > & gt; it go? Am I missing something? > & gt; > & gt; I understand that doctors can be out of their league when it comes to > & gt; achalasia. On my first barium I could see the screen and I saw the > & gt; barium form a vary narrow thread and almost completely disappear before > & gt; showing up again in the stomach. I had no idea what achalasia or a > & gt; bird & #39;s beak was but I knew something was odd. I also saw that the barium > & gt; didn & #39;t move while I was on my back. In the report the radiologist > & gt; described my swallowing and peristalsis as normal. Made no mention of > & gt; the narrowing (birds beak). There was included in the report that the > & gt; barium didn & #39;t move while I was on my back. There was no suggestion of > & gt; achalasia but there was one that I maybe had esophagitis. I am guessing > & gt; the radiologist figured the narrowing was because of inflammation from > & gt; esophagitis. > & gt; > & gt; I think she may need a doctor that is expert enough to understand all > & gt; the tests, not just the reports, and how the tests can go wrong, and > & gt; will look at the results not just the reports, but the charts, images, > & gt; whatever. > & gt; > & gt; What we have read is reports about what is being said. There may be > & gt; something wrong with the tests, what is reported about the tests, or > & gt; what is said about what is reported about the tests. Maybe we just > & gt; haven & #39;t scratched our heads enough yet. > & gt; > & gt; notan > & gt; > & gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2011 Report Share Posted October 31, 2011 Ty Sent from my iPhone On Oct 31, 2011, at 10:38 AM, " puddleriver13 " <puddleriver13@...> wrote: > : with a barium swallow, this is what an achalasia esophagus looks like: Widened at the top, narrowing down to a bird's beak (you don't lee the Lower Esophageal Sphincto (LES), you only see what it does to the esophageal *passage* into the stomach. That bird's beak is also called a " rat's tail " and it's what causes the blockage. Mine was about 5mm -- about 1/5 of an inch. Not a lot of food can get through. So it comes back. Hence all the spitting up. . . . > > http://en.wikipedia.org/wiki/File:Acha.JPG > > xox > > > > > > & gt; > > > & gt; She also indicated she was throwing up Bile.. which coroborates the > > > & gt; LES being open. She may have an extreme cases of GERD. and the LES is > > > & gt; opened and not closed. But she could also have an issue with the Upper > > > & gt; Eso. and still have lack of peristalsis. > > > & gt; > > > > > > The bile may or may not be meaningful. It has to come through another > > > sphincter to get in the stomach before getting to the LES. Some people > > > with untreated achalasia can vomit normally and others have a hard time > > > with it and seldom complete the process. Vomiting bile may just mean she > > > was sick, possibly from the stress and not eating or drinking, or it may > > > mean something more. If the LES stays open why didn & #39;t the barium studies > > > see reflux? Instead, the barium didn & #39;t go down? Or did it? How far did > > > it go? Am I missing something? > > > > > > I understand that doctors can be out of their league when it comes to > > > achalasia. On my first barium I could see the screen and I saw the > > > barium form a vary narrow thread and almost completely disappear before > > > showing up again in the stomach. I had no idea what achalasia or a > > > bird & #39;s beak was but I knew something was odd. I also saw that the barium > > > didn & #39;t move while I was on my back. In the report the radiologist > > > described my swallowing and peristalsis as normal. Made no mention of > > > the narrowing (birds beak). There was included in the report that the > > > barium didn & #39;t move while I was on my back. There was no suggestion of > > > achalasia but there was one that I maybe had esophagitis. I am guessing > > > the radiologist figured the narrowing was because of inflammation from > > > esophagitis. > > > > > > I think she may need a doctor that is expert enough to understand all > > > the tests, not just the reports, and how the tests can go wrong, and > > > will look at the results not just the reports, but the charts, images, > > > whatever. > > > > > > What we have read is reports about what is being said. There may be > > > something wrong with the tests, what is reported about the tests, or > > > what is said about what is reported about the tests. Maybe we just > > > haven & #39;t scratched our heads enough yet. > > > > > > notan > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2011 Report Share Posted November 1, 2011 Thank you Notan. Swallowing liquid is also taking longer than normal in going down and i do feel fullup quickly when i do eat. I have had 2 dilatations in the anastomosis but i frequently have problems getting food down past this and choke and end up getting hiccups. The hiccups help me get food down but anything trapped comes back up and down the wrong way making me get a fit of coughing. I am fedup in that i can't even enjoy a small meal these days and the surgeon says that food will eventually go down. This is not normal is it? You mention peristalis problems in the esophageal stump but could anything be done to make this better? from the UK ________________________________ From: notan ostrich & lt;notan_ostrich@... & gt; achalasia Sent: Monday, October 31, 2011 8:12 PM Subject: Re: Scarlett- Notan and Steph  wrote: & gt; & gt; ... The consultant went on to say in clinic that though there was a & gt; narrowing in the bottom half of the stomach tube anything that i & gt; swallowed went through at a slow rate and was therefore ok. But if the & gt; narrowing was ok why is it almost impossible to get anything down and & gt; remains stuck in the top part of my stomach tube. ... & gt; It sounds like the main problem could be at the top not the bottom where the narrowing is. Unlike the esophagus the stomach has more of an ability to distend functionally. I would guess that if you were eating more that the stomach tube would start to dilate to accommodate the increase. Even with gastric bypass surgery and the little bit of stomach volume it leaves, if one tries to eat like before the surgery it will stretch some to accommodate the load. There could still be a problem with the pyloric sphincter at the bottom of the stomach but with the little bit you are eating and the symptoms you report it doesn & #39;t seem like that is causing the symptoms. The problem at the top could be peristalsis problems in the esophageal stump, the anastomosis, or the UES. I am just guessing at all this but I am thinking it is in line with what your doctors are saying. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2011 Report Share Posted November 1, 2011 Hello I am Scarletts grandmother. I need to say that it turns out Scarlett does not have Achalasia. After she passed out on 10/25 and rushed to ER is when the hospital finally took action. She is currently at UCLA once again. Not sure why but she had a CT scan done of her head last night at midnight. She is NPO status as of today and still vomiting lots of bile. She was diagnosed with major GERD because her Lower Esophagal Splincter will NOT close. It is way too relaxed. She is still very ill. I have not heard from them today (my daughter (her mom) stayed the night there so I am waiting to hear the latest report. And it will be good! We are staying positive no matter what. YAY just got the text. NO brain mass! Hallelujah! Thanks everyone! Scarlett's Grandma > & gt; > & gt; ... The consultant went on to say in clinic that though there was a > & gt; narrowing in the bottom half of the stomach tube anything that i > & gt; swallowed went through at a slow rate and was therefore ok. But if the > & gt; narrowing was ok why is it almost impossible to get anything down and > & gt; remains stuck in the top part of my stomach tube. ... > & gt; > > It sounds like the main problem could be at the top not the bottom where > the narrowing is. Unlike the esophagus the stomach has more of an > ability to distend functionally. I would guess that if you were eating > more that the stomach tube would start to dilate to accommodate the > increase. Even with gastric bypass surgery and the little bit of stomach > volume it leaves, if one tries to eat like before the surgery it will > stretch some to accommodate the load. > > There could still be a problem with the pyloric sphincter at the bottom > of the stomach but with the little bit you are eating and the symptoms > you report it doesn & #39;t seem like that is causing the symptoms. The > problem at the top could be peristalsis problems in the esophageal > stump, the anastomosis, or the UES. > > I am just guessing at all this but I am thinking it is in line with what > your doctors are saying. > > notan > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2011 Report Share Posted November 1, 2011 > Thanks for the update--- we all hope she is doing better very soon. > Steohanie > > . And it will be good! We are staying positive no matter what. YAY just got the text. NO brain mass! Hallelujah! Thanks everyone! Scarlett's Grandma > > > > & gt; > > & gt; ... The consultant went on to say in clinic that though there was a > > & gt; narrowing in the bottom half of the stomach tube anything that i > > & gt; swallowed went through at a slow rate and was therefore ok. But if the > > & gt; narrowing was ok why is it almost impossible to get anything down and > > & gt; remains stuck in the top part of my stomach tube. ... > > & gt; > > > > It sounds like the main problem could be at the top not the bottom where > > the narrowing is. Unlike the esophagus the stomach has more of an > > ability to distend functionally. I would guess that if you were eating > > more that the stomach tube would start to dilate to accommodate the > > increase. Even with gastric bypass surgery and the little bit of stomach > > volume it leaves, if one tries to eat like before the surgery it will > > stretch some to accommodate the load. > > > > There could still be a problem with the pyloric sphincter at the bottom > > of the stomach but with the little bit you are eating and the symptoms > > you report it doesn & #39;t seem like that is causing the symptoms. The > > problem at the top could be peristalsis problems in the esophageal > > stump, the anastomosis, or the UES. > > > > I am just guessing at all this but I am thinking it is in line with what > > your doctors are saying. > > > > notan > > > > Quote Link to comment Share on other sites More sharing options...
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