YPWCs, Schools, Vaccinations etc.

[Guest guest]

Hi all,

If we decide to slip " CFIDS/ME: The Real Story " in through the huge

door with a big sign saying " Children and Family, " here are a few

brief ideas on contacts and lines of inquiry/resources. Hey, if kids

get CFIDS too, maybe all those complaining adult PWCs REALLY are

physically sick.

School: Perhaps some of our associations would support a Children and

Families media strategy. The CFIDS Association of America wrote a

" Guideline for Schools " regarding treatment of students with CFIDS

which could be useful for administrators, teachers, school nurses and

government agencies. But a guideline's premise must be believed

before it is heeded. Ongoing Teacher Education should NOW be offering

workshops and inservices on the special needs of these kids. They are

disabled.

Parents are in court fighting for their sick children. Not to be

forced to return to school too soon. Not to have mandatory

vaccinations. To have their children's meds dispensed during school

hours. To get home schooling for their children. ETC. Few school

administrators show any regard for these special needs. Few nurses

have a clue how to help these kids.

Medical: Dr. Lapp, Dr. Bell, Dr. Campion and Dr. Poesnecker were

quoted in an article written by Patti Schmidt in the CFIDS Chronicle

about children and adolescents with CFIDS. Perhaps she would help, or

one of the docs would be willing to do a television program on

pediatric issues.

The National Vaccine Information Center has been working with parents

groups opposed to mandatory vaccinations for at risk children. You

can visit the National Vaccine Info. Center at:

http://www.909shot.com/

If you go there, send them an e-mail asking that CFIDS/ME be listed

as one of the medical conditions harmed by vaccination. Now children

with CFIDS are listed under chronic illnesses (like diabetes).

We're for real, World.

Best thoughts,

Uma

[Guest guest]

hi uma! we love cats too :-)

just wanted to make a little corrections here - the Guidelines For

Schools was put out by the Nat'l CFIDS Foundation (NCF),

http://www.ncf-net.org, not the CAA.

i have about 20 of them right now. i ordered one for every school nurse

in the district. i was told just one in the district office was all

they needed. i still plan to distribute them in all the schools . . .

in a couple states, i know that activists have been able to get grants

and have these sent to every school in the district.

for those of you interested, there are several lists for activism out

there - CFIDS-L, me-activism@egroups, resact@egroups, there's more -

i'll dig them all up if somebody wants!!!

<<< The CFIDS Association of America wrote a " Guideline for Schools "

regarding treatment of students with CFIDS which could be useful for

administrators, >>>

~~~~~~~~~~~~~~~~~~~~~~~~~

" Would they have found nothing, unless nothing was what they wanted to

find? " - Agent Dales, X-Files

@}{~{<<~~~~~~~~~~~~~~~~~~~~

@}{~{<<~~~~~~~~~~~~~~~~~~~~

debbie s. - dlsherman@...

[Guest guest]

Debbie,

What you are doing is fantastic! Thank you so much for the correction

and further information. Are you interested in being involved in a

children's program for Oprah and work on the school issues, with help

of course?

Have you seen the two new ad hoc groups formed? The addresses

are in message number 19225! We're meeting there now.

Thank you so much, uma

> hi uma! we love cats too :-)

>

> just wanted to make a little corrections here - the Guidelines For

> Schools was put out by the Nat'l CFIDS Foundation (NCF),

> http://www.ncf-net.org, not the CAA.

>

> i have about 20 of them right now. i ordered one for every school

nurse

> in the district. i was told just one in the district office was all

> they needed. i still plan to distribute them in all the schools .

.. Debbie

>

> in a couple states, i know that activists have been able to get

grants

> and have these sent to every school in the district.

>

> for those of you interested, there are several lists for activism

out

> there - CFIDS-L, me-activism@egroups, resact@egroups, there's more -

> i'll dig them all up if somebody wants!!!

>

> <<< The CFIDS Association of America wrote a " Guideline for Schools "

> regarding treatment of students with CFIDS which could be useful for

> administrators, >>>

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~

> "