Guest guest Posted July 5, 2003 Report Share Posted July 5, 2003 My daughter has central sleep apnea and repetitive movement disorder along with excessive parasomnia (sleep walking) during stage 2 sleep....along with the dyspraxia. Re: [ ] Re: encopresis Oxygen? Do any of these kids have undx sleep apnea? I have just been dx with sleep apnea (high blood pressure was the marker..., I don't snore, so it was not obvious)...wondering here if the need for oxygen...is there a correlation? Jordan has apnea..snores terribly...having the horrid tonsil/adenoid surgery... Just a thought why oxygen may improve someone's condition? ~K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2003 Report Share Posted July 5, 2003 did they recommend CPAP for her? CNS stimulants? Just curious..... ~Karyn Re: [ ] Re: encopresis Oxygen? Do any of these kids have undx sleep apnea? I have just been dx with sleep apnea (high blood pressure was the marker..., I don't snore, so it was not obvious)...wondering here if the need for oxygen...is there a correlation? Jordan has apnea..snores terribly...having the horrid tonsil/adenoid surgery... Just a thought why oxygen may improve someone's condition? ~K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2003 Report Share Posted July 5, 2003 - I'm an occupational therapist whose attention was drawn to your posting. I have dealt with a number of children with this difficult and frustrating issue. Encopresis can be the by-product of a variety of anatomical and physiological issues, and to advise without knowing yor son's specific issues would be irresponsible. But, I can offer some information from a sensory perspective that may cause you to reconsider the approach you're currently using. Children with apraxia and sensory issues in general frequently suffer emotionally from their inability to interact effectively wth their environment. They may also be feeling physical discomfort at an increased level. This can result in a child seeking as much control as possible over events and situations in order to feel safe from the real or anticipated emotional and/or physical pain. This introduces an anxiety component that increases his susceptability to physical pain and further compounds the problem. The current approach (suppositories, forced sitting on a toilet)must be extremely stressful for you and your son. In any event, if it has not worked after using it for 4 weeks, I would suspect that it is not going to. If you want to e-mail me with more specifics about your son, I may be able to make some suggestions that could help. K. Grinovics, OTR/L > Marina, > My older son with apraxia does not have hyptonia. For him, even though we signed (Non-verbal until 33 months) during potty training (potty-trained at 26mo in one week), he was very easy to train and never seemed to have any accidents. My younger son received the diagnosis of apraxia at 14 months, since we already knew what we were dealing with the older sibling diagnosis and due to all the sucking/feeding problems at birth and infancy of the youngest. Potty- training has been a nightmare for the last year for my youngest, and now the constipation issues. My pediatrician has him on daily prescription laxatives and suppositories, and all he has is liquid soiling - no solid bowel moments for over 4 weeks. It has really put a stress on our family, especially my son with the problem since he tries to hide the accidents or doesn't tell his teachers and by the time I get there to pick him up he has rashes from accidents. Not to mention the screaming during the suppository sessions. My > pediatrician wants him to sit on the toilet for 10 min after he eats once a day to get him in a routine which may be the issue with typical children but mine just does not want to sit there and I end up holding him on the potty for the 10 minutes unitil the timer goes off. He eats lots of dried cherries, prunes, etc. and I have tried to increase his water consumption but I really don't know what else to do. I know this subject is not the most pleasant, but I do appreciate the responses. Thanks to all. . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2003 Report Share Posted July 6, 2003 , Something called Miralax is the only thing that seemed to work for my daughter. It is a powder that can be dissolved in just about any drink, but it does dissolve easier in soda. Pepsi or Sprite. My daughter does know it is there but knows she has to drink it or become distressed. Miralax is a prescription so check with your doctor and see if it is an option for you. Joyce Cerulo Re: [ ] Re: encopresis > Marina, > My older son with apraxia does not have hyptonia. For him, even though we signed (Non-verbal until 33 months) during potty training (potty-trained at 26mo in one week), he was very easy to train and never seemed to have any accidents. My younger son received the diagnosis of apraxia at 14 months, since we already knew what we were dealing with the older sibling diagnosis and due to all the sucking/feeding problems at birth and infancy of the youngest. Potty-training has been a nightmare for the last year for my youngest, and now the constipation issues. My pediatrician has him on daily prescription laxatives and suppositories, and all he has is liquid soiling - no solid bowel moments for over 4 weeks. It has really put a stress on our family, especially my son with the problem since he tries to hide the accidents or doesn't tell his teachers and by the time I get there to pick him up he has rashes from accidents. Not to mention the screaming during the suppository sessions. My > pediatrician wants him to sit on the toilet for 10 min after he eats once a day to get him in a routine which may be the issue with typical children but mine just does not want to sit there and I end up holding him on the potty for the 10 minutes unitil the timer goes off. He eats lots of dried cherries, prunes, etc. and I have tried to increase his water consumption but I really don't know what else to do. I know this subject is not the most pleasant, but I do appreciate the responses. Thanks to all. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2003 Report Share Posted July 6, 2003 , sorry I got to your next post and I see you have already tried Miralax. Joyce Re: [ ] Re: encopresis > , > My pediatrician gave me samples of a prescription laxative called Miralax, which after reading the pachage insert is not indicated for children. It is a tasteless, odorless powder that I mix in 1/2 apple/ prune juice. It states to use only for 2 weeks, but we are heading into more than 5 weeks now without a solid BM, when I called back to say it wasn't working, I was told to begin the suppositories. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2003 Report Share Posted July 9, 2003 In a message dated 7/3/03 12:08:30 PM Eastern Daylight Time, KissmeKaate@... writes: > BENEFIBER. Its a tasteless, odorless powder that can be mixed COMPLETELY > in soft food or any beverage that's not carbonated. IT'S COMPLETELY > undetectable....no smell, no taste, NOTHING. It was used for years in feeding tubes > in hospitals and nursing homes. It's nothing more than GUAR GUM....which is > used in ice cream....100% natural, no sugars, dyes, etc. My pediatrician suggested Benefiber for our son who has trouble with constipation. He hasn't had any kind of side effects from it. Chris Quote Link to comment Share on other sites More sharing options...
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