Guest guest Posted July 4, 2001 Report Share Posted July 4, 2001 DS and gastritis Sherri- Within minutes of reading your post , I read this one on a private list I'm on for families on program with neurodevelopementalists. Many of the families on this list are also using a company called ChemBalance to address metabolically issues of their labled children and well as a whole litany of digestive orders. I asked for permission to post this here, the mom was responding to a new family who asked if CB works for DS children. I know it's not exactly the same situation as your situation, but this child hadn't grown in 2 years and has now put on 8 lbs since starting the program in March. Chembalance relies largely on electrolytes and sometimes minerals to balance the ph in the stomach. Their goal is to get you eating a balance diet of real home cooked foods and get rid of as many meds and supplements as possible. (As in your system is working good enough you don't need them anymore).If you want more info go to www.chembalance.com there is also a nice article on ds/autism dx on our ND's website at www.ican-do.net she has hepled alot of children with this double dx. Hope this helps. - _______________ I have a son who is 5 ( this month 6) who has DS. We have been on all the NvD products since a little over 1 yr. old. He is also on piracetam and armour thyroid. But he always was a sick little boy. I have talked to Rob P from IN and even Dr. L if you know these people. To no avail. 5-6 times a yr. would get a fever. Then engulfing, overwhelming mucus, which in turn caused " junky lungs " , viral pneumonia or/and reg. pneumonia. This meant weeks of steroids,antibiotics and use of a nebulizer machine. Even when all better he still was somewhat congested and had rattles in his chest. Every little bug around would cause him to secrete more mucus and have to go back on steroids. We started CB the beginning of March. The first thing I noticed was the congestion left, he had more energy, his expressive language came out more, he noticed more about the world around him, his bowels improved. Before you could say was compliant and passive. Now his is a normal, full of energy, active little boys testing his limits. But I was waiting to see what would happen IF and when the fever came back. It did last week. He was sitting up at 2 a.m. coughing, crying sputtering with mucus on his lips with a fever. My dh and I prayed, gave tylenol and vit C. In the morning ; he seemed very well, fever gone, no congestion. Only some more mucus on lips told me it wasn't a dream. He still was not his self....not eating well, lying around, tummy growling. So I called at CB. After a conference with , she called back with instructions. We did them and is totally o.k. No meds, no steroids, no stress, no nothing. So, yes CB is good for DS kids ;even " normal " DS kids. I can't explain it all but they believe basically if the stomach ph is right then your body can absorb the vits, and minerals it is supposed to from foods. We are not on a weird diet and is denied nothing to eat. We didn't have to buy lots of supplements either...just electrolytes that so far have lasted us 2 months on one bottle. In the DS community they say NO dairy. Which before CB we did restrict because of the mucus problem. now eats yogurt, pudding, custards and has milk in lots of foods that I did not put it in before. He is even learning to drink milk. He is the healthiest he has ever been..even with drinking milk and eating dairy. It is $70 for an initial telephone conference and $30 or $35 for each time you return the checklist. So for us it was an answer to prayer. 3 cheers for CB. Thanks Cyndi. Janet " I believe that I may know " . - Augustine - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2001 Report Share Posted July 4, 2001 What is DS? Thanks for explaining. Joan DS and gastritis Sherri- Within minutes of reading your post , I read this one on a private list I'm on for families on program with neurodevelopementalists. Many of the families on this list are also using a company called ChemBalance to address metabolically issues of their labled children and well as a whole litany of digestive orders. I asked for permission to post this here, the mom was responding to a new family who asked if CB works for DS children. I know it's not exactly the same situation as your situation, but this child hadn't grown in 2 years and has now put on 8 lbs since starting the program in March. Chembalance relies largely on electrolytes and sometimes minerals to balance the ph in the stomach. Their goal is to get you eating a balance diet of real home cooked foods and get rid of as many meds and supplements as possible. (As in your system is working good enough you don't need them anymore).If you want more info go to www.chembalance.com there is also a nice article on ds/autism dx on our ND's website at www.ican-do.net she has hepled alot of children with this double dx. Hope this helps. - _______________ I have a son who is 5 ( this month 6) who has DS. We have been on all the NvD products since a little over 1 yr. old. He is also on piracetam and armour thyroid. But he always was a sick little boy. I have talked to Rob P from IN and even Dr. L if you know these people. To no avail. 5-6 times a yr. would get a fever. Then engulfing, overwhelming mucus, which in turn caused " junky lungs " , viral pneumonia or/and reg. pneumonia. This meant weeks of steroids,antibiotics and use of a nebulizer machine. Even when all better he still was somewhat congested and had rattles in his chest. Every little bug around would cause him to secrete more mucus and have to go back on steroids. We started CB the beginning of March. The first thing I noticed was the congestion left, he had more energy, his expressive language came out more, he noticed more about the world around him, his bowels improved. Before you could say was compliant and passive. Now his is a normal, full of energy, active little boys testing his limits. But I was waiting to see what would happen IF and when the fever came back. It did last week. He was sitting up at 2 a.m. coughing, crying sputtering with mucus on his lips with a fever. My dh and I prayed, gave tylenol and vit C. In the morning ; he seemed very well, fever gone, no congestion. Only some more mucus on lips told me it wasn't a dream. He still was not his self....not eating well, lying around, tummy growling. So I called at CB. After a conference with , she called back with instructions. We did them and is totally o.k. No meds, no steroids, no stress, no nothing. So, yes CB is good for DS kids ;even " normal " DS kids. I can't explain it all but they believe basically if the stomach ph is right then your body can absorb the vits, and minerals it is supposed to from foods. We are not on a weird diet and is denied nothing to eat. We didn't have to buy lots of supplements either...just electrolytes that so far have lasted us 2 months on one bottle. In the DS community they say NO dairy. Which before CB we did restrict because of the mucus problem. now eats yogurt, pudding, custards and has milk in lots of foods that I did not put it in before. He is even learning to drink milk. He is the healthiest he has ever been..even with drinking milk and eating dairy. It is $70 for an initial telephone conference and $30 or $35 for each time you return the checklist. So for us it was an answer to prayer. 3 cheers for CB. Thanks Cyndi. Janet " I believe that I may know " . - Augustine - Quote Link to comment Share on other sites More sharing options...
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