Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 Yes, I was surprised that she was so much in favor of the surgery. I even made sure she understood that it would be a far bigger deal than the last surgery she had (umbilical hernia repair two years ago) and she was still all for it. She is a bit socially anxious and I think this is definitely playing a role here; she said she doesn't want to be called names because of a brace. We also talked about how while we're interested in what she thinks of the whole thing, the decision about what to do is an adult one and rests with her parents and doctors. But I have to admit that it's a very interesting change to have her want to have input now that she is older than the last time we had to make a big decision. Nola > > Nola, > We are always happy to have you post here. and hope you feel welcome. That is amazing that a 7 1/ year old is O.K. with surgery. That really tells alot about how much she really dislikes the brace. > Anyways, good luck with the upcoming appt. Let us know what is decided. > /Cole > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 Yes, I remember talking to you about some time ago. I hope you're staying warm now that it's finally cold! We went sledding at Elver Park on Monday and froze; the wind was very, very cold! Plus walking up that hill is absolutely brutal. ;-) Nola > > Nola, > > > > Took me a few minutes to remember who you were, and it hit me, we live in > the same town. > > > > So sorry to hear that Bronwen's spine is getting worse. But it sounds like > you have a great Doctor on your case. > > > > Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 Hi Jacki, Yes, it's a bummer that her curves are progressing again, but I do think we were very lucky the past couple years, so I guess we'll have to deal with it. I forget...is the VEPTR the titanium rib or am I getting my surgeries mixed up? ;-) Nola > > Hi Nola > > Good to " see " you again! I remember you well! My daughter Siobhan is > 7 too, and was diagnosed with a connective tissue disorder too! > Marfan's was confirmed about a year ago. > > We braced and casted but Siobhan's curve (and rotation) needed more, > so she received the VEPTR last May. I will be very interested in what > Dr Betz says about Vetebral Stapling - I asked our ortho Dr D'Astous > a while back, but he didn't feel Siobhan would be a candidate (curves > too high and progressive). > > I'm sorry that Bronwen's curves are sneaking up again - And am very > happy that you have a game plan for her. > > Please keep us posted.... > > Jacki > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 Hi Nola - Yes, the " rib " or titanium rib is also referred to as the VEPTR (Vertical Expandable Prosthetic Titanium Rib - phew that's a bit of a mouthful!). It is a 'big' surgery, no denying that, but Siobhan is doing great. I noticed that Bronwen had hernia repair? So did Siobhan about 18 months ago. Our girls have a lot in common - medically - When is Brownwen's appt with Dr Betz? I have only heard good things about him! Jacki > > > > Hi Nola > > > > Good to " see " you again! I remember you well! My daughter Siobhan > is > > 7 too, and was diagnosed with a connective tissue disorder too! > > Marfan's was confirmed about a year ago. > > > > We braced and casted but Siobhan's curve (and rotation) needed > more, > > so she received the VEPTR last May. I will be very interested in > what > > Dr Betz says about Vetebral Stapling - I asked our ortho Dr > D'Astous > > a while back, but he didn't feel Siobhan would be a candidate > (curves > > too high and progressive). > > > > I'm sorry that Bronwen's curves are sneaking up again - And am very > > happy that you have a game plan for her. > > > > Please keep us posted.... > > > > Jacki > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 Bronwen's umbilical hernia was repaired in 11/05. We see Dr. Betz tomorrow! Nola > > Hi Nola - Yes, the " rib " or titanium rib is also referred to as the > VEPTR (Vertical Expandable Prosthetic Titanium Rib - phew that's a > bit of a mouthful!). > It is a 'big' surgery, no denying that, but Siobhan is doing great. > I noticed that Bronwen had hernia repair? So did Siobhan about 18 > months ago. Our girls have a lot in common - medically - > > When is Brownwen's appt with Dr Betz? I have only heard good things > about him! > > Jacki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Hi group, We saw Drs. Betz and Sturm yesterday in Chicago. There was some concern at first about the rotation in Bronwen's thoracic curve (whether or not it was " stiff " is my sense of it) but x-rays showed that it isn't. Therefore, Dr. Betz proclaimed her a perfect candidate for vertebral body stapling and we're on the road to getting the surgery scheduled. We will travel to Philadelphia for the surgery. I missed hearing the bones that they will staple in her upper curve, but the lower one will be T-12 to L-4. We're hoping the surgery will be in March, but who knows when they will be able to get it scheduled. ;-) Nola Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 hi nola, wow, that's fast! are you having it done in chicago with dr. sturm? will dr. betz be there as well? or do you have to go to philly? i hope you don't mind me asking some questions . . . how did they explain the procedure to you? why is a bronwen perfect candidate? is it because her curves are low? can a child not have rotation? do they expect this to hold her or to correct some as she grows? basically, anything that they told you about the procedure, i would love to hear and tuck it away for later . . . thanks so much for posting. deshea On Jan 19, 2007, at 2:48 PM, Nola RC wrote: > Hi group, > > We saw Drs. Betz and Sturm yesterday in Chicago. There was some > concern at > first about the rotation in Bronwen's thoracic curve (whether or > not it was > " stiff " is my sense of it) but x-rays showed that it isn't. > Therefore, Dr. > Betz proclaimed her a perfect candidate for vertebral body stapling > and > we're on the road to getting the surgery scheduled. We will travel to > Philadelphia for the surgery. > > I missed hearing the bones that they will staple in her upper > curve, but the > lower one will be T-12 to L-4. > > We're hoping the surgery will be in March, but who knows when they > will be > able to get it scheduled. ;-) > > Nola > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 I would love more information about the stapling. I didn't even know it was approved in the United States. shellie " Deshea L. " <deshea@...> wrote: hi nola, wow, that's fast! are you having it done in chicago with dr. sturm? will dr. betz be there as well? or do you have to go to philly? i hope you don't mind me asking some questions . . . how did they explain the procedure to you? why is a bronwen perfect candidate? is it because her curves are low? can a child not have rotation? do they expect this to hold her or to correct some as she grows? basically, anything that they told you about the procedure, i would love to hear and tuck it away for later . . . thanks so much for posting. deshea On Jan 19, 2007, at 2:48 PM, Nola RC wrote: > Hi group, > > We saw Drs. Betz and Sturm yesterday in Chicago. There was some > concern at > first about the rotation in Bronwen's thoracic curve (whether or > not it was > " stiff " is my sense of it) but x-rays showed that it isn't. > Therefore, Dr. > Betz proclaimed her a perfect candidate for vertebral body stapling > and > we're on the road to getting the surgery scheduled. We will travel to > Philadelphia for the surgery. > > I missed hearing the bones that they will staple in her upper > curve, but the > lower one will be T-12 to L-4. > > We're hoping the surgery will be in March, but who knows when they > will be > able to get it scheduled. ;-) > > Nola > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 Deshea, to answer your questions: <<are you having it done in chicago with dr. sturm? will dr. betz be there as well? or do you have to go to philly?>> We will be going to Philadelphia and Dr. Betz or Dr. D' will perform the surgery with Dr. Sturm assisting, as he hasn't done it before. <<how did they explain the procedure to you?>> They showed me where they'd staple each curve (the convex side), and said that the upper curve would be done through small incisions (a couple, going in from the side) and that the lower curve would have one larger incision, again on the side. He expects each curve to take 2.5 hours to do, for five hours total. The lungs have to be deflated for the procedure (which frankly freaks me out). Most patients are hospitalized for 3 days, but since we'd have to travel so far, we'd stay for 4 days. <<why is a bronwen perfect candidate? is it because her curves are low? can a child not have rotation?>> From what I gather, it's because she has a moderate curve (25 degrees for both curves) and there was something about the rotation of the upper curve that was good. He was using a term that was not familiar to me and I can't remember what it was, sorry. But I think the deal is that the upper curve has some rotation, but that this rotation is flexible and it can un-rotate when the body is put into certain positions, and that this is great news. He had her do five x-rays, four of which were lying down in various strange positions (from what I gather; my husband went to the x-ray room with Bronwen, not me). So rotation is okay, but it should be flexible in some way. I think he still would have done the surgery if it did not un-rotate, but he would not have been as enthusiastic about the outcome for that particular curve. <<do they expect this to hold her or to correct some as she grows?>> The theory goes that there will be correction as growth occurs, but he was careful to explain that this was the theory and that I should not expect correction. It should be considered an " internal brace " and the goal should be holding the curve from getting worse, not correction (though he has seen some correct...one patient has over-corrected and needs a few staples removed). There simply aren't enough patients to draw firm conclusions about whether or not this theory is correct. I hope this helps! Nola Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 nola, thanks so much for answering my questions. i'll definitely save this e-mail post! i really hope everything goes smoothly now that things are scheduled. will they be able to do it in march? i hope that it is sooner than later. i know i can't stand to wait once i've made my mind up about something. please know that my family will be thinking of bronwen and your family. deshea On Jan 22, 2007, at 9:41 AM, Nola RC wrote: > Deshea, to answer your questions: > > <<are you having it done in chicago with dr. sturm? will dr. betz > be there > as well? or do you have to go to philly?>> > > We will be going to Philadelphia and Dr. Betz or Dr. D' will > perform > the surgery with Dr. Sturm assisting, as he hasn't done it before. > > <<how did they explain the procedure to you?>> > > They showed me where they'd staple each curve (the convex side), > and said > that the upper curve would be done through small incisions (a > couple, going > in from the side) and that the lower curve would have one larger > incision, > again on the side. He expects each curve to take 2.5 hours to do, > for five > hours total. The lungs have to be deflated for the procedure (which > frankly > freaks me out). Most patients are hospitalized for 3 days, but > since we'd > have to travel so far, we'd stay for 4 days. > > <<why is a bronwen perfect candidate? is it because her curves are > low? can > a child not have rotation?>> > > From what I gather, it's because she has a moderate curve (25 > degrees for > both curves) and there was something about the rotation of the > upper curve > that was good. He was using a term that was not familiar to me and > I can't > remember what it was, sorry. But I think the deal is that the upper > curve > has some rotation, but that this rotation is flexible and it can un- > rotate > when the body is put into certain positions, and that this is great > news. > He had her do five x-rays, four of which were lying down in various > strange > positions (from what I gather; my husband went to the x-ray room with > Bronwen, not me). So rotation is okay, but it should be flexible in > some > way. I think he still would have done the surgery if it did not un- > rotate, > but he would not have been as enthusiastic about the outcome for that > particular curve. > > <<do they expect this to hold her or to correct some as she grows?>> > > The theory goes that there will be correction as growth occurs, but > he was > careful to explain that this was the theory and that I should not > expect > correction. It should be considered an " internal brace " and the > goal should > be holding the curve from getting worse, not correction (though he > has seen > some correct...one patient has over-corrected and needs a few staples > removed). There simply aren't enough patients to draw firm conclusions > about whether or not this theory is correct. > > I hope this helps! > > Nola > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 I can't stand waiting once I've made up my mind, either, so it's going to be a long wait, especially since Bronwen wants to get it over with, too. She's already asking me when March will be here, and we don't even know if it will actually be in March yet. Nola > > nola, > > thanks so much for answering my questions. i'll definitely save this > e-mail post! i really hope everything goes smoothly now that things > are scheduled. will they be able to do it in march? i hope that it > is sooner than later. i know i can't stand to wait once i've made my > mind up about something. please know that my family will be thinking > of bronwen and your family. > > deshea > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2007 Report Share Posted November 27, 2007 Dx= diagnosis rx= treatment bx=biopsy . When a patient like you or me has advanced disease the liver can no longer break down protein from red meat so it ends up turning into ammonia in the blood . Which leads to neurological damage and can lead to death . This condition is easily treated and is called hepatic encephlaphy . Also we tend to get high iron levels which damage the heart , kidneys and further damage the liver . It also is easily treated . With cirrhosis treatment is not completely ruled out especially since your grade is 3 . You can ask your doc to order a TIBC ( total iron binding capacity ) blood test to see if your iron saturation is within normal limits .According to research with the damage in your liver treatment is highly recommended to reverse and prevent further damage . Don't get overwhelmed it will be ok , we are here to help you with any questions and for emotional support . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2007 Report Share Posted November 27, 2007 Hi Debbie, Well first off,, take a deep breath... this disease has been around for a long time in your body and its not gonna kill ya next week .. I saw that Liz explained the ferritin and TIBC that you will no doubt be asking your doc for. As long as your ammonia levels are ok, you CAN and should consume adequate amounts of protein because liver tissue needs protein to work properly.. Its a good thing that you found your virus when you did.. You are stage 3 of 4 which means you have a lot of fibrosis and early cirrhosis which is where I WAS when I was diagnosed.. but your grade of inflammation is a 4 of 4 which means your virus is very active, mine was a 3 which was considered very active too. So its a good thing that you found it now before your stage is a 4 which IS cirrhosis.. so you can still treat and stop the damage if you are successful. My ferritin levels went through the roof while on tx even tho I was 'critically' anemic... The insurance company "tried" to get my doc to give me iron even with a ferritin level of 717!!!!! what I needed was procrit.. Did your biopsy say that you had any iron staining? That would indicate that you have stored iron in your liver.. I did not and that was one of the things that Im sure helped my treatment to be successful. You said you went to a nutritionist at the hosp who was not very helpful. You also said you are not eating much protein. May I ask why? Protein is very important for your liver.. but that is not saying that you need to be on an atkins diet or anything like that.. but your liver NEEDS protein to work properly and to replace its own cells.. you can get low fat protein from chicken, fish, poultry, tofu, beans and rice etc,, it does NOT have to be bacon and red meat.. and there is protein even in veggies.. but its important,, especially when on treatment that you eat a protein based diet.. THAT is what the RN from Scherring told our class that was to prepare us for treatment.. The sheet I still have says that we need to eat a protein based diet.. even if its only a small amount of cheese or some other form of protein with each and every meal. I had a hard time on tx with food tasting ok,, everything looked and smelled ok but tasted like burnt metal.... was awful and I lost more than 70 pounds on tx which I needed to lose. I was very lucky while on tx because the Scherring's Peg Intron was the only one available, it was before Pegasys, and its been proven that Peg Intron is more successful with geno 1a in overweight folks which I was.. You asked if treatment was out if one had cirrhosis,, no, I know several ppl who were stage and grade 4/4 who successfully treated and reached SVR and are still SVR 3 or more years after finishing tx.. so it can be done. I think that at your level of damage that it is a good time to consider treatment. Its scary but you can do it, its doable and we are all here to help you. Please feel free to ask any questions you have... I see that you are headed to work, what kind of work do you do? Do you have short and long term disability? Every company in America has to give you FMLA which is 12 weeks of unpaid leave for family or medical reasons but do you have extended short and long term disability? With being geno 1a, which is what I am too, you will have to treat for at least 48 weeks and one can get very tired and anemic from tx. I was a 911 paramedic who had to stop work at week 12 of treatment because I was too anemic to be able to jump up and run to a medical call, or to help carry a 200 pound patient up a hill from a car crash etc and with the anemia, I had a hard time making critical decisions and THAT was more worrisome to me than the shortness of breath etc... please keep us updated,, we're here for ya! hugs, jaxdebbiel21 <debbiel@...> wrote: Thanks everyone. Ok I've got to take charge of my health. I guess I know what I'll be doing with my time. First could someone explain dx and tx? Ammonia and iron levels -just found ferritin on labwhich was normal. Do I request an iron panel run and what for ammonia? Also told low sodium so I've switched to sweets. Not eating much protein. Went to a nutritionist at the hospital but not much help except with the low sodium. I don't know what to eat -no appetite. If someone could point me in some direction I'd appreciate it. From the biopsy diagnosed chronic hep c, grade 3, stage 4 (cirrhosis). Is this grade and stage of hep or cirrhosis? Found I'm genotype 1a. Learned somethingslast nite. So with cirrhosis is treatment out? Sorry bout all the questions, I am overwhelmed at all the information here and better head off to work before I overload my brain.Or I could call in sickThanks againDebbieJackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2007 Report Share Posted November 27, 2007 Also, Debbie, a lot of folks including my wife and I, have found the Hepatitis C Cookbook by Jeanne to be full of great information and recipies. We don't always follow the recipies, but the proper diet constraints are there. Diet and proper liquid intake are 2 of the first things you can do on your own. Say in touch and keep asking your questions. Re: Hello again Hi Debbie, Well first off,, take a deep breath... this disease has been around for a long time in your body and its not gonna kill ya next week .. I saw that Liz explained the ferritin and TIBC that you will no doubt be asking your doc for. As long as your ammonia levels are ok, you CAN and should consume adequate amounts of protein because liver tissue needs protein to work properly.. Its a good thing that you found your virus when you did.. You are stage 3 of 4 which means you have a lot of fibrosis and early cirrhosis which is where I WAS when I was diagnosed.. but your grade of inflammation is a 4 of 4 which means your virus is very active, mine was a 3 which was considered very active too. So its a good thing that you found it now before your stage is a 4 which IS cirrhosis.. so you can still treat and stop the damage if you are successful. My ferritin levels went through the roof while on tx even tho I was 'critically' anemic... The insurance company "tried" to get my doc to give me iron even with a ferritin level of 717!!!!! what I needed was procrit.. Did your biopsy say that you had any iron staining? That would indicate that you have stored iron in your liver.. I did not and that was one of the things that Im sure helped my treatment to be successful. You said you went to a nutritionist at the hosp who was not very helpful. You also said you are not eating much protein. May I ask why? Protein is very important for your liver.. but that is not saying that you need to be on an atkins diet or anything like that.. but your liver NEEDS protein to work properly and to replace its own cells.. you can get low fat protein from chicken, fish, poultry, tofu, beans and rice etc,, it does NOT have to be bacon and red meat.. and there is protein even in veggies.. but its important,, especially when on treatment that you eat a protein based diet.. THAT is what the RN from Scherring told our class that was to prepare us for treatment.. The sheet I still have says that we need to eat a protein based diet.. even if its only a small amount of cheese or some other form of protein with each and every meal. I had a hard time on tx with food tasting ok,, everything looked and smelled ok but tasted like burnt metal.... was awful and I lost more than 70 pounds on tx which I needed to lose. I was very lucky while on tx because the Scherring's Peg Intron was the only one available, it was before Pegasys, and its been proven that Peg Intron is more successful with geno 1a in overweight folks which I was.. You asked if treatment was out if one had cirrhosis,, no, I know several ppl who were stage and grade 4/4 who successfully treated and reached SVR and are still SVR 3 or more years after finishing tx.. so it can be done. I think that at your level of damage that it is a good time to consider treatment. Its scary but you can do it, its doable and we are all here to help you. Please feel free to ask any questions you have... I see that you are headed to work, what kind of work do you do? Do you have short and long term disability? Every company in America has to give you FMLA which is 12 weeks of unpaid leave for family or medical reasons but do you have extended short and long term disability? With being geno 1a, which is what I am too, you will have to treat for at least 48 weeks and one can get very tired and anemic from tx. I was a 911 paramedic who had to stop work at week 12 of treatment because I was too anemic to be able to jump up and run to a medical call, or to help carry a 200 pound patient up a hill from a car crash etc and with the anemia, I had a hard time making critical decisions and THAT was more worrisome to me than the shortness of breath etc... please keep us updated,, we're here for ya! hugs, jaxdebbiel21 <debbielverizonmail> wrote: Thanks everyone. Ok I've got to take charge of my health. I guess I know what I'll be doing with my time. First could someone explain dx and tx? Ammonia and iron levels -just found ferritin on labwhich was normal. Do I request an iron panel run and what for ammonia? Also told low sodium so I've switched to sweets. Not eating much protein. Went to a nutritionist at the hospital but not much help except with the low sodium. I don't know what to eat -no appetite. If someone could point me in some direction I'd appreciate it. From the biopsy diagnosed chronic hep c, grade 3, stage 4 (cirrhosis). Is this grade and stage of hep or cirrhosis? Found I'm genotype 1a. Learned somethingslast nite. So with cirrhosis is treatment out? Sorry bout all the questions, I am overwhelmed at all the information here and better head off to work before I overload my brain.Or I could call in sickThanks againDebbieJackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2008 Report Share Posted May 8, 2008 I'm in KY too. My kids aren't old enough for school yet but I'm looking ahead. How difficult is it to get a religious exemption in KY? We were considering moving to Ohio where they have a philosophical exemption, which, I've heard, is easier, but I don't know. I'd prefer to stay in KY! I've even considered home schooling as an option, rather than vaccinating, if need be. > > I've been MIA for quite sometime now though I've been a part of the list for > many years now. > > > > I've been trying to keep up with at least reading the posts as much as I > can. I'm thrilled to see so many new members here! > > > > Just a quick reintroduction for those who don't know me: > > > > I live in Kentucky with my husband and 2 teenagers. I am a former > registered nurse. I worked for 9 years in pediatrics and obstetrics. I've > been out of nursing now for almost 10 years. I left the nursing field to > stay home with my kids. Knowing what I do now about the medical industry, I > could never go back into nursing. I currently work as an instructional > assistant in an elementary school. I'm saddened by the terrible health > conditions of the students there. LOTS of asthma, autism, allergies, some > diabetes, and just the general overall susceptibility to ear infections, > strep, stomach viruses, colds, pneumonia, etc. The nurse's office there is > ALWAYS busy. > > > > My children were fully vaccinated up through their kindergarten shots. I > didn't know there was any other way. And they suffered for it. They were > ALWAYS sick, ALWAYS at the pediatricians, ALWAYS on antibiotics, cough > medicine, cold medicine. It was a vicious cycle. > > > > I had a reaction to my last tetanus shot 9 years ago. This was before I > knew about the dangers of vaccines. I had joint pain in every joint in my > body for months. No more shots of any kind for me, although at the time I > had no idea it was a reaction to the shot. > > > > We got our first puppy almost 8 years ago. He had a reaction to his puppy > vaccines, and that prompted me to research the dangers of animal vaccines > which led to researching the dangers of vaccines for humans. I was appalled > and disgusted with what I found! The rest is history! > > > > I took one of Sheri N's first Introduction to Homeopathy classes about 6 > years ago. We now use homeopathy exclusively, and I can't tell you the > difference it's made in the health of our family. Vaccines, antibiotics, > OTC drugs, etc. were keeping us stuck in a mire of sickness. Homeopathy has > liberated us from that! > > > > My children are in high school (the oldest graduates in 3 weeks!!). > They've had religious exemptions in place for the past 7 or so years. I've > never been questioned about it at all. > > > > For those of you with babies and young children, how BLESSED they are that > you are questioning the safety of vaccines now while they're still young. I > wish I could go back 18 years and start over with what I know now! > > > > As Sheri says over and over again, vaccines do NOT provide immunity. What > they do is damage the immune system so it can't do what it's intended to do. > Acute illnesses have been replaced by life long chronic disease as a result. > EVERY vaccine carries major risks for a person of ANY age, newborn, child, > teen, or adult. It's NOT worth it! > > > > Kay in KY > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2008 Report Share Posted May 9, 2008 Soo good to see you back Kay. Missed ya!! :-) Sue xx -- Hello Again I've been MIA for quite sometime now though I've been a part of the list for many years now. I've been trying to keep up with at least reading the posts as much as I can. I'm thrilled to see so many new members here! Just a quick reintroduction for those who don't know me: I live in Kentucky with my husband and 2 teenagers. I am a former registered nurse. I worked for 9 years in pediatrics and obstetrics. I've been out of nursing now for almost 10 years. I left the nursing field to stay home with my kids. Knowing what I do now about the medical industry, I could never go back into nursing. I currently work as an instructional assistant in an elementary school. I'm saddened by the terrible health conditions of the students there. LOTS of asthma, autism, allergies, some diabetes, and just the general overall susceptibility to ear infections, strep, stomach viruses, colds, pneumonia, etc. The nurse's office there is ALWAYS busy. My children were fully vaccinated up through their kindergarten shots. I didn't know there was any other way. And they suffered for it. They were ALWAYS sick, ALWAYS at the pediatricians, ALWAYS on antibiotics, cough medicine, cold medicine. It was a vicious cycle. I had a reaction to my last tetanus shot 9 years ago. This was before I knew about the dangers of vaccines. I had joint pain in every joint in my body for months. No more shots of any kind for me, although at the time I had no idea it was a reaction to the shot. We got our first puppy almost 8 years ago. He had a reaction to his puppy vaccines, and that prompted me to research the dangers of animal vaccines which led to researching the dangers of vaccines for humans. I was appalled and disgusted with what I found! The rest is history! I took one of Sheri N's first Introduction to Homeopathy classes about 6 years ago. We now use homeopathy exclusively, and I can't tell you the difference it's made in the health of our family. Vaccines, antibiotics, OTC drugs, etc. were keeping us stuck in a mire of sickness. Homeopathy has liberated us from that! My children are in high school (the oldest graduates in 3 weeks!!). They've had religious exemptions in place for the past 7 or so years. I've never been questioned about it at all. For those of you with babies and young children, how BLESSED they are that you are questioning the safety of vaccines now while they're still young. I wish I could go back 18 years and start over with what I know now! As Sheri says over and over again, vaccines do NOT provide immunity. What they do is damage the immune system so it can't do what it's intended to do. Acute illnesses have been replaced by life long chronic disease as a result. EVERY vaccine carries major risks for a person of ANY age, newborn, child, teen, or adult. It's NOT worth it! Kay in KY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2008 Report Share Posted May 9, 2008 That is so weird. I was only wondering about you yesterday Kay. It took me that long to realize you were missing, and here you are back again. Fieldman Hello Again I've been MIA for quite sometime now though I've been a part of the list for many years now. I've been trying to keep up with at least reading the posts as much as I can. I'm thrilled to see so many new members here! Just a quick reintroduction for those who don't know me: I live in Kentucky with my husband and 2 teenagers. I am a former registered nurse. I worked for 9 years in pediatrics and obstetrics. I've been out of nursing now for almost 10 years. I left the nursing field to stay home with my kids. Knowing what I do now about the medical industry, I could never go back into nursing. I currently work as an instructional assistant in an elementary school. I'm saddened by the terrible health conditions of the students there. LOTS of asthma, autism, allergies, some diabetes, and just the general overall susceptibility to ear infections, strep, stomach viruses, colds, pneumonia, etc. The nurse's office there is ALWAYS busy. My children were fully vaccinated up through their kindergarten shots. I didn't know there was any other way. And they suffered for it. They were ALWAYS sick, ALWAYS at the pediatricians, ALWAYS on antibiotics, cough medicine, cold medicine. It was a vicious cycle. I had a reaction to my last tetanus shot 9 years ago. This was before I knew about the dangers of vaccines. I had joint pain in every joint in my body for months. No more shots of any kind for me, although at the time I had no idea it was a reaction to the shot. We got our first puppy almost 8 years ago. He had a reaction to his puppy vaccines, and that prompted me to research the dangers of animal vaccines which led to researching the dangers of vaccines for humans. I was appalled and disgusted with what I found! The rest is history! I took one of Sheri N's first Introduction to Homeopathy classes about 6 years ago. We now use homeopathy exclusively, and I can't tell you the difference it's made in the health of our family. Vaccines, antibiotics, OTC drugs, etc. were keeping us stuck in a mire of sickness. Homeopathy has liberated us from that! My children are in high school (the oldest graduates in 3 weeks!!). They've had religious exemptions in place for the past 7 or so years. I've never been questioned about it at all. For those of you with babies and young children, how BLESSED they are that you are questioning the safety of vaccines now while they're still young. I wish I could go back 18 years and start over with what I know now! As Sheri says over and over again, vaccines do NOT provide immunity. What they do is damage the immune system so it can't do what it's intended to do. Acute illnesses have been replaced by life long chronic disease as a result. EVERY vaccine carries major risks for a person of ANY age, newborn, child, teen, or adult. It's NOT worth it! Kay in KY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2008 Report Share Posted May 9, 2008 Thanks Sue. It's good to be back. I missed everyone here, too! Kay Re: Hello Again Soo good to see you back Kay. Missed ya!! :-) Sue xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2008 Report Share Posted May 9, 2008 LOL... thanks . It's nice to be missed. Kay Re: Hello Again That is so weird. I was only wondering about you yesterday Kay. It took me that long to realize you were missing, and here you are back again. Fieldman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2008 Report Share Posted May 9, 2008 I had no problem at all. I went to the health dept. and asked for 2 religious exemption forms. They handed them to me, no questions asked. I turned them into the school at the beginning of the school year with all the enrollment forms. Again, no questions were asked. Kay in KY Re: Hello Again I'm in KY too. My kids aren't old enough for school yet but I'm looking ahead. How difficult is it to get a religious exemption in KY? We were considering moving to Ohio where they have a philosophical exemption, which, I've heard, is easier, but I don't know. I'd prefer to stay in KY! I've even considered home schooling as an option, rather than vaccinating, if need be. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2009 Report Share Posted June 30, 2009 Hi Bill, My name is . I'm very curious. If you had your ICD installed in 2003, got zapped nine times between then and 2005, and not at all since, to what do you attribute this dramatic improvement? Has your heart been diagnosed as improved in ways you can describe, for instance? Because that's pretty dramatic, the difference. Nine times in two years and then not again, since then, four years ago! I'd love to know more about your heart and your diagnosis. thanks. disagnosed Hello again Hi My name is Bill and it has been at least 4 yrs since I sent message to this group. for no other reason that I'm lazy:) When I got my first icd in jan of 2003 this group helped me out considerably. I don't know if anyone remembers me but I recognize some of the names in the messages here. I haven't been zapped since I think 2005 I really don't remember. Been zapped a total of 9 times. any way if I can be of any help to anyone let me know. either here in the group or my email at w.schaeffler@... ------------------------------------ Be sure to visit and use other ZapLife.org services: The ZapperBBS at http://zaplife.org/phpBB2/viewforum.php?f=1 1 - Email list forum at / 2 - Email delivery of the Zapper Newsletter at 2/ 3 - Email list forum for those involved in ICD litigation at 3/ ZapChat - Real time online support group (Thursdays 8PM EST) at http://www.zaplife.org/chat.html ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at http://www.zaplife.org/zap4.htm The ZAPPER Home page at http://www.zaplife.org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2009 Report Share Posted June 30, 2009 Hi I think the reason is that my heart itself is not in to bad a shape a little enlarged. I had double bypass bout 20 yrs ago and arterys are still good. It is pretty much under control by medicine metrophonel (cant spell) which is the only thing I take for the heart. after that got adjusted my zaps stopped. the icd is hardly ever pacing anymore and see doctor only once a year but monitored over phone every 3 months . I count my self very lucky I got no restrictions at all and excerise 3 or 4 times a week weight lifting and thread mill and bike. well I'm at work and have to get back talk to you later Bill. From: Yardbird <yardbird@...>Subject: Re: Hello again Date: Monday, June 29, 2009, 8:38 PM Hi Bill,My name is . I'm very curious. If you had your ICD installed in 2003, got zapped nine times between then and 2005, and not at all since, to what do you attribute this dramatic improvement? Has your heart been diagnosed as improved in ways you can describe, for instance? Because that's pretty dramatic, the difference. Nine times in two years and then not again, since then, four years ago! I'd love to know more about your heart and your diagnosis.thanks.disagnosed Hello againHi My name is Bill and it has been at least 4 yrs since I sent message to this group. for no other reason that I'm lazy:) When I got my first icd in jan of 2003 this group helped me out considerably. I don't know if anyone remembers me but I recognize some of the names in the messages here. I haven't been zapped since I think 2005 I really don't remember. Been zapped a total of 9 times. any way if I can be of any help to anyone let me know. either here in the group or my email at w.schaeffler@ att.net------------ --------- --------- ------Be sure to visit and use other ZapLife.org services:The ZapperBBS athttp://zaplife. org/phpBB2/ viewforum. php?f=11 - Email list forum athttp://health. groups.. com/group/ /2 - Email delivery of the Zapper Newsletter athttp://health. groups.. com/group/ 2/3 - Email list forum for those involved in ICD litigation athttp://health. groups.. com/group/ 3/ZapChat - Real time online support group (Thursdays 8PM EST) athttp://www.zaplife. org/chat. htmlZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations athttp://www.zaplife. org/zap4. htmThe ZAPPER Home page athttp://www.zaplife. org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2011 Report Share Posted September 20, 2011 Hello everyone, I want to apologize for the way I left the group a few months ago. But Taniea is not well and I have little ideas on how to help her. She has been crawling on the floor because she is afraid to walk but when that gets to much she just rolls around. But lately she has been using crutches to help support her, but she has been falling. The doctor and GI both agree she needs to be seen by neuro but we are waiting on an appointment date. She has had 2 dilations in the past month the first on they said they dilated her from 9mm to 14 mm and the second from 12mm to 15mm. This brings to my second concern she has not gotten any relief from these dilations and the GI is wanting to send her to an adult GI to get her dilated to a 30mm (adult size) which seems drastic (lack of better words). Any advice or previous experience with this at all would be greatly appreciated. Shamira Quote Link to comment Share on other sites More sharing options...
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