Botox

June 22, 2004

YIKES!!!

Nice report.....has anyone talked with her about onset of symptoms and initiation of Botox?

While trying to R/O other possibilities (how much Mayo info do you have?) if there is a temporal connection certainly I'd consider that as potential causation....of course, discontinuing Botox for 3-5 months to observe would be in my plan....

Very interesting.....

J. Pedersen DC

June 22, 2004

Dear Dennis,

Wow, interesting case. I had a patient with very similar conditions also dx with dystonia. In addition to neck deviation, she had lingual deviation, facial paralysis, unilateral UE motor loss. Her doctors thought stroke at first also. However, not from Botox. I agree with the other suggestion to have the wait 3-5 months and avoid future injections in order to see what happens. However, here's some other diagnostic info that might help. Have her tested for Porphyria. I think that's how you spell it. It's a blood dyscrasia. I think it was once called 'vampire disease'. no kidding. People with it will commonly have extreme adverse rxns to medications. They don't tolerate the sun at all. IF exposed, they become very lethargic and actually feel so ill they are naseous. They may have a history of being exposed to toxic agents like improperly ducted furnace, exhaust of some kind, caustic chemicals. Ask if she's worked in a place where this might have happend. Solvents. that sort of thing.

IT's long shot, but she seems to be an unusual case. Please keep us posted on this patients progress. I have a couple MD friends, I'm going to ask them and I'll post an answer if I get one. I'm not saying it isn't the botox, but this patient of mine reacts to medications by getting almost every known side-effect.

Minga Guerrero DC

Gresham OR

In a message dated 6/22/2004 6:55:03 AM Pacific Standard Time, drdennis@... writes:

I havent seen any cases yet with patients using Botox so maybe somebody knows something of this drug. Had a new patient yesterday present with many interesting symptoms in particular a very swollen SCM on the LEFT and a HX of her head rotating to the LEFT almost tic-like but barely noticeable (sounded more like a chronic, tonic, clonic, intermittent torticollis). She got the DX of Dystonia of the C/Spine from Mayo. She also has pain down the left arm that was definately cervicogenic in nature as well as Chronic Fatigue. Exam of the C/S mm revealed 4/5 flexors as a group, 4/5 scalenes R & L, 4/5 L SCM and 3/5 R SCM. She could literally barely hold her head up. She has been getting botox injections into the lower cervical spine AT 2000.00/INJECTION!!! (and we're talking about overcharging). So, as an A.K. guy and somebody that has used the miracle of low level laser therapy for the last year, it is very unusual for me not to be able to turn on neck flexors and rotators after a visit. So the question is will I be able to? I know Botox wears off after 3-5 months and she is due for another injection in July. Any info on this drug would be appreciated. (By the way, she was subluxated and I adjusted her).Dennis Nowack DC

June 23, 2004

Here is a link for the Dystonia Foundation :

http://www.dystonia-foundation.org/defined/

I have a long time friend who has been diagnosed with some form of Dystonia. My friend has Botox shots in her neck and it has helped her tremendously as she can now hold her head in a more normal and less writhing posture. I think it is the Dystonia not the Botox that is your patient's problem. I would like to know more about Dystonia's cause as it is truly a difficult malady.

s. fuchs dc

-----Original Message-----From: AboWoman@... [mailto:AboWoman@...]Sent: Tuesday, June 22, 2004 9:38 PM Subject: Re: Botox

Dear Dennis,

Wow, interesting case. I had a patient with very similar conditions also dx with dystonia. In addition to neck deviation, she had lingual deviation, facial paralysis, unilateral UE motor loss. Her doctors thought stroke at first also. However, not from Botox. I agree with the other suggestion to have the wait 3-5 months and avoid future injections in order to see what happens. However, here's some other diagnostic info that might help. Have her tested for Porphyria. I think that's how you spell it. It's a blood dyscrasia. I think it was once called 'vampire disease'. no kidding. People with it will commonly have extreme adverse rxns to medications. They don't tolerate the sun at all. IF exposed, they become very lethargic and actually feel so ill they are naseous. They may have a history of being exposed to toxic agents like improperly ducted furnace, exhaust of some kind, caustic chemicals. Ask if she's worked in a place where this might have happend. Solvents. that sor t of thing.

IT's long shot, but she seems to be an unusual case. Please keep us posted on this patients progress. I have a couple MD friends, I'm going to ask them and I'll post an answer if I get one. I'm not saying it isn't the botox, but this patient of mine reacts to medications by getting almost every known side-effect.

Minga Guerrero DC

Gresham OR

In a message dated 6/22/2004 6:55:03 AM Pacific Standard Time, drdennis@... writes:

I havent seen any cases yet with patients using Botox so maybe somebody knows something of this drug. Had a new patient yesterday present with many interesting symptoms in particular a very swollen SCM on the LEFT and a HX of her head rotating to the LEFT almost tic-like but barely noticeable (sounded more like a chronic, tonic, clonic, intermittent torticollis). She got the DX of Dystonia of the C/Spine from Mayo. She also has pain down the left arm that was definately cervicogenic in nature as well as Chronic Fatigue. Exam of the C/S mm revealed 4/5 flexors as a group, 4/5 scalenes R & L, 4/5 L SCM and 3/5 R SCM. She could literally barely hold her head up. She has been getting botox injections into the lower cervical spine AT 2000.00/INJECTION!!! (and we're talking about overcharging). So, as a n A.K. guy and somebody that has used the miracle of low level laser therapy for the last year, it is very unusual for me not to be able to turn on neck flexors and rotators after a visit. So the question is will I be able to? I know Botox wears off after 3-5 months and she is due for another injection in July. Any info on this drug would be appreciated. (By the way, she was subluxated and I adjusted her).Dennis Nowack DC

August 17, 2007

Thanks Steve-that sounds promising. Glad it helps with your eye

anyway....anything else is a bonus!Have a good weekend.

Kate

August 17, 2007

Thanks Steve-that sounds promising. Glad it helps with your eye

anyway....anything else is a bonus!Have a good weekend.

Kate

August 17, 2007

Hi Kate,

I have botox for a lazy eye every 2 to 3 months, but nothing to do with

pain. I know it’s not an injection for pain relief, but, for some unknown

reason a couple of years ago if I was in a bad flare – and had the botox

injected into my eye, it seemed to help. I have no idea why have never

mentioned it to anybody until now.

Steve

_____

From: Stillsdisease [mailto:Stillsdisease ]

On Behalf Of katy_weeks1979

Sent: 17 August 2007 16:15

To: Stillsdisease

Subject: Botox

Hi all,

I haven't posted for ages now but I've been reading. Welcome to all the

new members. There seems to be lots more of us in the UK now.

Anyway, my reason for posting is to see if anyone has had any

experience of botox. I went to the Pain Clinic for the first time this

week and he recommended botox injections in both my knees. They're so

painful I'll try anything but I just wondered if anyone has tried it.

I've done a bit of digging round on the net and it seems it has been

successful with arthritis in the US. As usual, the UK is a little

behind! I'm on the list for November anyway.Any experiences/-views

welcome!

Many thanks. Take care

Kate (UK)

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August 17, 2007