Guest guest Posted September 18, 2011 Report Share Posted September 18, 2011 Hi achalasia people, I would like to recommend something to us as a group. This is also something for the new non-profit that is starting. It would be very helpful to our new members to get a " Welcome Packet " - a document that lists a link to a description of the disease, a description of what we call " spasms " , a brief list of the top 10 doctors (200+ surgeries), a list of medications that people use (not to recommend anything, just to say that this is what people do,) and a list of remedies we all use for spasms (once again, with a disclaimer at the top that what works for one person may actually cause problems for another). It would be like a 5 page document. This packet would not give advice as to treatment. Then at the end a list of links of our many support groups - the group, the four or five facebook groups, the healthcares group, and the info for 's non-profit. What do you all think of this? I'd be willing to do it, but give me about 3 months. I could set it up on google docs so people could see it and help revise. I have belonged to other health oriented groups where you automatically get a welcome " packet " or " email " when you join the group, so it wouldn't be difficult to administer. Please give feedback. Maybe someone is already working on this. Gunn Quote Link to comment Share on other sites More sharing options...
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