Increasing difficulties 5 months after HM, what's normal?

[Guest guest]

Hi I'm pretty new to this group. I had a heller myotomy w/ ant fundo back in

April this year. Initially things were fantastic, aside from spasms I was

eating everything. Lately I am finding myself avoiding foods again. I feel like

food is sitting on my chest again. Having some regurgitation, if I bend over

especially ...which I was able to do after surgery. Ugh! Is this normal? I

realize the muscles don't work so what symptoms are normal?

Thanks so much for any help,

Haydee

[Guest guest]

Hi Haydee,

I also felt some relief for a couple months after HM w/Dor, then I started

feeling worse, eventually when I would bend over the food would just come out,

even hours after eating. I had a dilation and that stopped my regurgitation

during day. After this I had very bad spasms, which Levsin 0.125 under tongue

has helped. I have good days and some bad now, watch what I eat daily. Life is

challenging, would love to find a GI doctor that I trust and feel like they

listen and understand this condition and my symptoms. Wishful thinking!! Good

luck!!

BC

[Guest guest]

Thanks Barb. Ugh. I feel the same way. I feel pretty alone in the doc

department. Aside from calling the surgeon I don't have a doc I feel confident

in. This disease is too rare I guess for the average doc to be able to devote

time to.

Guess I'll be making a call to the surgeon .... And the tests begin anew.

>

> Hi Haydee,

> I also felt some relief for a couple months after HM w/Dor, then I started

feeling worse, eventually when I would bend over the food would just come out,

even hours after eating. I had a dilation and that stopped my regurgitation

during day. After this I had very bad spasms, which Levsin 0.125 under tongue

has helped. I have good days and some bad now, watch what I eat daily. Life is

challenging, would love to find a GI doctor that I trust and feel like they

listen and understand this condition and my symptoms. Wishful thinking!! Good

luck!!

> BC

>

[Guest guest]

Haydee, I think I have read you are from Florida? Dr. Richter is an expert on

Achalasia, was at Cleveland Clinic, then to Temple and now in Tampa, I think at

University of South Florida. Went to Florida this month I think. If he is close

to you I would highly recommend him. I personally have not seen him, but have

read alot of good things about him, and he is a GI Specialist!! Let me know if

you contact him. Good luck. I am contemplating if I should find a new GI or not.

Tough decision, frustrating when they are so aloof, but then again maybe they

really don't know what to do to help us......tough for us!!