Achalasia

[Guest guest]

My daughter 25 has recently been diagnosed with achalasia. She has had symptoms

for about three months. She has been advised Heller's myotomy. We live in UK but

can travel to USA for treatment. Can anyone suggest the best approach and best

GI and surgeon in Cleveland clinic or Mayo clinic form personal experience

[Guest guest]

I'm not knocking the Cleveland clinic, but there are plenty good surgeons in the

UK, as there are many achalasia patients who have benefited greatly from their

skills. You might also consider that with followups, it might be better to use a

UK surgeon. Quite a few people from the UK have had the surgery and are doing

quite well.

 

From: anil_gupta7094 <anil_gupta70@...>

Subject: Achalasia

achalasia

Date: Thursday, August 25, 2011, 7:49 PM

 

My daughter 25 has recently been diagnosed with achalasia. She has had symptoms

for about three months. She has been advised Heller's myotomy. We live in UK but

can travel to USA for treatment. Can anyone suggest the best approach and best

GI and surgeon in Cleveland clinic or Mayo clinic form personal experience

[Guest guest]

Hi Anil

He does a stomach rap which prevents reflux and it has certainly worked with me.

I have various other spasm problems but 5 years on the Myotomy is working well.

I am so glad you know him from working with him. He is respected by collegues

and patients alike which is brilliant. I certainly trust him and he hasn't let

me down yet.

I really hope things go well. I have just been in the Upper GI ward at the

Churchill and the care I received was second to none.

love Kay xx

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in UK but can travel to USA for treatment. Can anyone suggest the best approach

and best GI and surgeon in Cleveland clinic or Mayo clinic form personal

experience

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[Guest guest]

Hello Kim I am sorry that you are dealing with this disease.  I am glad that

you have found this group.  I have not been treated at that location but I have

been therough all you can over the years.  If you have any questions please

feel free to ask.  I have a web site too if you would like to look at.

 www.achalasia.us.

Welcome 

<FONT face= " comic sans ms " color=#ff0000 size=5> in Georgia </FONT><IMG

src= " http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif " >

________________________________

From: Kim <xploring37@...>

achalasia

Sent: Monday, November 21, 2011 12:40 PM

Subject: Achalasia

 

Hi everyone,

I am new to this discussion group as well as Achalasia. It started 6 1/2 months

ago with not being able to swallow and then I went in for endoscopy and the

regurgitation started. I have been a patient at Aurora med in kenosha, Wi for a

very long time and they referred me to Froedert Medical College of Wis in

Milwaukee. I just had the graded pneumatic dilation and that helped and I am

able to eat and drink again, within some limits of course.

Just curious if there is anyone being treated at Froedert and just real

interested to hear other experiences with this wonderful disease.

Thanks for listening

Kim

[Guest guest]

I was treated at Froedert for Achalasia.  My surgeon is no longer there, but

Dr. Massey in the GI department is apparently regarded as the number 1 guy in

the state.  I found this out after I moved, and my new GI doctor told me he

refers all dilitations over 20 cm to him.

mike in WI

________________________________

From: Kim <xploring37@...>

achalasia

Sent: Monday, November 21, 2011 11:40 AM

Subject: Achalasia

 

Hi everyone,

I am new to this discussion group as well as Achalasia. It started 6 1/2 months

ago with not being able to swallow and then I went in for endoscopy and the

regurgitation started. I have been a patient at Aurora med in kenosha, Wi for a

very long time and they referred me to Froedert Medical College of Wis in

Milwaukee. I just had the graded pneumatic dilation and that helped and I am

able to eat and drink again, within some limits of course.

Just curious if there is anyone being treated at Froedert and just real

interested to hear other experiences with this wonderful disease.

Thanks for listening

Kim

[Guest guest]

Hi everyone,

 

My mother is really into treating whatever you can homeopathically. Has anyone

ever tried this?

  

http://www.lasnofax.com/

[Guest guest]

Alas, the scams for " cures " for orphan diseases grows faster than one can keep

ahead of them. . . .

http://www.ozscam.com/2011/10/12/lasnofax-com-treatment-for-achalasia-scam/

http://achalasia.net/forumv3/viewtopic.php?f=3 & t=478

There's no doubt that homeopathy works for a certain percent of patients. My

guess would be about the same percent as the placebo in double blind studies. .

.. .

http://www.psychologytoday.com/blog/all-about-addiction/201101/even-when-you-kno\

w-its-fake-the-strength-the-placebo-effect

The worst thing about what these doods do is that sooner or later they're gonna

kill someone who's clinging to their promises and delaying treatment that

they're afraid of. . . .

xox

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> Hi everyone,

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> My mother is really into treating whatever you can homeopathically. Has anyone

ever tried this?

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> http://www.lasnofax.com/

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[Guest guest]

Actually this is a very interesting website.

 

Thanks for the info Notan

________________________________

From: notan ostrich <notan_ostrich@...>

achalasia

Sent: Wednesday, May 9, 2012 11:37 PM

Subject: Re: Fw: ACHALASIA

 

Kim wrote:

>

> http://www.lasnofax.com/

>

I have discussed these kind of sites before. There is also a blogger,

called, " One Sick Mother, " who has written much more than I have about

these sites. The lasnofax is a product from Healing Plants Ltd..

According to her they offer other products often with the same

ingredients for other conditions. Here is a quote from her blog:

" Again, we also see that the same formulations of herbs are re-used

several times to treat vastly different conditions. According to these

guys, Uveitis, Keratosis Pilaris, Abdominal Adhesions, Achlasia,

Peyronie's Disease, and Myasthenia Gravis can all be treated with " clear

improvement within days " by taking their special formulation, which is a

mixture of: ... "

If you want to read more see:

http://onesickmother.typepad.com/my_weblog/2009/08/healing-plants-ltd-scam.html

As to the possibility of these products actually being true homeopathic

products I see little chance. A lot of people use the term homeopathic

to mean all kinds of things but it actually has a very specific meaning.

Homeopathy has two main beliefs, that things become stronger by diluting

them (contrary to science) and you treat symptoms with things that cause

those symptoms (homeo=like, pathy=disease). I don't see that product

fitting any of that.

notan