Roux-En-Y operation refused

[Guest guest]

Is there anyone out there who has had an Oesophagectomy for Achalasia and had to

go one and have the Roux-En-Y Diversion operation for reflux?????? In 2 previous

consults with the same consultant i was led to belive that this operation was an

option for me. You see, after i had the Oesophagectomy back in 2004 and some

dilatations withing the 1st year post op. i remained happy with my swallowing.

It is only in the recent 10 months or so that the swallowing problems that you

accociate with Achalasia and reflux returned. Back in March this year i had a

dilatation which ended with the balloon bursting because of a stricture. In June

this year i had a Barium Swallow done and it showed that the bottom half on my

stomach tube is now only 2/3rds of a cm wide. So the chats about the Roux-En-y

operation came about. For the last 2 yrs i have had the use of a jejunal feeding

tube to help maintain my weight and this is still working great but for 1 thing.

I keep

getting infections namely MRSA in the stoma and granuloma. Now i cannot put

silver nitrate on the granuloma as 90% of it is just under the skin next to the

stoma and cannot be burned. All i can treat it with is antibiotics and keep the

stoma as dry as possible by having to put dressings around the sroma 4 times a

day to soak up any exudate that leaks out. This repeat infections cannot go on

and the tube needs to be resited once again but this cannot be done until i have

surgery to improve my swallowing and reflux. Catch 22 time again.

from the UK