Re: Follow Up Appointments after HM (with surgeon or GI Specialist and what testing)

[Guest guest]

I just had my HM in late August. I had to see the surgeon about 2 weeks later.

My next appointment is 3 months after that. I was kind of surprised there wasn't

an in-between appointment: how would I know what I could eat. So I just eat what

my body wants and so far so good. I would guess you'd want to see a

gastroenterologist regularly for endoscopy (in case you get cancer?) or if you

have any acid reflux.

By the way, my manometry results weren't very helpful. The first one indicated

scleroderma (which the rheumatologist later said no to) or a fungal infection.

So the surgeon, rightfully, was hesitant to operate until I had a second

manometry. My muscle was so tight the test couldn't be finished because the

probe would curl--it turns out the first test couldn't measure the lower

esophagus but instead of clearly indicating that it seemed to indicate there

were only problems higher up! Luckily, with the 2nd test, the report was more

clear so the surgeon operated, although he couldn't be 100% sure. The problem

is, there isn't always 100% clarity on which motility problem one has. In my

case it was clear that getting rid of that muscle would solve the biggest

problem and he accepted that. Interestingly, the gastroenterologist was positive

it was achalasia after my initial endoscopy.

I would say we need to be more patient with the doctors. There are so few of us

and the tests tend to indicate probabilities not certainties.

Ann

>

> I am wondering what the recommended follow-up testing is and how frequently

for post Heller Myotomy?

> Who do you visit, the GI specialist or Surgeon?

> Thanks.

> BC

>

[Guest guest]

As we all know, this condition is so rare few doctors can successfully diagnose

it or treat it, very frustrating. I am wondering what the long term care is

suggested after a HM and if these appointments are with GI specialists or

surgeons. I have read where several people have gone to Dr. Rice, a surgeon, and

they seem to do all follow ups with him. So who does everyone see and what

testing is done long term? Thanks.