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Hello again I am sorry if I am posting to much being I just started and this is

already my 2nd topic. I am from corona california and am 17 and extremely

underweight in the low 80s and I am scared cause I know this is not healthy my

concerns revolve around how to get help does the botox being done require a

certain weight? Or does the dillation? Or does the surgeries? I need to get the

swallowing problem resolved in order to eat or at least drink boost again and

hopefully gain the right weight for surgery. Please help me thank you so much

for all ur advice

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Hi Scarlett,

You can post as much as you need to. We have all been here at that terrifying

time of being unable to eat. Let us help you as others helped us.

I do not know about the weight restrictions specific to Botox or surgery but do

know that the general criteria for the Botox procedure is less stringent than

for surgery since Botox is favored when someone is too weak to have the surgery.

I have had achalasia specialists email me back when I write them directly-- and

perhaps one of them can advocate on your behalf with your doctors to get you in

to see the right person.

Getting the right help is the first step. Then things can happen quickly to help

you in the short and long term.

On Oct 10, 2011, at 9:53 PM, " ScarlettM " <scrlttmay@...> wrote:

> I am scared cause I know this is not healthy my concerns revolve around how to

get help does the botox being done require a certain weight? Or does the

dillation? Or does the surgeries?

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There are certain requirements for weight before you have the surgery. As you

can imagine the better your weight the less chance there is of any

compllications before, during and after surgery. Is there any chance that you

can have a PEG fitted to help you gain weight for surgery? See your doctor for a

chat about this.

________________________________

From: ScarlettM & lt;scrlttmay@... & gt;

achalasia

Sent: Tuesday, October 11, 2011 5:53 AM

Subject: weight for help

 

Hello again I am sorry if I am posting to much being I just started and this is

already my 2nd topic. I am from corona california and am 17 and extremely

underweight in the low 80s and I am scared cause I know this is not healthy my

concerns revolve around how to get help does the botox being done require a

certain weight? Or does the dillation? Or does the surgeries? I need to get the

swallowing problem resolved in order to eat or at least drink boost again and

hopefully gain the right weight for surgery. Please help me thank you so much

for all ur advice

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I don't know if the botox requires a certain weight. I had the botox

injection last year. It did help but it is temporary and can cause scar

tissue which might make surgery more difficult. If I were you I would print

out all the information you can about achalasia and present it to CPS. Find

a doctor who knows this condition and set up an appointment. Let CPS know

that you have scheduled an appointment with this specialist. They have to be

careful because if their decisions prevent you from getting proper treatment

due to their negligence then they can be sued. Have your Mom tell them that

their interfering in your getting proper treatment is resulting in damage to

your health and threaten a lawsuit if that will get them to listen.

S

-- weight for help

Hello again I am sorry if I am posting to much being I just started and this

is already my 2nd topic. I am from corona california and am 17 and extremely

underweight in the low 80s and I am scared cause I know this is not healthy

my concerns revolve around how to get help does the botox being done require

a certain weight? Or does the dillation? Or does the surgeries? I need to

get the swallowing problem resolved in order to eat or at least drink boost

again and hopefully gain the right weight for surgery. Please help me thank

you so much for all ur advice

------------------------------------

As a member of this group, you are invited to join the HealthShare Groups

community center located at http://healthsharegroups.org. The community

center brings together members from over 1200 disease specific support

groups for sharing of information and support.

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All the evidence suggests that botox is not very effective and its effect is

temporary. It certainly leaves a scar tissue which might make any future

intervention difficult. This method in current environment is limited to

patients who are either too old to have any other treatment or have too many

health problems which makes them a poor risk for either balloon dilatation or HM

Hope you get the help you need as soon as possible

anil

achalasia

From: ravenstorm2008@...

Date: Tue, 11 Oct 2011 18:26:18 -0400

Subject: Re: weight for help

I don't know if the botox requires a certain weight. I had the botox

injection last year. It did help but it is temporary and can cause scar

tissue which might make surgery more difficult. If I were you I would print

out all the information you can about achalasia and present it to CPS. Find

a doctor who knows this condition and set up an appointment. Let CPS know

that you have scheduled an appointment with this specialist. They have to be

careful because if their decisions prevent you from getting proper treatment

due to their negligence then they can be sued. Have your Mom tell them that

their interfering in your getting proper treatment is resulting in damage to

your health and threaten a lawsuit if that will get them to listen.

S

-- weight for help

Hello again I am sorry if I am posting to much being I just started and this

is already my 2nd topic. I am from corona california and am 17 and extremely

underweight in the low 80s and I am scared cause I know this is not healthy

my concerns revolve around how to get help does the botox being done require

a certain weight? Or does the dillation? Or does the surgeries? I need to

get the swallowing problem resolved in order to eat or at least drink boost

again and hopefully gain the right weight for surgery. Please help me thank

you so much for all ur advice

------------------------------------

As a member of this group, you are invited to join the HealthShare Groups

community center located at http://healthsharegroups.org. The community

center brings together members from over 1200 disease specific support

groups for sharing of information and support.

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