Re: Roux-En-Y operation refused

[Guest guest]

Hi , I'm am so sorry you are suffering like this. I wish there was

something I could say to help. God, I hated that tube and I barely had to use

it. Much love & (((((( hugs ))))) from Canada.

achalasia ; enquiries@...; notan_ostrich@...;

RefluxSurgerySupport ; timwilson12@...

From: christine.hulmes@...

Date: Thu, 6 Oct 2011 01:08:42 -0700

Subject: Roux-En-Y operation refused

Is there anyone out there who has had an Oesophagectomy for Achalasia and

had to go one and have the Roux-En-Y Diversion operation for reflux?????? In 2

previous consults with the same consultant i was led to belive that this

operation was an option for me. You see, after i had the Oesophagectomy back in

2004 and some dilatations withing the 1st year post op. i remained happy with my

swallowing. It is only in the recent 10 months or so that the swallowing

problems that you accociate with Achalasia and reflux returned. Back in March

this year i had a dilatation which ended with the balloon bursting because of a

stricture. In June this year i had a Barium Swallow done and it showed that the

bottom half on my stomach tube is now only 2/3rds of a cm wide. So the chats

about the Roux-En-y operation came about. For the last 2 yrs i have had the use

of a jejunal feeding tube to help maintain my weight and this is still working

great but for 1 thing. I keep

getting infections namely MRSA in the stoma and granuloma. Now i cannot put

silver nitrate on the granuloma as 90% of it is just under the skin next to the

stoma and cannot be burned. All i can treat it with is antibiotics and keep the

stoma as dry as possible by having to put dressings around the sroma 4 times a

day to soak up any exudate that leaks out. This repeat infections cannot go on

and the tube needs to be resited once again but this cannot be done until i have

surgery to improve my swallowing and reflux. Catch 22 time again.

from the UK

[Guest guest]

Unfortunately i have to use my jej feeding tube to help maintain my weight as i

eat less than a bird otherwise. but thanks for your love and hugs. I will deal

with this.

from the UK

________________________________

From: & lt;_40@... & gt;

& quot;achalasia & quot; & lt;achalasia & gt;

Sent: Thursday, October 6, 2011 4:29 PM

Subject: RE: Roux-En-Y operation refused

Hi , I & #39;m am so sorry you are suffering like this.  I wish there was

something I could say to help.  God, I hated that tube and I barely had to use

it.  Much love & amp; (((((( hugs ))))) from Canada.

achalasia ; enquiries@...; notan_ostrich@...;

RefluxSurgerySupport ; timwilson12@...

From: christine.hulmes@...

Date: Thu, 6 Oct 2011 01:08:42 -0700

Subject: Roux-En-Y operation refused

 

   

     

     

      Is there anyone out there who has had an Oesophagectomy for Achalasia and

had to go one and have the Roux-En-Y Diversion operation for reflux?????? In 2

previous consults with the same consultant i was led to belive that this

operation was an option for me. You see, after i had the Oesophagectomy back in

2004 and some dilatations withing the 1st year post op. i remained happy with my

swallowing. It is only in the recent 10 months or so that the swallowing

problems that you accociate with Achalasia and reflux returned. Back in March

this year i had a dilatation which ended with the balloon bursting because of a

stricture. In June this year i had a Barium Swallow done and it showed that the

bottom half on my stomach tube is now only 2/3rds of a cm wide. So the chats

about the Roux-En-y operation came about. For the last 2 yrs i have had the use

of a jejunal feeding tube to help maintain my weight and this is still working

great but for 1 thing. I

keep

getting infections namely MRSA in the stoma and granuloma. Now i cannot put

silver nitrate on the granuloma as 90% of it is just under the skin next to the

stoma and cannot be burned. All i can treat it with is antibiotics and keep the

stoma as dry as possible by having to put dressings around the sroma 4 times a

day to soak up any exudate that leaks out. This repeat infections cannot go on

and the tube needs to be resited once again but this cannot be done until i have

surgery to improve my swallowing and reflux. Catch 22 time again.

from the UK

[Guest guest]

I can empathise with your agony. I pray to GOD all works out well in the end

anil

achalasia

From: christine.hulmes@...

Date: Fri, 7 Oct 2011 01:07:28 -0700

Subject: Re: Roux-En-Y operation refused

Unfortunately i have to use my jej feeding tube to help maintain my weight

as i eat less than a bird otherwise. but thanks for your love and hugs. I will

deal with this.

from the UK

________________________________

From: & lt;_40@... & gt;

& quot;achalasia & quot; & lt;achalasia & gt;

Sent: Thursday, October 6, 2011 4:29 PM

Subject: RE: Roux-En-Y operation refused

Hi , I & #39;m am so sorry you are suffering like this. I wish there was

something I could say to help. God, I hated that tube and I barely had to use

it. Much love & amp; (((((( hugs ))))) from Canada.

achalasia ; enquiries@...; notan_ostrich@...;

RefluxSurgerySupport ; timwilson12@...

From: christine.hulmes@...

Date: Thu, 6 Oct 2011 01:08:42 -0700

Subject: Roux-En-Y operation refused

Is there anyone out there who has had an Oesophagectomy for Achalasia and

had to go one and have the Roux-En-Y Diversion operation for reflux?????? In 2

previous consults with the same consultant i was led to belive that this

operation was an option for me. You see, after i had the Oesophagectomy back in

2004 and some dilatations withing the 1st year post op. i remained happy with my

swallowing. It is only in the recent 10 months or so that the swallowing

problems that you accociate with Achalasia and reflux returned. Back in March

this year i had a dilatation which ended with the balloon bursting because of a

stricture. In June this year i had a Barium Swallow done and it showed that the

bottom half on my stomach tube is now only 2/3rds of a cm wide. So the chats

about the Roux-En-y operation came about. For the last 2 yrs i have had the use

of a jejunal feeding tube to help maintain my weight and this is still working

great but for 1 thing. I

keep

getting infections namely MRSA in the stoma and granuloma. Now i cannot put

silver nitrate on the granuloma as 90% of it is just under the skin next to the

stoma and cannot be burned. All i can treat it with is antibiotics and keep the

stoma as dry as possible by having to put dressings around the sroma 4 times a

day to soak up any exudate that leaks out. This repeat infections cannot go on

and the tube needs to be resited once again but this cannot be done until i have

surgery to improve my swallowing and reflux. Catch 22 time again.

from the UK

[Guest guest]

Thank you Anil. I will not give up without a fight of that you can be sure.

from the UK

________________________________

From: Anil Kumar Gupta & lt;anil_gupta70@... & gt;

achalasia

Sent: Friday, October 7, 2011 2:19 PM

Subject: RE: Roux-En-Y operation refused

I can empathise with your agony. I pray to GOD all works out well in the end

anil

achalasia

From: christine.hulmes@...

Date: Fri, 7 Oct 2011 01:07:28 -0700

Subject: Re: Roux-En-Y operation refused

 

   

     

     

      Unfortunately i have to use my jej feeding tube to help maintain my weight

as i eat less than a bird otherwise. but thanks for your love and hugs. I will

deal with this.

from the UK

________________________________

From: & amp;lt;_40@... & amp;gt;

& amp;quot;achalasia & amp;quot;

& amp;lt;achalasia & amp;gt;

Sent: Thursday, October 6, 2011 4:29 PM

Subject: RE: Roux-En-Y operation refused

Hi , I & #39;m am so sorry you are suffering like this.  I wish there was

something I could say to help.  God, I hated that tube and I barely had to use

it.  Much love & amp; (((((( hugs ))))) from Canada.

achalasia ; enquiries@...; notan_ostrich@...;

RefluxSurgerySupport ; timwilson12@...

From: christine.hulmes@...

Date: Thu, 6 Oct 2011 01:08:42 -0700

Subject: Roux-En-Y operation refused

 

   

     

     

      Is there anyone out there who has had an Oesophagectomy for Achalasia and

had to go one and have the Roux-En-Y Diversion operation for reflux?????? In 2

previous consults with the same consultant i was led to belive that this

operation was an option for me. You see, after i had the Oesophagectomy back in

2004 and some dilatations withing the 1st year post op. i remained happy with my

swallowing. It is only in the recent 10 months or so that the swallowing

problems that you accociate with Achalasia and reflux returned. Back in March

this year i had a dilatation which ended with the balloon bursting because of a

stricture. In June this year i had a Barium Swallow done and it showed that the

bottom half on my stomach tube is now only 2/3rds of a cm wide. So the chats

about the Roux-En-y operation came about. For the last 2 yrs i have had the use

of a jejunal feeding tube to help maintain my weight and this is still working

great but for 1 thing. I

keep

getting infections namely MRSA in the stoma and granuloma. Now i cannot put

silver nitrate on the granuloma as 90% of it is just under the skin next to the

stoma and cannot be burned. All i can treat it with is antibiotics and keep the

stoma as dry as possible by having to put dressings around the sroma 4 times a

day to soak up any exudate that leaks out. This repeat infections cannot go on

and the tube needs to be resited once again but this cannot be done until i have

surgery to improve my swallowing and reflux. Catch 22 time again.

from the UK