Guest guest Posted October 10, 2011 Report Share Posted October 10, 2011 Carolyn thank you for your support and the numbers but I feel I'm at the end of my rope I don't know know what else to do my dr. Who knows nothing about achalasia wants me in e.d treatment and even child protective services said we have to take her recomendation it hurts me cause I have never had that test done. Its all so confusing to me cause when we first didn't know what achalsia was they sent me to impatient and went weeks without food I was just vomiting and they were all confused why the sent me to phyce ward and not the hospital ward and then once on the hospital ward the found sma cause I had lower stomach pain and they said that's what it was but now still vomiting regergutation and I feel soo weak and they r sending me back to e.d treatment. Almsot threatening with c.p.s. without first getting the test done. I am so sad I feel like I'm being torn away from my home when I know I need surgery I can only hope they see that there which they will as I am throwing up so much amd can't. Stop it just spews out =( I am so sad > >> Hello there my name is Scarlett May Mendez. I have been having back pain and constant regurgitation. I am 5'6 and a half and my weight has plumbed to an unhealthy 87-90 pounds as it varies by day. I feel like i have entered the biggest battle of my life with the support of my mom and grandma we met with child protective service who because we went against medical advice of impatient eating disorder treatment we met with them and they are actually on are side. It is just humilaiting because my mother is the best mom better thn all the doctors as she has done so much reasearch as have i on achalsia as it is all my symptoms but the doctors in my little corona town never mentioned it or looked for it. They jumped straight to psychosomatic =[ i went to UCLA due to me having Superior Mesenteric Artery Syndrome brought on by rapid weight loss i did in my early teens going from 175 to 115 in a mere 7 months through what i foresaw as being a diet though it was > not healthy i knew i needed help and went to eating disorder treatment completed it but still was not gaining significant weight and then i had terrible chest pain and was rushed to e.r this is when i was sent to the hospital and diagnosed with S.M.A i was treated and my weight was still low but the s.m.a had opened up and i noticed though even it was open the regurgitation was getting far worse at first i would swallow it because if my s.m.a was fixed my doctors told me it was just acid reflux and as my weight continued to go down i was hell bent on just swallowing the regurgitation to keep some nutrients in this is what landed me in the E.R recently with a distended stomach and vomiting buckets and buckets of food from days before. > > > > > >> It was horrific and the doctors ran a test saw that my s.m.a was back. As treatment progressed through me gaining weight via intravenous nutrients i was still unable to swallow food and once the S.m.A got better and the vomiting and regurgitation continued is when they said it was my eating disorder coming back and all in my head now. My mother had to fight to get me sent from Loma Hospital to UCLA who then saw i had a hernia and since the I.V over 2 months and 5 days of being hospitalized stabilized me they ran one more test to figure out why i was vomiting but the barium couldn't even pass so the test became inclusive and the ct scan was done on only my lower stomach just proving that through the i.v my s.m.a had healed. I never had anything done to my esophagus or the esophagus manometry done which is shame because of the trouble the food got trying to go down to even reach the stomach before it comes shooting out. The doctors based on my > past then wanted me sent impatient for an eating disorder treatment because i was psycho symptomatic doing it to myself and if i go home because what i have isn't an eating disorder still vomiting im at risk and can sue but if in e.d clinic still throwing up and told it is in my head even though i know i have no control over this and my family knows this too. This hurt me so much because i could not wrap my thoughts around this whole time simply doing this to myself from the back pain they didn't look at twice to misdiagnosing me with acid reflux to even at Loma Hospital before they even saw my s.m.a saying it was eating disorder and made me have no t.v in the hospital or phone and journaling after every vomit trying to get me to write my thoughts about vomiting which was humiliating because i don't know why i would vomit but im ure they wanted me to write like i made myself through my mind vomit cause i dont know sad and this went on for the > first week in the hospital as they shoveled all foods down my throat, before i was transferred to the G.I team there and i did it all without complaint cause they are doctors after all and who am i but just a crazed eating disorder girl who has no control over her vomit. It actually wasnt until i regurgitated practically on the pediatric team that they sent me to g.i but by then my s.m.a got worse and then i had to transfer to ucla for help where they fixed the s.m.a and what they thought could have been a hernia but with the regurgitation persisting and that since they only see eating disorder written on my head they continue to push it down my throat. My mother and me saw past that and > went against there recommendation for impatient because we knew we needed this test because > > >> I cant keep food down besides like broth and grapes sometimes if im lucky > > >> my throat makes a noise like a croaking > > >> i have back pain constantly that my doctors had the nerve to say it was only because i was in the hospital for so long and had to lie in bed all day but now that i'm not in the hospital it is still there! > > >> diarrhea > > >> there is no way i could wrap my head around this just being an eating disorder > > >> then reading what you guys put i feel so not alone i relate with everything that it saddens me because none of my doctors listened and me and my mother are fighting to keep me out of impatient it is so embarrassing. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2011 Report Share Posted October 10, 2011 As u can see by post below I would love help. If I can get any more support or advice its come to the point where I don't mind if you callme and my mom about any information or what to do my number is 9512047054 thank u so much > > >> Hello there my name is Scarlett May Mendez. I have been having back pain and constant regurgitation. I am 5'6 and a half and my weight has plumbed to an unhealthy 87-90 pounds as it varies by day. I feel like i have entered the biggest battle of my life with the support of my mom and grandma we met with child protective service who because we went against medical advice of impatient eating disorder treatment we met with them and they are actually on are side. It is just humilaiting because my mother is the best mom better thn all the doctors as she has done so much reasearch as have i on achalsia as it is all my symptoms but the doctors in my little corona town never mentioned it or looked for it. They jumped straight to psychosomatic =[ i went to UCLA due to me having Superior Mesenteric Artery Syndrome brought on by rapid weight loss i did in my early teens going from 175 to 115 in a mere 7 months through what i foresaw as being a diet though it was > > not healthy i knew i needed help and went to eating disorder treatment completed it but still was not gaining significant weight and then i had terrible chest pain and was rushed to e.r this is when i was sent to the hospital and diagnosed with S.M.A i was treated and my weight was still low but the s.m.a had opened up and i noticed though even it was open the regurgitation was getting far worse at first i would swallow it because if my s.m.a was fixed my doctors told me it was just acid reflux and as my weight continued to go down i was hell bent on just swallowing the regurgitation to keep some nutrients in this is what landed me in the E.R recently with a distended stomach and vomiting buckets and buckets of food from days before. > > > > > > > > > >> It was horrific and the doctors ran a test saw that my s.m.a was back. As treatment progressed through me gaining weight via intravenous nutrients i was still unable to swallow food and once the S.m.A got better and the vomiting and regurgitation continued is when they said it was my eating disorder coming back and all in my head now. My mother had to fight to get me sent from Loma Hospital to UCLA who then saw i had a hernia and since the I.V over 2 months and 5 days of being hospitalized stabilized me they ran one more test to figure out why i was vomiting but the barium couldn't even pass so the test became inclusive and the ct scan was done on only my lower stomach just proving that through the i.v my s.m.a had healed. I never had anything done to my esophagus or the esophagus manometry done which is shame because of the trouble the food got trying to go down to even reach the stomach before it comes shooting out. The doctors based on my > > past then wanted me sent impatient for an eating disorder treatment because i was psycho symptomatic doing it to myself and if i go home because what i have isn't an eating disorder still vomiting im at risk and can sue but if in e.d clinic still throwing up and told it is in my head even though i know i have no control over this and my family knows this too. This hurt me so much because i could not wrap my thoughts around this whole time simply doing this to myself from the back pain they didn't look at twice to misdiagnosing me with acid reflux to even at Loma Hospital before they even saw my s.m.a saying it was eating disorder and made me have no t.v in the hospital or phone and journaling after every vomit trying to get me to write my thoughts about vomiting which was humiliating because i don't know why i would vomit but im ure they wanted me to write like i made myself through my mind vomit cause i dont know sad and this went on for the > > first week in the hospital as they shoveled all foods down my throat, before i was transferred to the G.I team there and i did it all without complaint cause they are doctors after all and who am i but just a crazed eating disorder girl who has no control over her vomit. It actually wasnt until i regurgitated practically on the pediatric team that they sent me to g.i but by then my s.m.a got worse and then i had to transfer to ucla for help where they fixed the s.m.a and what they thought could have been a hernia but with the regurgitation persisting and that since they only see eating disorder written on my head they continue to push it down my throat. My mother and me saw past that and > > went against there recommendation for impatient because we knew we needed this test because > > > > >> I cant keep food down besides like broth and grapes sometimes if im lucky > > > > >> my throat makes a noise like a croaking > > > > >> i have back pain constantly that my doctors had the nerve to say it was only because i was in the hospital for so long and had to lie in bed all day but now that i'm not in the hospital it is still there! > > > > >> diarrhea > > > > >> there is no way i could wrap my head around this just being an eating disorder > > > > >> then reading what you guys put i feel so not alone i relate with everything that it saddens me because none of my doctors listened and me and my mother are fighting to keep me out of impatient it is so embarrassing. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2011 Report Share Posted October 10, 2011 Scarlett- many of us would wrote your doctor, or answer your calls, or tell your CPS person about achalasia-- I know it is hard to know what to ask for. Let us help if you can. Cipresse in San , CA 660-255-5928 On Oct 10, 2011, at 9:56 PM, " ScarlettM " <scrlttmay@...> wrote: >> >> Carolyn thank you for your support and the numbers but I feel I'm at the end of my rope I don't know know what else to do my dr. Who knows nothing about achalasia wants me in e.d treatment and e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2011 Report Share Posted October 11, 2011 Scarlett You have 3 excellent GI departments in Los Angeles. UCLA, Cedars Sinai and USC. Check their information on the Achalasia group site. You are not far from them. I went to Cedars Sinai,. traveling from Santa Barbara (1 1/2 hours away) and they knew exactly what was wrong with me the minute I walked into the office. My GI in Santa Barbara wasted a year and a half before admitting he didn't know what was wrong with me or how to help me. You are so lucky to have the guidance and support of this group. I think the Dr. at UCLA is very responsive and will answer a phone call or email almost immediately and cares about the patient getting the proper and prompt care. Please follow through with this as soon as you can. We want to hear some good reports from you. It is a nasty condition that we have and can all help you through. in Santa Barbara 805.565.1332 In a message dated 10/10/2011 10:54:31 P.M. Pacific Daylight Time, steph@... writes: Scarlett- many of us would wrote your doctor, or answer your calls, or tell your CPS person about achalasia-- I know it is hard to know what to ask for. Let us help if you can. Cipresse in San , CA 660-255-5928 On Oct 10, 2011, at 9:56 PM, " ScarlettM " <_scrlttmay@..._ (mailto:scrlttmay@...) > wrote: >> >> Carolyn thank you for your support and the numbers but I feel I'm at the end of my rope I don't know know what else to do my dr. Who knows nothing about achalasia wants me in e.d treatment and e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2011 Report Share Posted October 11, 2011 When I was trying to figure out what was up with me, I wrote an email to the dr at ucla who runs the swallowing clinic (Dr Malisch ) and she wrote me back within a day. And called to talk to me. I found her email somewhere in this group-- and if you want it, then call or emai me directly and I will send it to you directly. And get your mom to call he office and figure out how to get an appointment there ASAP. The right doctors who know what this is can help you very quickly. Steph@.... 650-255-5928 > > >> > >> Carolyn thank you for your support and the numbers but I feel I'm at > the end of my rope I don't know know what else to do my dr. Who knows nothing > about achalasia wants me in e.d treatment and e > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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