Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 Dear Todd, **is an -ectomy the only answer for a 17 year old?** I feel your pain as a parent unable to do anything to help your child. I am encouraged that you did so much research. You mentioned Cleveland, but did not mention Chicago. Did you know one of the finest surgeons is located write in Chicago? He worked on my son, who was diagnosed at 14, and Dr. Patti did his Myotomy and Fundo, in 2005. He would be happy to talk with you.. see you... He is relatively close to you as compared to Toronto and Ohio! You can email him he will respond, or call.... He is a great man... If you have more questions I will be happy to talk to you. I would not hesitate to contact him immediately. Additionally, Another of the worlds finest is yet a little closer still. Dr Pellegrini!! He is one of Dr. Patti's close Associates and is located in Seattle Wash. at the University of Wa. You can contact him at the information below, too!!! If you would like to see some of their research publications just Google using Scholar. Blessings to you ... to your daughter. Carolyn mom to Cameron myo'd and fundo'd in 05 MARCO PATTI< mpatti@... Marco G. Patti, MD Professor of Surgery Director, Center for Esophageal Diseases University of Chicago Pritzker School of Medicine 5841 S. land Avenue, MC 5095, Room G 201 Chicago, IL 60637 Telephone: 773-702-4865 E-mail: mpatti@... Dr PellegriniEsophageal and Gastric Diseases Clinic at UWMC University of Washington Medical Center 1959 N.E. Pacific St. Seattle, WA 98195 (206) 598-4547 206 598 4477 E-mail: pellegri@... > > > Thank you all for your help. > I'll try to clarify a few points. The surgeon that wants to do the ectomy is not the same one that did the myotomy nor the dilations. The one that performed the myotomy was a pediatric specialist because at the time she was 16. Before the surgery we did fairly extensive research for this procedure including discussions with the Cleveland clinic in Cleveland and also in Toronto. We live in Alberta, Canada and found that one of the most respected centers with top rated doctors is the U of A Hospital in Edmonton. The surgeon wanting to do the procedure is Dr. Lees, he is confident that the myotomy was performed correctly but the patient's condition is degenerative, which may be the case. I too do not want to rush into this and that is why I posted the original post, but by looking at other A patients reports it looks like a reasonable option for the stage of her disease. Sometimes the attacks in her chest are severe enough that she just lays on her bedroom floor clutching her chest in pain and sobs and she is once again loosing weight. A definite concern is waiting too long and risking a ruptured esophagus and the increased risk of cancer. Again I appreciate everyones help, concerns and suggestions. The fact that others have gone through what she is experiencing can be so beneficial, I know she feels different because she has a disease that is so rare in young people. > > > Todd Quote Link to comment Share on other sites More sharing options...
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