Guest guest Posted June 18, 2011 Report Share Posted June 18, 2011 We went down to Chicago to meet with Dr. Patti on Monday. He looked at records that Childrens Hosp. sent and told me because of the rarity of achalashia not everyone knows how to do a proper dilatation. He gave me a name of a Doc at Temple University who is an expert if I chose to go that route. He also mentioned he could possibly repair the Heller or he would have to do a different surgery (cant remember procedure..stretching esphogus...). He said he would be willing to do the surgery if we chose to go that route. I have a few questions maybe you could help me with. 1-Is it possible to have achalasia and not lose weight? At the moment she is not losing weight although since her diet mainly consists of high carbs. She is vomiting and informed me tonight that it is getting worse. 2-She does not want another dilatation. She has had 3 and is convinced they do not work. She wants surgery so she can be normal like she was when the Heller was working the 9 mos. My thoughts are to go to Temple and get a proper dilatation to see if it works. How many surgeries can you get with this disease before you exhaust all your options? I guess I am thinking to get the surgery when there is no other alternative. My daughter doesnt always eat the correct things and doesnt always chew as she should as she is hungry. I talked to her about eating late but sometimes she sneaks food into her bedroom. All these I attribute to her age. What are your thoughts? Thanks Maureen Quote Link to comment Share on other sites More sharing options...
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