Taniea's proposed treatment plan

[Guest guest]

Hello,

I recently received a call from Dr. Altaf Taniea's GI and he said that his

treatment plan at the moment is that she have another dilation with Botox. After

which if she shows little to no improvement he would like to try it again and

then another motility and myotomy. He says that there has been research

concerning Botox and that it has been shown to help significantly. Now I have

been reading previous post and I know that for some there was relief but for

some there is concern about it. She already shows signs of being a keloid former

and it seems to run in my family.

So here are my concerns and questions.

Have any you heard of such research particularly directed towards children?

Although (especially since) you all are not doctors I do value your opinions do

you think that this a viable plan?

Other than voicing my concerns to the GI is there any other way I can ensure

that she is getting the best care possible? The GI is consulting with Dr.

Pelligrini and others and he is open to any suggestions that I offer. But travel

is not an option for us as we are Native and we are limited to where they are

willing to send her.

Thank you in advance

Shamira