- looking for specialist.

[Guest guest]

Hello, I am not sure what the EDG is, perhaps in my recesses I do, but today I

am brain dead. I am guessing it is either Botox or a stretch. Regardless,

whatever it relates to seems exorbitant by any means on a child. My son was 14

when we discovered he had Achalasia. You however are saying your child was

diagnosed at the age of 10???  

Often times a doctor who does not know what the " latest technologies or

discoveries " are will use the method most often recommended for a situation.

 Unfortunately, it sometimes causes more damage to the area.    This is the

biggest reason most in this group recommend starting  at the TOP of the

specialist pile and getting the BEST help, no matter what, right from the

start. 

From this point forward, it is well worth your time to pursue a specialist who

is WELL-VERSED in all aspects of achalasia.  The Heller has saved many lives...

by giving those affected the ability to get nutrition into their systems to

live.   When the LES closes, it effectively creates a STARVING to death

scenario. 

Below is a specialist in the Dallas area that is very well published. I could

not locate his email but the phone is there.  If you can locate the email, most

doctors respond immediately, especially if in the subj. line you have child

achalasia desperate.. Good luck .. if you need more help support or advice..

don't hesitate.. people will respond. Carolyn mom of Cameron fundo'd and myo'd

in 2005Dallas: Specialist, teaching professor, well documented and

published. Name: Stuart Jon Spechler, M.D.

Telephone: 214-374-7799

Endowed Title: Berta M. and Cecil O. Chair in Gastroenterology

Academic Title: Professor

Administrative Title: Chief of Gastroenterology, Veterans Affairs Medical

Center, and Vice Chief, Division of Digestive and Liver Diseases, UT

Southwestern

Primary Appointment: Internal Medicine - Digestive and Liver Diseases

School: Southwestern Medical School

Department Website: Internal Medicine - Digestive and Liver Diseases

Address: UT Southwestern Medical Center at Dallas

5323 Harry Hines Blvd, Dallas, Texas 75390-VAMC

Good morning how is everyone? I am fairly new to the support group, I joined

last month but I just now decided to narrow the group down to my area. I live in

the Dallas/Ft. Worth area and I am looking for a really good doctor for my son

who has achalasia. He is 15 years old and was diagnosed 5 years ago and so far

no real success that I am happy about. He has had 16 EDG's over the past 5 years

which means he has the procedure every 3-6 months as needed. The physician at

Children's in Dallas has hit a brick wall with treatment options due to his age

and he doesnt want to take any risk just to keep repeating the same thing over

and over. I have researched the Heller Myotomy, Does anyone think it would be

helpful for my son?