Guest guest Posted August 1, 2011 Report Share Posted August 1, 2011 My daughter has had this for the last 2 years and she is 14 now and after 2 balloon dilations we had the Heller Myotomy. I would find a specialist who deals with Achalasia. There is a list on the site and also if you go through past posts you will see which docs many are going to. Your at the right place to get the answers. But finding a qualified Doc who has extensive knowledge dealing with this is the key. My daughter has set up a Facebook page for young adults with achalasia so they can talk if he maybe interested and they dont feel so alone ,although it is new...called Achalasia Teens. From: Monicqua <monicqua2002@...> Subject: Specialist needed achalasia Date: Monday, August 1, 2011, 9:48 AM Â Good morning how is everyone? I am fairly new to the support group, I joined last month but I just now decided to narrow the group down to my area. I live in the Dallas/Ft. Worth area and I am looking for a really good doctor for my son who has achalasia. He is 15 years old and was diagnosed 5 years ago and so far no real success that I am happy about. He has had 16 EDG's over the past 5 years which means he has the procedure every 3-6 months as needed. The physician at Children's in Dallas has hit a brick wall with treatment options due to his age and he doesnt want to take any risk just to keep repeating the same thing over and over. I have researched the Heller Myotomy, Does anyone think it would be helpful for my son? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2011 Report Share Posted August 1, 2011 Thank you so much for the information. I will have my son check it out today, I know that will make him feel alot better to have someone else to talk to about this. Is the Heller Myotomy working for her? The doctor that my son is currently seeing says that the growth of the teen is a big factor. From: Mike Young <mmyoung5758@...> achalasia Sent: Monday, August 1, 2011 10:24 AM Subject: Re: Specialist needed  My daughter has had this for the last 2 years and she is 14 now and after 2 balloon dilations we had the Heller Myotomy. I would find a specialist who deals with Achalasia. There is a list on the site and also if you go through past posts you will see which docs many are going to. Your at the right place to get the answers. But finding a qualified Doc who has extensive knowledge dealing with this is the key. My daughter has set up a Facebook page for young adults with achalasia so they can talk if he maybe interested and they dont feel so alone ,although it is new...called Achalasia Teens. From: Monicqua <monicqua2002@...> Subject: Specialist needed achalasia Date: Monday, August 1, 2011, 9:48 AM  Good morning how is everyone? I am fairly new to the support group, I joined last month but I just now decided to narrow the group down to my area. I live in the Dallas/Ft. Worth area and I am looking for a really good doctor for my son who has achalasia. He is 15 years old and was diagnosed 5 years ago and so far no real success that I am happy about. He has had 16 EDG's over the past 5 years which means he has the procedure every 3-6 months as needed. The physician at Children's in Dallas has hit a brick wall with treatment options due to his age and he doesnt want to take any risk just to keep repeating the same thing over and over. I have researched the Heller Myotomy, Does anyone think it would be helpful for my son? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2011 Report Share Posted August 1, 2011 It worked great for 9 mos. but we were at Milwaukee Childrens Hospital which I was so grateful for them diagnosing it but....they are not specialists in Achalasia. I had not found this site which has helped tremendously after the Heller. I consulted with another surgeon in Chicago who has been highly recommended and am considering whether to go to for a possible fix. Alot of things to think about. But I am after the fact so dealing with different issues than you. Have it done right...with someone who knows. There are a few of us with younger ones on here that can help. My daughter has lost 50 lbs and was totally dehydrated and we spent the last 2 months in ER's so it was a rush to deal with it.....I dont blame them for it failing...I blame myself for not being more informed and finding this great venue. From: Monicqua <monicqua2002@...> Subject: Specialist needed achalasia Date: Monday, August 1, 2011, 9:48 AM Â Good morning how is everyone? I am fairly new to the support group, I joined last month but I just now decided to narrow the group down to my area. I live in the Dallas/Ft. Worth area and I am looking for a really good doctor for my son who has achalasia. He is 15 years old and was diagnosed 5 years ago and so far no real success that I am happy about. He has had 16 EDG's over the past 5 years which means he has the procedure every 3-6 months as needed. The physician at Children's in Dallas has hit a brick wall with treatment options due to his age and he doesnt want to take any risk just to keep repeating the same thing over and over. I have researched the Heller Myotomy, Does anyone think it would be helpful for my son? Quote Link to comment Share on other sites More sharing options...
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