Re: Priti -- school

[Guest guest]

To:  Priti

 

I am not sure where you are located, but I teach high school in Texas, and you

definitely need to let the school nurses know.  It may or may not qualify as a

504.  A lot of schools send a confidential statement to the teachers which they

have to sign and are accountable for keeping confidential and are required to

follow the plan to keep the student healthy.  Only has that become a 504 in my

district when a lot of days have been missed and the student has to have

accommodations to be successful in their educational goals due to health

reasons.  The school system does not unnecessarily want to " label " (not the

right term) the student.  Talk to your counselors at school, they are the ones

that would start the 504, also based on the recommendation of the nurse and

others " if the condition is academically disabling " . 

 

 ****  In my district **--The student cannot carry any kind of medication not

even a Tylenol without the consent of a doctor and then the medication is left

with the school nurse or the student can be removed from school and placed in

an alternative school with a high level of guard as this then becomes a drug

issue and they cannot return to the campus for any reason until the appropriate

time placed in the alternative school is up, which can be as much as 3 months to

1 year to never returning to the home campus.  Schools do not play around with

any kind of medication issue; therefore, please, please contact the nurse and

find out the necessary requirements for your school. **** 

 

You do not want that to happen to your child, the stress from that would only

make the achalasia worse.  The world is not kind to a lot of us that have to

deal with these issues, but the more we know the easier it is for us to deal

with the world and the issues around us.  

  

Sharon

From: Preeti Mahajan <priti19.mahajan@...>

Subject: Re: Priti

" achalasia " <achalasia >

Date: Wednesday, August 3, 2011, 1:43 PM

 

Hi ,

Thank you for your suggestion. I absolutely agree with you. We will be speaking

with the school nurse so she is aware of it.

Thanks,

Priti

________________________________

From: zlmmom1 <mcnairmichelle@...>

achalasia

Sent: Sunday, July 31, 2011 9:28 AM

Subject: Priti

 

have you spoken with your sons school yet and set up his medical 504

designation? although the doctor tells you that his spasms will subside and that

gaviscon may work - what too many of us here know is that, when discussing

spasms - there is never anyway to be sure what's going to happen.

Even if finds that the gaviscon works for him, most schools do not allow

medications of ANY kind to be carried around without doctors notes. The last

thing you want for him is to have a raging spasm and not have anything with him

to help. At the very least, you and need to speak with the school nurse -

he is not going to want to have to explain what's happening during a spasm.

Glad to hear he's recoving well.

~ in NC

[Guest guest]

Hello Sharon. My son attends Bowie High School in Arlington Texas and you

would not believe the trouble that school has given me cause of my sons

condition. One day he was suppose to do a project in front of the class and he

told the teacher that he really didnt feel up to it because he had a sore

throat from the EDG the day before. She had him to call me to verify he was

telling the truth, crazy!!! I said why would you lie about something that

serious she said  " ok " and hung up. I will have to talk to the school nurse

this year about what to do, i did not want a repeat of last year. Thank you for

the information    

From: Sharon Cline <sharon_cline@...>

achalasia

Sent: Wednesday, August 3, 2011 3:18 PM

Subject: Re: Priti -- school

 

To:  Priti

 

I am not sure where you are located, but I teach high school in Texas, and you

definitely need to let the school nurses know.  It may or may not qualify as a

504.  A lot of schools send a confidential statement to the teachers which they

have to sign and are accountable for keeping confidential and are required to

follow the plan to keep the student healthy.  Only has that become a 504 in my

district when a lot of days have been missed and the student has to have

accommodations to be successful in their educational goals due to health

reasons.  The school system does not unnecessarily want to " label " (not the

right term) the student.  Talk to your counselors at school, they are the ones

that would start the 504, also based on the recommendation of the nurse and

others " if the condition is academically disabling " . 

 

 ****  In my district **--The student cannot carry any kind of medication not

even a Tylenol without the consent of a doctor and then the medication is left

with the school nurse or the student can be removed from school and placed in

an alternative school with a high level of guard as this then becomes a drug

issue and they cannot return to the campus for any reason until the appropriate

time placed in the alternative school is up, which can be as much as 3 months to

1 year to never returning to the home campus.  Schools do not play around with

any kind of medication issue; therefore, please, please contact the nurse and

find out the necessary requirements for your school. **** 

 

You do not want that to happen to your child, the stress from that would only

make the achalasia worse.  The world is not kind to a lot of us that have to

deal with these issues, but the more we know the easier it is for us to deal

with the world and the issues around us.  

  

Sharon

From: Preeti Mahajan <priti19.mahajan@...>

Subject: Re: Priti

" achalasia " <achalasia >

Date: Wednesday, August 3, 2011, 1:43 PM

 

Hi ,

Thank you for your suggestion. I absolutely agree with you. We will be speaking

with the school nurse so she is aware of it.

Thanks,

Priti

________________________________

From: zlmmom1 <mcnairmichelle@...>

achalasia

Sent: Sunday, July 31, 2011 9:28 AM

Subject: Priti

 

have you spoken with your sons school yet and set up his medical 504

designation? although the doctor tells you that his spasms will subside and that

gaviscon may work - what too many of us here know is that, when discussing

spasms - there is never anyway to be sure what's going to happen.

Even if finds that the gaviscon works for him, most schools do not allow

medications of ANY kind to be carried around without doctors notes. The last

thing you want for him is to have a raging spasm and not have anything with him

to help. At the very least, you and need to speak with the school nurse -

he is not going to want to have to explain what's happening during a spasm.

Glad to hear he's recoving well.

~ in NC

[Guest guest]

Your welcome, I also ran across something similar before I began at this

school.  One of my boys has IBS and had gone through extensive testing; and a

normal doctor excuse was not good enough for the school attendance clerk, they

had to have a detailed letter.   I got one and after that he had no problems

and medications were left at the nurse; it is always best to have an extra

supply so that your child does not have to go pick the medication up everyday

and bring it back home or as most schools require, ***the parent has to drop the

medication off and pick it up (not the student)***.  We do what we have to do

to make our children be more successful and have an easy day.

 

Any knowledge we can have before hand is always valuable.

 

Sharon Cline

Pasadena Independent School District

South Houston High School

Family and Consumer Science Teacher

Nutrition and Wellness

Fashion Design

Interior Design

scline@...

 

From: Preeti Mahajan <priti19.mahajan@...>

Subject: Re: Priti

" achalasia " <achalasia >

Date: Wednesday, August 3, 2011, 1:43 PM

 

Hi ,

Thank you for your suggestion. I absolutely agree with you. We will be speaking

with the school nurse so she is aware of it.

Thanks,

Priti

________________________________

From: zlmmom1 <mcnairmichelle@...>

achalasia

Sent: Sunday, July 31, 2011 9:28 AM

Subject: Priti

 

have you spoken with your sons school yet and set up his medical 504

designation? although the doctor tells you that his spasms will subside and that

gaviscon may work - what too many of us here know is that, when discussing

spasms - there is never anyway to be sure what's going to happen.

Even if finds that the gaviscon works for him, most schools do not allow

medications of ANY kind to be carried around without doctors notes. The last

thing you want for him is to have a raging spasm and not have anything with him

to help. At the very least, you and need to speak with the school nurse -

he is not going to want to have to explain what's happening during a spasm.

Glad to hear he's recoving well.

~ in NC

[Guest guest]

When Leigh was in middle school i pulled her our in 7th grade and placed her on

home hospital school. She was so sick by then and so thin other kids were

teasing her about planning her funeral. ( adolescent girls are horrible) she

couldn't keep up with the classroom work at that point either. I pulled her from

high school when her illness kept putting her further and further behind.

Teachers and administrators did not understand what she was going through, since

as we all know, they don't look broken. She went through high school on

independent study, and graduated in July, only one month late. She hasn't

enrolled in junior college yet since we are waiting on a second myotomy. Dealing

with the school system when your kid has something they never heard of is

difficult and frustrating. Check out independent study programs within your

school district. It saved us.

Sent from my iPhone

[Guest guest]

That is definitely true, there are independent study programs that work.   We

have a home bound program where the campus teacher will send assignments home

and a teacher designated as home bound teacher will go by the home according to

whatever guidelines that have been set and check in (reporting this as

attendance back to the home campus) and do some help, but, most of the work is

dependent on the student doing this by themself kind of like a(n) independent

study program.  Usually this occurs when the student has to be out for more

than 2 weeks.  The completed work is returned by the home bound teacher to be

graded by the campus teacher.   This also works well, and when the student is

well enough to return to normal classes on campus, they may have a small amount

of catching up to do as some topics or assignments cannot be completed at home

and they will then stay for tutoring to gain that extra help which can usually

be completed in a

couple of days.   We also send work home when a student's parents request it

when they know there child will be out less than 2 weeks.  There is no home

bound teacher in that case and the student will be counted absent and will have

to make up any and all assignments, but tutorials are still offered.  

 

Most schools now, will not question the reason you child will be out of school

as long as you have a letter from a doctor giving them a medical reason;

however, it may need to be fairly specific.

 

The best thing to do is to talk to the school counselors and find out what your

school or school districts policies are or what type of programs they have

in place.  Also, check out the district's website, most policies are posted on

line.   They may have more than you know.  With fall classes starting soon,

you need to get this done as soon as you can so your child will not miss

anything and get behind.  No one likes to see a student fail when there are

ways to keep that from happening. 

 

Good Luck

 

Sharon Cline

From: stovall.h@... <stovall.h@...>

Subject: Re: Priti -- school

" achalasia " <achalasia >

Date: Wednesday, August 3, 2011, 5:13 PM

 

When Leigh was in middle school i pulled her out in 7th grade and placed her on

home hospital school. She was so sick by then and so thin other kids were

teasing her about planning her funeral. ( adolescent girls are horrible) she

couldn't keep up with the classroom work at that point either. I pulled her from

high school when her illness kept putting her further and further behind.

Teachers and administrators did not understand what she was going through, since

as we all know, they don't look broken. She went through high school on

independent study, and graduated in July, only one month late. She hasn't

enrolled in junior college yet since we are waiting on a second myotomy. Dealing

with the school system when your kid has something they never heard of is

difficult and frustrating. Check out independent study programs within your

school district. It saved us.

Sent from my iPhone

[Guest guest]

When I was going through this I asked numerous times for homework and only 2

teachers sent it otherwise they were aware of what was going on with my daughter

(middle school) and never made her make up any of the homework she missed. Now I

dont know if they didnt send all of it because of the lack of drive of teachers

or just that school systems just do not fail kids anymore...thats a whole new

topic by itself. Either way....she did what was given to her and they were aware

of what was going on.Maureen

From: stovall.h@... <stovall.h@...>

Subject: Re: Priti -- school

" achalasia " <achalasia >

Date: Wednesday, August 3, 2011, 5:13 PM

 

When Leigh was in middle school i pulled her out in 7th grade and placed her on

home hospital school. She was so sick by then and so thin other kids were

teasing her about planning her funeral. ( adolescent girls are horrible) she

couldn't keep up with the classroom work at that point either. I pulled her from

high school when her illness kept putting her further and further behind.

Teachers and administrators did not understand what she was going through, since

as we all know, they don't look broken. She went through high school on

independent study, and graduated in July, only one month late. She hasn't

enrolled in junior college yet since we are waiting on a second myotomy. Dealing

with the school system when your kid has something they never heard of is

difficult and frustrating. Check out independent study programs within your

school district. It saved us.

Sent from my iPhone

[Guest guest]

According to what we have been told, my state rules have changed recently, where

we at one time had to give the student a “50†when they actually made a

lower grade we can now give the student the grade they make even if it is a

“0â€.  Each district can also set rules for the minimum grade, but I believe

that if the teacher does not send the work, then they cannot fail the student as

it is not the students fault.   The teacher is held accountable for the

grade.   As long as you keep the school and teacher in the loop, you should

not have any problems.

 

The 504 that was referred to in earlier correspondence is most often a(n)

intervention plan that is put in place for the student to have accommodations,

not necessarily special education, but due to some other reason.  The work can

be shortened (accommodated in some way) where the student can still be

successful and still pass; it is just an assurance in some cases that students

that have other issues can still get an education.  Sometimes when that plan is

put in place, it is hard to get it removed and it will remain on the students’

records for life.  However; sometimes that is not a bad thing, as it may be

needed.  Only you, your school counselors and teachers will know for sure. 

You need to stay involved in your child’s educational process and make sure

they get what they need.   As a teacher, I love to have my students parents

involved and they are welcome in my classes at any time.  Being high school,

the students do not want parental

involvement, but be persistent it can be done without interfering with the

child’s social pressures from others.

 

Every school district and state are as different as the diverse effects that

achalasia has in our lives. 

 

Sharon

From: stovall.h@... <stovall.h@...>

Subject: Re: Priti -- school

" achalasia " <achalasia >

Date: Wednesday, August 3, 2011, 5:13 PM

 

When Leigh was in middle school i pulled her out in 7th grade and placed her on

home hospital school. She was so sick by then and so thin other kids were

teasing her about planning her funeral. ( adolescent girls are horrible) she

couldn't keep up with the classroom work at that point either. I pulled her from

high school when her illness kept putting her further and further behind.

Teachers and administrators did not understand what she was going through, since

as we all know, they don't look broken. She went through high school on

independent study, and graduated in July, only one month late. She hasn't

enrolled in junior college yet since we are waiting on a second myotomy. Dealing

with the school system when your kid has something they never heard of is

difficult and frustrating. Check out independent study programs within your

school district. It saved us.

Sent from my iPhone