Guest guest Posted July 18, 2011 Report Share Posted July 18, 2011 you are going to want to get with your school nurse and have them place with a medical 504 designation - it's a federal law outlining his unique medical needs and the school and faculty MUST follow it. You can get him permission to carry a water bottle, tums (on his person, NOT with the nurse as it then takes too long to get them) crackers, whatever you find works for him. Even though this spasm is over, that's not to say (sadly) that he won't ever have them again. You are going to have to strongly advocate for him, especially if he's at a school where they are very firm about not eating in between classes and no drinks and that kind of thing. You may want to start that process soon as it may take some time to get all the info you're going to need from his doctor and all that. good luck glad to hear he's enjoying eating!! WOOHOO ~ in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2011 Report Share Posted August 3, 2011 Hi , Thank you for your suggestion. I absolutely agree with you. We will be speaking with the school nurse so she is aware of it. Thanks, Priti ________________________________ From: zlmmom1 <mcnairmichelle@...> achalasia Sent: Sunday, July 31, 2011 9:28 AM Subject: Priti  have you spoken with your sons school yet and set up his medical 504 designation? although the doctor tells you that his spasms will subside and that gaviscon may work - what too many of us here know is that, when discussing spasms - there is never anyway to be sure what's going to happen. Even if finds that the gaviscon works for him, most schools do not allow medications of ANY kind to be carried around without doctors notes. The last thing you want for him is to have a raging spasm and not have anything with him to help. At the very least, you and need to speak with the school nurse - he is not going to want to have to explain what's happening during a spasm. Glad to hear he's recoving well. ~ in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2011 Report Share Posted August 3, 2011 The school nurse at my daughters school was such a great help. And she actually had some knowledge of achalasia. From: Preeti Mahajan <priti19.mahajan@...> Subject: Re: Priti " achalasia " <achalasia > Date: Wednesday, August 3, 2011, 1:43 PM  Hi , Thank you for your suggestion. I absolutely agree with you. We will be speaking with the school nurse so she is aware of it. Thanks, Priti ________________________________ From: zlmmom1 <mcnairmichelle@...> achalasia Sent: Sunday, July 31, 2011 9:28 AM Subject: Priti  have you spoken with your sons school yet and set up his medical 504 designation? although the doctor tells you that his spasms will subside and that gaviscon may work - what too many of us here know is that, when discussing spasms - there is never anyway to be sure what's going to happen. Even if finds that the gaviscon works for him, most schools do not allow medications of ANY kind to be carried around without doctors notes. The last thing you want for him is to have a raging spasm and not have anything with him to help. At the very least, you and need to speak with the school nurse - he is not going to want to have to explain what's happening during a spasm. Glad to hear he's recoving well. ~ in NC Quote Link to comment Share on other sites More sharing options...
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