Re: just recently diagnosed..

[Guest guest]

Before I had a myotomy, my GI doc did a dilation and botox injections. It lasted

about 3 months.  After the surgery, Dr. Rice from the Cleveland Clinic told me

that he noticed that the botox injections were done in a place on the esophagus

that would not have provided any help. Naturaly, he was of the opinion that a

lowely GI physician was incompetent to treat Achalasia.

Santa Fe

From: katief0811 <katief0811@...>

achalasia

Sent: Saturday, July 23, 2011 9:07 AM

Subject: just recently diagnosed..

 

Hello, my name is katie and i had pneumonia alot growing up and i was always

cold but was never considered anemic. I am 23 years old and was just diagnosed

last week with achalasia. I went to a GI doctor and he said that he will perform

the botox injections. He said that if it doesn't work at all or doesn't have a

long term effect then i should have the surgery done. Has anyone gone through

this because i'm nervous and don't know what to expect.

[Guest guest]

Hi ,

I would say go for a 2nd opinion on the treatment.  Which State are you from?

Many of us have had good experience with expert GI and surgeon's for achlasia

specifically  and we will be happy to pass that infomation to you if we know

which state will be closer to you.

You are lucky as you have found this group where people are dealing with the

same problems and have tons of experience to share.  Otherwise many do not know

where to start.

Wish you the best, you will do fine.

Thanks,

Priti

From: katief0811 <katief0811@...>

Subject: just recently diagnosed..

achalasia

Date: Saturday, July 23, 2011, 8:07 AM

 

Hello, my name is katie and i had pneumonia alot growing up and i was

always cold but was never considered anemic. I am 23 years old and was just

diagnosed last week with achalasia. I went to a GI doctor and he said that he

will perform the botox injections. He said that if it doesn't work at all or

doesn't have a long term effect then i should have the surgery done. Has anyone

gone through this because i'm nervous and don't know what to expect.

[Guest guest]

Hi - this group is a wealth of info. Definite find a GI and surgeon who are

experts at Achalasia. And some surgeons fonts want you to do Botox or dilation

first because the scarring can complicate the surgery. Surgery seems to be the

preferred treatment for young otherwise healthy patients.

Yes this is very scary and you have some important decisions to make. But with

proper treatment, life can be pretty normal again.

(2.5 weeks post surgery, in san jose CA)

On Jul 23, 2011, at 12:24 PM, Preeti Mahajan <priti19.mahajan@...> wrote:

> Hi ,

>

> I would say go for a 2nd opinion on the treatment. Which State are you from?

> Many of us have had good experience with expert GI and surgeon's for achlasia

specifically and we will be happy to pass that infomation to you if we know

which state will be closer to you.

>

> You are lucky as you have found this group where people are dealing with the

same problems and have tons of experience to share. Otherwise many do not know

where to start.

>

> Wish you the best, you will do fine.

>

> Thanks,

> Priti

>

>

>

> From: katief0811 <katief0811@...>

> Subject: just recently diagnosed..

> achalasia

> Date: Saturday, July 23, 2011, 8:07 AM

>

>

>

> Hello, my name is katie and i had pneumonia alot growing up and i was always

cold but was never considered anemic. I am 23 years old and was just diagnosed

last week with achalasia. I went to a GI doctor and he said that he will perform

the botox injections. He said that if it doesn't work at all or doesn't have a

long term effect then i should have the surgery done. Has anyone gone through

this because i'm nervous and don't know what to expect.

>

>

[Guest guest]

Hi ! I had a botox injection 1 month before having a myotomy done. I was

hospitalized for pneumonia and too weak to have surgery done, so my gi doctor

suggested that I do the botox to get some food done and strengthen myself for

the surgery! I wasn't able to eat any solid food but it help with liquids. I

was able to have ensures to drink. After a month or so I had the myotomy done.

Please find someone who is familiar with this disease as their are many who are

not and u deserve the best treatment for yourself!

California

Sent from my iPhone

[Guest guest]

I had the botox injection done. It wasn't that bad. I know that most don't

recommend botox as it can cause scar tissue which may or may not affect

surgery later on. The botox injections are only going to last maybe a year.

For some they don't work at all. I had mine last October and it is starting

to wear off. Repeated injections become less and less effective. I'm sure

that there are many on the group who can give you good information regarding

achalasia.

S

-- just recently diagnosed..

Hello, my name is katie and i had pneumonia alot growing up and i was always

cold but was never considered anemic. I am 23 years old and was just

diagnosed last week with achalasia. I went to a GI doctor and he said that

he will perform the botox injections. He said that if it doesn't work at all

or doesn't have a long term effect then i should have the surgery done. Has

anyone gone through this because i'm nervous and don't know what to expect.

------------------------------------

[Guest guest]

when i had gotten an endoscopy my GI doc stretched my esophagus and it did

nothing for me. I just keep reading that the botox helps different people for

certain amounts of time. Ive been so desperate to eat that i just want to try

anything.

On Sat Jul 23rd, 2011 1:18 PM EDT Ottenheimer wrote:

>Before I had a myotomy, my GI doc did a dilation and botox injections. It

lasted about 3 months.  After the surgery, Dr. Rice from the Cleveland Clinic

told me that he noticed that the botox injections were done in a place on the

esophagus that would not have provided any help. Naturaly, he was of the opinion

that a lowely GI physician was incompetent to treat Achalasia.

>

>Santa Fe

>

>From: katief0811 <katief0811@...>

>achalasia

>Sent: Saturday, July 23, 2011 9:07 AM

>Subject: just recently diagnosed..

>

>

> 

>Hello, my name is katie and i had pneumonia alot growing up and i was always

cold but was never considered anemic. I am 23 years old and was just diagnosed

last week with achalasia. I went to a GI doctor and he said that he will perform

the botox injections. He said that if it doesn't work at all or doesn't have a

long term effect then i should have the surgery done. Has anyone gone through

this because i'm nervous and don't know what to expect.

>

>

>

>

>

[Guest guest]

Thank you. I do hope that it helps me for a long time

On Sat Jul 23rd, 2011 10:15 PM EDT s wrote:

>I had the botox injection done. It wasn't that bad. I know that most don't

>recommend botox as it can cause scar tissue which may or may not affect

>surgery later on. The botox injections are only going to last maybe a year.

>For some they don't work at all. I had mine last October and it is starting

>to wear off. Repeated injections become less and less effective. I'm sure

>that there are many on the group who can give you good information regarding

>achalasia.

>

> S

>

>

>

>

>-- just recently diagnosed..

>

>Hello, my name is katie and i had pneumonia alot growing up and i was always

>cold but was never considered anemic. I am 23 years old and was just

>diagnosed last week with achalasia. I went to a GI doctor and he said that

>he will perform the botox injections. He said that if it doesn't work at all

>or doesn't have a long term effect then i should have the surgery done. Has

>anyone gone through this because i'm nervous and don't know what to expect.

>

>

>

>------------------------------------

>

>

[Guest guest]

hi, i do not recall if i had ever wrote u back because i check my emails on a

tiny little phone and i read so many different conversations from the group. I

live in philadelphia pennsylvania.. ive heard that there are surgeons in

pittsburg which is only 5 hours away. I am nervous about having surgery because

i heard that i won't be able to eat for about a month even though i can't eat

now im sure another month won't hurt. Also I am starting up school again at the

end of august so I am afraid that it will interfere with that.

[Guest guest]

Not true about no food for month.

Broth and liquids, maybe jello day2.

Soft foods within days.

Search " fundoplication diet " for more info.

There are good docs here in phily.

Sent from Smrtphone That Lacks Spellchecker

[Guest guest]

I was out of the hospital 16 hours after I checked in and I was eating a taco in

48 hours.

Sent from my iPhone

On Jul 28, 2011, at 1:56 PM, Hoffman <rp518dan@...> wrote:

> Not true about no food for month.

> Broth and liquids, maybe jello day2.

> Soft foods within days.

> Search " fundoplication diet " for more info.

>

> There are good docs here in phily.

>

> Sent from Smrtphone That Lacks Spellchecker

>

>

[Guest guest]

It is true what said, I was able to begin eating the very next day, and

actually it was solid food.

[Guest guest]

Vinnie wrote:

>

> I was out of the hospital 16 hours after I checked in and I was eating

> a taco in 48 hours.

>

I am glad you did well after surgery. People may want to wait longer

though for hard shell tacos. Some of us were told not to eat anything

like corn chips with sharp edges and points because there is a small

possibility that before the incisions of the myotomy has toughened up a

bit the thin layer left could be perforated by such things. Hard candy

could also break and form sharp edges.

notan

[Guest guest]

What ever you choose, follow your doctor's orders.

> Not true about no food for month.

> Broth and liquids, maybe jello day2.

> Soft foods within days.

> Search " fundoplication diet " for more info.

>

> There are good docs here in phily.

>

> Sent from Smrtphone That Lacks Spellchecker

>

>

[Guest guest]

I was out of the hospital about 36 hours after surgery and was eating soft foods

the next day (mashed potatoes, soft pasta, ground meat, milk shakes - it's not

all bad).