Guest guest Posted July 25, 2011 Report Share Posted July 25, 2011 Hi Kim, I have never posted on here before. However, I was diagnosed with achalasia in 2000. After having three dilations that did not work and the third one knicking my esophagus in Fairfax, VA, I ended up at the University of land in Baltimore.in 2001. I had previously worked there in the late 1980's in hospital administration (I am not a nurse). Long story short, my primary problem with achalasia has always been chest spasms/pain. Guess that is why it took more than five years before I received the right diagnosis. The swallowing became a later problem and it was not until I began vomiting blood that they figured out it was not my gallbladder. I did not know much about achalasia and it seemed that most of the physicians that I was dealing with knew a little about it but not a lot. I decided on having a Heller myotomy thinking that it would cure the chest spasms - not true in my case - and make swallowing much easier - very true in my case. At the time, I spoke with some of my former friends at UMD and they recommended Eugene Cho, M.D. He did an excellent job for me and I had a Heller, Toupet, and pylorplasty done at one time. Dr. Cho has moved west to Takoma, WA. I do think that Park, M.D. came after Dr. Cho left. I began having some problems this past year and called to see if I could see Dr. Park for a follow-up. The staff told me that he had left to go to Nova Scotia and they were devastated by his departure. I saw a GI doc by the name of Fantry (not a surgeon) who was also saddened by Dr. Park's decision to go to Canada. Although I have no personal knowledge of Dr. Park's work, I can tell you people spoke highly of him. I have no idea how many myotomies he has performed, but I do have phone numbers of where he worked in Baltimore and maybe they could verify number he performed there. After finding this resourceful website, I made an appointment with Dr. Richter in Philadelphia who will be leaving Temple in August to go to Tampa (I believe Univ. of South Florida GI Dept). He saw me at end of June and I can tell you that I received good news and some not so good news. I can tell you that he said whoever did my surgery did a great job and it was done over 10 years ago, but that the chest spasms are the one thing that doctors have difficulty knowing what causes them and what stops them. Different things work for different people. God bless you and I wish you the very best! Beth Cumby Dr Park previously of Uofland? Does anyone have any information about Dr Park? I saw that Carolyn had mentioned him in a post a number of years ago, but only referenced that he spoke at a conference. I spoke with his admin assistant this morning about getting in to see him as he is close enough to me (and now in Canada) and I'd like to see if anyone had any personal experience with him. Thanks, kim in canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2011 Report Share Posted July 25, 2011 Thank you for the quick reply Beth. Â You sound quite similar to me actually, as my biggest issue since my myotomy in 1998 has always been debilitating chest pains. Â I'm so glad that everyone that you spoke to speaks so highly of him. Â I'd love to find out how many he performed there, but I don't think that I'm going to get that information from his assistant right now, sadly. Â I really got a good feeling from everything that I read about him, but his assistant just started working for him and basically just said that I should request that my family physician sends some of my information his way. Â I do hope that he contacts me and that I get to meet with him. I hope that the good news you received was really awesome, and the bad news is something that can be solved/fixed without much discomfort for you. Â Maybe someday the doctors will find out what causes the pain and we'll have a fix for it. kim in canada ________________________________ From: Beth Cumby <btc.mom@...> achalasia Sent: Monday, July 25, 2011 6:10 PM Subject: RE: Dr Park previously of Uofland? Â Hi Kim, I have never posted on here before. However, I was diagnosed with achalasia in 2000. After having three dilations that did not work and the third one knicking my esophagus in Fairfax, VA, I ended up at the University of land in Baltimore.in 2001. I had previously worked there in the late 1980's in hospital administration (I am not a nurse). Long story short, my primary problem with achalasia has always been chest spasms/pain. Guess that is why it took more than five years before I received the right diagnosis. The swallowing became a later problem and it was not until I began vomiting blood that they figured out it was not my gallbladder. I did not know much about achalasia and it seemed that most of the physicians that I was dealing with knew a little about it but not a lot. I decided on having a Heller myotomy thinking that it would cure the chest spasms - not true in my case - and make swallowing much easier - very true in my case. At the time, I spoke with some of my former friends at UMD and they recommended Eugene Cho, M.D. He did an excellent job for me and I had a Heller, Toupet, and pylorplasty done at one time. Dr. Cho has moved west to Takoma, WA. I do think that Park, M.D. came after Dr. Cho left. I began having some problems this past year and called to see if I could see Dr. Park for a follow-up. The staff told me that he had left to go to Nova Scotia and they were devastated by his departure. I saw a GI doc by the name of Fantry (not a surgeon) who was also saddened by Dr. Park's decision to go to Canada. Although I have no personal knowledge of Dr. Park's work, I can tell you people spoke highly of him. I have no idea how many myotomies he has performed, but I do have phone numbers of where he worked in Baltimore and maybe they could verify number he performed there. After finding this resourceful website, I made an appointment with Dr. Richter in Philadelphia who will be leaving Temple in August to go to Tampa (I believe Univ. of South Florida GI Dept). He saw me at end of June and I can tell you that I received good news and some not so good news. I can tell you that he said whoever did my surgery did a great job and it was done over 10 years ago, but that the chest spasms are the one thing that doctors have difficulty knowing what causes them and what stops them. Different things work for different people. God bless you and I wish you the very best! Beth Cumby Dr Park previously of Uofland? Does anyone have any information about Dr Park? I saw that Carolyn had mentioned him in a post a number of years ago, but only referenced that he spoke at a conference. I spoke with his admin assistant this morning about getting in to see him as he is close enough to me (and now in Canada) and I'd like to see if anyone had any personal experience with him. Thanks, kim in canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2011 Report Share Posted July 25, 2011 hi beth. I live in philadelphia and i am debating on whether to get one botox and if it doesnt work then im going for the surgery or just goibg straight for the surgery. But i just read that you seen a doctor at temple and he is about to leave in august? Do u have his number by any chance? On Mon Jul 25th, 2011 5:10 PM EDT Beth Cumby wrote: >Hi Kim, > >I have never posted on here before. However, I was diagnosed with achalasia >in 2000. After having three dilations that did not work and the third one >knicking my esophagus in Fairfax, VA, I ended up at the University of >land in Baltimore.in 2001. I had previously worked there in the late >1980's in hospital administration (I am not a nurse). Long story short, my >primary problem with achalasia has always been chest spasms/pain. Guess that >is why it took more than five years before I received the right diagnosis. > >The swallowing became a later problem and it was not until I began vomiting >blood that they figured out it was not my gallbladder. I did not know much >about achalasia and it seemed that most of the physicians that I was dealing >with knew a little about it but not a lot. I decided on having a Heller >myotomy thinking that it would cure the chest spasms - not true in my case - >and make swallowing much easier - very true in my case. > >At the time, I spoke with some of my former friends at UMD and they >recommended Eugene Cho, M.D. He did an excellent job for me and I had a >Heller, Toupet, and pylorplasty done at one time. Dr. Cho has moved west to >Takoma, WA. I do think that Park, M.D. came after Dr. Cho left. I >began having some problems this past year and called to see if I could see >Dr. Park for a follow-up. The staff told me that he had left to go to Nova >Scotia and they were devastated by his departure. I saw a GI doc by the name >of Fantry (not a surgeon) who was also saddened by Dr. Park's >decision to go to Canada. Although I have no personal knowledge of Dr. >Park's work, I can tell you people spoke highly of him. I have no idea how >many myotomies he has performed, but I do have phone numbers of where he >worked in Baltimore and maybe they could verify number he performed there. > >After finding this resourceful website, I made an appointment with Dr. >Richter in Philadelphia who will be leaving Temple in August to go to Tampa >(I believe Univ. of South Florida GI Dept). He saw me at end of June and I >can tell you that I received good news and some not so good news. I can tell >you that he said whoever did my surgery did a great job and it was done over >10 years ago, but that the chest spasms are the one thing that doctors have >difficulty knowing what causes them and what stops them. Different things >work for different people. > >God bless you and I wish you the very best! > >Beth Cumby > > > Dr Park previously of Uofland? > > > > Does anyone have any information about Dr Park? I saw that Carolyn had >mentioned him in a post a number of years ago, but only referenced that he >spoke at a conference. I spoke with his admin assistant this morning about >getting in to see him as he is close enough to me (and now in Canada) and >I'd like to see if anyone had any personal experience with him. > > Thanks, > > kim in canada > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2011 Report Share Posted July 25, 2011 He did my HM with partial fund at umd in Baltimore 01/09 I've been good ever since little to no symptoms. Before my HM I pretty much regurgitated whenever I laid down to sleep. I sleep well every night now. Couldn't recommend Dr. Park any higher. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2011 Report Share Posted July 25, 2011 Dr. Richter is indeed leaving as of Sept. 1st. I bet it's too late to see him because existing patients come first. It's sad because he was my GI doc and he is really competent. Richter is not a surgeon. He has written extensively on the relative benefits of dilation vs. Surgery. You could go to our site via the link on this message and search to find lots on that topic. You could also google Richter. It will probably take you to messages here, BTW. at 215 707 5069 schedules for Dr. Richter. Botox gets mixed reviews, at best. I had it done at Jefferson and it helped for a couple of months, maybe three. I was able to eat soft pretzels again, for example. That did not last. I don't really like Jefferson's overall factory approach to medicine, but they have some good docs there. I intend to follow Richter's recommendations and see Drs. Fisher or at the Temple Digestive Resource Center. Good luck. Dan Hoffman Sent from Smrtphone That Lacks Spellchecker Fiorino <katief0811@...> wrote: >hi beth. I live in philadelphia and i am debating on whether to get one botox and if it doesnt work then im going for the surgery or just goibg straight for the surgery. But i just read that you seen a doctor at temple and he is about to leave in august? Do u have his number by any chance? > >On Mon Jul 25th, 2011 5:10 PM EDT Beth Cumby wrote: > >>Hi Kim, >> >>I have never posted on here before. However, I was diagnosed with achalasia >>in 2000. After having three dilations that did not work and the third one >>knicking my esophagus in Fairfax, VA, I ended up at the University of >>land in Baltimore.in 2001. I had previously worked there in the late >>1980's in hospital administration (I am not a nurse). Long story short, my >>primary problem with achalasia has always been chest spasms/pain. Guess that >>is why it took more than five years before I received the right diagnosis. >> >>The swallowing became a later problem and it was not until I began vomiting >>blood that they figured out it was not my gallbladder. I did not know much >>about achalasia and it seemed that most of the physicians that I was dealing >>with knew a little about it but not a lot. I decided on having a Heller >>myotomy thinking that it would cure the chest spasms - not true in my case - >>and make swallowing much easier - very true in my case. >> >>At the time, I spoke with some of my former friends at UMD and they >>recommended Eugene Cho, M.D. He did an excellent job for me and I had a >>Heller, Toupet, and pylorplasty done at one time. Dr. Cho has moved west to >>Takoma, WA. I do think that Park, M.D. came after Dr. Cho left. I >>began having some problems this past year and called to see if I could see >>Dr. Park for a follow-up. The staff told me that he had left to go to Nova >>Scotia and they were devastated by his departure. I saw a GI doc by the name >>of Fantry (not a surgeon) who was also saddened by Dr. Park's >>decision to go to Canada. Although I have no personal knowledge of Dr. >>Park's work, I can tell you people spoke highly of him. I have no idea how >>many myotomies he has performed, but I do have phone numbers of where he >>worked in Baltimore and maybe they could verify number he performed there. >> >>After finding this resourceful website, I made an appointment with Dr. >>Richter in Philadelphia who will be leaving Temple in August to go to Tampa >>(I believe Univ. of South Florida GI Dept). He saw me at end of June and I >>can tell you that I received good news and some not so good news. I can tell >>you that he said whoever did my surgery did a great job and it was done over >>10 years ago, but that the chest spasms are the one thing that doctors have >>difficulty knowing what causes them and what stops them. Different things >>work for different people. >> >>God bless you and I wish you the very best! >> >>Beth Cumby >> >> >> Dr Park previously of Uofland? >> >> >> >> Does anyone have any information about Dr Park? I saw that Carolyn had >>mentioned him in a post a number of years ago, but only referenced that he >>spoke at a conference. I spoke with his admin assistant this morning about >>getting in to see him as he is close enough to me (and now in Canada) and >>I'd like to see if anyone had any personal experience with him. >> >> Thanks, >> >> kim in canada >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2011 Report Share Posted July 25, 2011 , was kind enough to provide you with Dr. Richter's information and who schedules for him, is just a gem of a person. She was so helpful to me. With regard to botox, I cannot answer that question. However, I will tell you what Dr. Richter recommended for me. Since I have been experiencing severe chest pain and spasms that can last for hours, he told me that he wanted to try a botox injection along with a dilation (or dilitation) post ten year myotomy. I had reservations about botox and he said although it is not typically recommended as an initial treatment for someone with achalasia, I had nothing to lose to see if helped with the chest spasms. One of the side effects of botox may be scar tissue, but since I have already had a Heller myotomy and Toupet fundoplication, there is already scar tissue. He also did a dilation which I was so scared of because I had one many years ago that actually knicked my esophagus, but I felt that I was in good hands with Dr. Richter. From what I know (and that is limited knowledge), I would really think twice about having botox before a myotomy. Lots of information has been posted about the side effects of botox before a myotomy. Good luck and I asked Dr. Richter who he recommended as a GI doctor for me in the DC/Baltimore area and I see that already listed some doctors for you at Temple. Dr. Richter also said that I could see him in Florida if I wanted too and an excuse for a vacation. My understanding is that he should be up and running in Tampa some time in October. However, I do know that he seemed knowledgeable and caring so I feel that if you call she may be able to help you with some GI referrals and then this group here is awesome. As they say, check out your surgeons especially well. I did not do that in 2001 as well as I would have if I had linked into a group like this. Fortunately, I was extremely lucky to find someone that performed a successful surgery for me. Good luck and I hope you find a bit of relief soon! Beth Dr Park previously of Uofland? > > > > Does anyone have any information about Dr Park? I saw that Carolyn had >mentioned him in a post a number of years ago, but only referenced that he >spoke at a conference. I spoke with his admin assistant this morning about >getting in to see him as he is close enough to me (and now in Canada) and >I'd like to see if anyone had any personal experience with him. > > Thanks, > > kim in canada > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2011 Report Share Posted July 26, 2011 Thank you for the recommendation Wes! Â I'm going to see my family doctor today to see if he can get the referral sent to his assistant tomorrow. Â I do hope that I get the chance to meet with him kim in canada ________________________________ From: Wes <sewtrah@...> " achalasia " <achalasia > Sent: Monday, July 25, 2011 7:56 PM Subject: Re: Dr Park previously of Uofland? Â He did my HM with partial fund at umd in Baltimore 01/09 I've been good ever since little to no symptoms. Before my HM I pretty much regurgitated whenever I laid down to sleep. I sleep well every night now. Couldn't recommend Dr. Park any higher. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2011 Report Share Posted July 26, 2011 I too took my son to Dr. Richter for a 2nd opinion. At one time when I told him that my son was having trouble sleeping some days due to cough at nights (before surgery) he did say that he could get a botox injection till his surgery is done, since my son was able to live with the cough and it was not that bad, we preferred to just wait for the surgery as I too heard that botox does not last too long-3 months-1 year and can cause scar tissue. We preferred to wait for some long term (as per most people's experience) fix which was the surgery. Also, if I remember correctly Dr. Richter did mention that for young women and middle aged women dilation works but for young males surgery is recommended. Beth, what surgeon did Dr. Richter recommend to you? He had recommended Dr. Dempsey and Dr, colleen Gawyn from the Temple University to us. We went with Dr. Dempsey and had a very pleasant experience, he has great bedside manners and really respects his patients and so far (2 weeks) my son has been doing great after his surgery. Let me know if you have any questions about these doctors. Priti >Hi Kim, > >I have never posted on here before. However, I was diagnosed with achalasia >in 2000. After having three dilations that did not work and the third one >knicking my esophagus in Fairfax, VA, I ended up at the University of >land in Baltimore.in 2001. I had previously worked there in the late >1980's in hospital administration (I am not a nurse). Long story short, my >primary problem with achalasia has always been chest spasms/pain. Guess that >is why it took more than five years before I received the right diagnosis. > >The swallowing became a later problem and it was not until I began vomiting >blood that they figured out it was not my gallbladder. I did not know much >about achalasia and it seemed that most of the physicians that I was dealing >with knew a little about it but not a lot. I decided on having a Heller >myotomy thinking that it would cure the chest spasms - not true in my case - >and make swallowing much easier - very true in my case. > >At the time, I spoke with some of my former friends at UMD and they >recommended Eugene Cho, M.D. He did an excellent job for me and I had a >Heller, Toupet, and pylorplasty done at one time. Dr. Cho has moved west to >Takoma, WA. I do think that Park, M.D. came after Dr. Cho left. I >began having some problems this past year and called to see if I could see >Dr. Park for a follow-up. The staff told me that he had left to go to Nova >Scotia and they were devastated by his departure. I saw a GI doc by the name >of Fantry (not a surgeon) who was also saddened by Dr. Park's >decision to go to Canada. Although I have no personal knowledge of Dr. >Park's work, I can tell you people spoke highly of him. I have no idea how >many myotomies he has performed, but I do have phone numbers of where he >worked in Baltimore and maybe they could verify number he performed there. > >After finding this resourceful website, I made an appointment with Dr. >Richter in Philadelphia who will be leaving Temple in August to go to Tampa >(I believe Univ. of South Florida GI Dept). He saw me at end of June and I >can tell you that I received good news and some not so good news. I can tell >you that he said whoever did my surgery did a great job and it was done over >10 years ago, but that the chest spasms are the one thing that doctors have >difficulty knowing what causes them and what stops them. Different things >work for different people. > >God bless you and I wish you the very best! > >Beth Cumby > > > Dr Park previously of Uofland? > > > > Does anyone have any information about Dr Park? I saw that Carolyn had >mentioned him in a post a number of years ago, but only referenced that he >spoke at a conference. I spoke with his admin assistant this morning about >getting in to see him as he is close enough to me (and now in Canada) and >I'd like to see if anyone had any personal experience with him. > > Thanks, > > kim in canada > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2011 Report Share Posted July 26, 2011 Priti, So glad that your son is doing well and healing after his surgery. I had heard Dr. Dempsey's name before and good things associated with him. With regard to referrals from Dr. Richter, I did not need a referral for surgery as my Heller is still in tact thankfully and working after ten years. I did ask him for recommendations for a GI (gastroenterologist) doctor to monitor me as I do have achalasia and Barrett's esophagus (may or may not be related to my Heller). It is typical for me to have an endoscopy every one to two years to look at my esophagus. With regard to the doctors in the DC/Balt metro area, he recommended three gastroenterologists who specialized in esophageal motility disorders: Stan at town, Cooke at Hopkins, and Fantry at University of land. Other option is to be seen by Dr. Richter in Florida. I tried three dilitations over a year back in 2000 and none of them worked, but for others they are all that people need. Achalasia affects people in so many different ways. So glad to have this group so that I can discuss achalasia or read about it. There was a time when I felt so very isolated due to this disease and people saying, " What did you say it was called? " and just staring at me. Hoping that you son continues to improve. Take care, Beth Dr Park previously of Uofland? > > > > Does anyone have any information about Dr Park? I saw that Carolyn had >mentioned him in a post a number of years ago, but only referenced that he >spoke at a conference. I spoke with his admin assistant this morning about >getting in to see him as he is close enough to me (and now in Canada) and >I'd like to see if anyone had any personal experience with him. > > Thanks, > > kim in canada > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2011 Report Share Posted July 26, 2011 Beth, Did you have the 3Â dilitations before you had Heller? >Hi Kim, > >I have never posted on here before. However, I was diagnosed with achalasia >in 2000. After having three dilations that did not work and the third one >knicking my esophagus in Fairfax, VA, I ended up at the University of >land in Baltimore.in 2001. I had previously worked there in the late >1980's in hospital administration (I am not a nurse). Long story short, my >primary problem with achalasia has always been chest spasms/pain. Guess that >is why it took more than five years before I received the right diagnosis. > >The swallowing became a later problem and it was not until I began vomiting >blood that they figured out it was not my gallbladder. I did not know much >about achalasia and it seemed that most of the physicians that I was dealing >with knew a little about it but not a lot. I decided on having a Heller >myotomy thinking that it would cure the chest spasms - not true in my case - >and make swallowing much easier - very true in my case. > >At the time, I spoke with some of my former friends at UMD and they >recommended Eugene Cho, M.D. He did an excellent job for me and I had a >Heller, Toupet, and pylorplasty done at one time. Dr. Cho has moved west to >Takoma, WA. I do think that Park, M.D. came after Dr. Cho left. I >began having some problems this past year and called to see if I could see >Dr. Park for a follow-up. The staff told me that he had left to go to Nova >Scotia and they were devastated by his departure. I saw a GI doc by the name >of Fantry (not a surgeon) who was also saddened by Dr. Park's >decision to go to Canada. Although I have no personal knowledge of Dr. >Park's work, I can tell you people spoke highly of him. I have no idea how >many myotomies he has performed, but I do have phone numbers of where he >worked in Baltimore and maybe they could verify number he performed there. > >After finding this resourceful website, I made an appointment with Dr. >Richter in Philadelphia who will be leaving Temple in August to go to Tampa >(I believe Univ. of South Florida GI Dept). He saw me at end of June and I >can tell you that I received good news and some not so good news. I can tell >you that he said whoever did my surgery did a great job and it was done over >10 years ago, but that the chest spasms are the one thing that doctors have >difficulty knowing what causes them and what stops them. Different things >work for different people. > >God bless you and I wish you the very best! > >Beth Cumby > > > Dr Park previously of Uofland? > > > > Does anyone have any information about Dr Park? I saw that Carolyn had >mentioned him in a post a number of years ago, but only referenced that he >spoke at a conference. I spoke with his admin assistant this morning about >getting in to see him as he is close enough to me (and now in Canada) and >I'd like to see if anyone had any personal experience with him. > > Thanks, > > kim in canada > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2011 Report Share Posted July 26, 2011 Yes I did. The third one (as they kept using a larger balloon back then) knicked my esophagus. After that, I decided to go ahead with the Heller. In addition, I had some other problems with my stomach emptying and they decided to do a pylorplasty also at the same time. Dr Park previously of Uofland? > > > > Does anyone have any information about Dr Park? I saw that Carolyn had >mentioned him in a post a number of years ago, but only referenced that he >spoke at a conference. I spoke with his admin assistant this morning about >getting in to see him as he is close enough to me (and now in Canada) and >I'd like to see if anyone had any personal experience with him. > > Thanks, > > kim in canada > > > > > > > Quote Link to comment Share on other sites More sharing options...
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