Re: Sever pain unable to walk

[Guest guest]

Spasms, to me, feel somewhat like a Charlie Horse in your sternum area, if that

maybe helps you to understand the pain. Some of us just have what is called

vigorous achalasia. I was diagnosed with that, but my spasms are not crawl on

the floor strong.

Years ago I took some bio feedback therapy for migraines and had some success,

it was similar to LaMaze breathing. There was a muscle reader, just a little

pad she put on certain spots and I learned to relax that set of muscles with a

gauge that would move as you smoothed your tenseness. She taught me how to

relax certain areas, like pushing out your bottom lip to relax your jaw line.

It was fascinating and once you see the gauge move as you relax you can figure

out how to relax certain muscles and realize what relaxed feels like.

I don't ever hear anything about bio feedback anymore, though. For someone

young I would think something like that might have benefits. Same as yoga or

other relaxing techniques.

As we start to feel a spasm then we tense up and it gets worse, it seems.

Sandy

>

> We finally got Taniea on better pain medication she now takes Tramadol

(Ultram) and Amitripyline as of yesterday. But she is having pain that is

basically cripiling her. She is crawling on the floor because even with the

meds she says she hurts to much to walk .

>

> The primary care doctor said she thinks Taniea has adhesions scar tissue

sticking causing pain. They did x-rays and didn't see anything so as they say

we are back to square one.

>

> She describes the pain as constant twisting but it is not at her sternum. She

had the myotomy and fundo (tfal i think 270 degree) in Aug of last yr and it was

just below her sternum not sure if thats thoracic or not. the incision is about

2 in long and the area she points to is right in the middle of it. Oh and the

pain worsens after eating and she is on Prilosec 2x a day. My question is has

any one else experienced this type of pain?

>

[Guest guest]

That is interesting I am going to look it up. Taniea was diagnosed with

Vigorious Achalasia actually. Yoga has been something something I have wanted

to try personally I have never thought about going that way to help Taniea

Excellent suggestions thank you Sandy.

[Guest guest]

Yes, let me know if it helps at all. The panic that comes with a spasm coming

is almost as bad as the spasm, especially if you are doing something and can't

get away. Eating something like HiHo Crackers or heavy bread, letting it stay

there for a few minutes, then washing it down with fluid of choice, if she can

do that, can stop my spasms. Some kind of food that stays firm, but that later

dissolves in water seems the best for me. It can take up to four slices of

bread. Imagine feeding a garbage disposal but not turning it on for a while.

If she can't get it down, can she regurgitate it?

Talking when I'm in front of a group or in a noisy space when I raise my voice,

can trigger them also.

There are old studies and I think my doctors told me that having vigorous

achalasia doesn't really change the outlook or treatment. From this group, I'm

guessing it is spasms, not heartburn, but I could be wrong. Some describe the

pain also like it was a spindle of wire with hundreds or wires attached

throughout your chest, up to your jaw and the spindle is twisting and turning

pulling those wires in and out in all directions.

I haven't seen a barium swallow of a normal person, but when I saw mine moving,

it was like a dying snake with a shovel at both ends twisting and turning.

After seeing that, I was able to visualize what was happening that I couldn't

feel.

You might get the videos or copies of her tests and show her. You probably

should keep them anyway for the future, so she has a history to show doctors.

Just knowing what is happening may give her some power over the spasms.

I know bio feedback sounds like Californian hippy stuff, but it was very

mechanical, the therapist did do some general talk therapy about what might be

making me tense, but most of the time I was alone in a room testing how to relax

and watching the little meter move. wonder where it went? Possibly acupuncture

might help? But I'd be careful of people who might take advantage of the

situation. To me, yoga is harmless and fairly inexpensive. Possibly even the

Wii fit game might be beneficial.

>

> That is interesting I am going to look it up. Taniea was diagnosed with

Vigorious Achalasia actually. Yoga has been something something I have wanted

to try personally I have never thought about going that way to help Taniea

Excellent suggestions thank you Sandy.

>

>

[Guest guest]

One, last thing about biofeedback... cost: My insurance covered most of it for

a while, but that was the 80's. I went maybe 10 times, and each time learned a

new little technique and just learned what " relaxed " felt like. For instance,

shoulders: people raise their shoulders as they get tense. If you just drop

and square your shoulders and stretch your neck up, like a string is pulling

your head straight up and push out your bottom lip, with your jaws unlocked, you

will ease a ton of tension in your neck and shoulder blades and jaw line.

It would not have to be a whole bunch of appointments, maybe.

>

> That is interesting I am going to look it up. Taniea was diagnosed with

Vigorious Achalasia actually. Yoga has been something something I have wanted

to try personally I have never thought about going that way to help Taniea

Excellent suggestions thank you Sandy.

>

>

[Guest guest]

Hello,

   I had something going on similar to this after my surgery on June 28th 2010

maybe the should check her for

Gastroparesis I found out if is what I had due to damage that was done during

surgery and the pain is horrible..And it is wrose after you eat.

________________________________

From: shareedanieal <shareedanieal@...>

achalasia

Sent: Wed, May 11, 2011 10:27:51 AM

Subject: Sever pain unable to walk

 

We finally got Taniea on better pain medication she now takes Tramadol (Ultram)

and Amitripyline as of yesterday. But she is having pain that is basically

cripiling her. She is crawling on the floor because even with the meds she says

she hurts to much to walk .

The primary care doctor said she thinks Taniea has adhesions scar tissue

sticking causing pain. They did x-rays and didn't see anything so as they say we

are back to square one.

She describes the pain as constant twisting but it is not at her sternum. She

had the myotomy and fundo (tfal i think 270 degree) in Aug of last yr and it was

just below her sternum not sure if thats thoracic or not. the incision is about

2 in long and the area she points to is right in the middle of it. Oh and the

pain worsens after eating and she is on Prilosec 2x a day. My question is has

any one else experienced this type of pain?