Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Hi -- Welcome to the group. I'm , and I live in NY. My son had an allergic reaction to the pertussis vaccine as an infant -- thankfully he's fine -- although he did have whooping cough about a year and a half ago at age 15. I look forward to getting to know you. Health & blessings, Project MAHMA -- Moms At Home Making A difference... and a lot of money! http://www.ExcitingHealth.CreateMyFuture.com 1-866-312-8064 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 After 5 mos of testing my daughter was diagnosed with Achalasia and had one balloon treatment then we had the surgery. She was good for 9 mos and started have trouble again this past Dec. Since Jan we have had 2 balloon treatments and she said neither of them have worked. She is now just turned 14 and I try to talk to her about the disease and how she will need to manage it as it will never go away. She has it in her head she needs another surgery...I talked to her gastro doc and he did discuss her case with the surgeon and was told surgery would be a last resort as it would be hard on her. She being 14 is not the easiest to speak with right now but her anger at the disease is playing a part in this. How should I approach her with some coping skills and the reality of how she will need to deal with it. Medically I put it in the hands of her docs but psychologically how do I approach it. Thanks for your help. Maureen Young Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 I have read your e-mail several times and want to let you know, I really get it. I'm 47 and have had Achalasia since I was 14, very much like your daughter. I have gone through many treatments and surgery. I get how she feels. I remember going to my prom and spending most of the time in the bathroom with pain. It takes awhile to get to your inner peace. How I handled it was focus on it when I was at the docs. and focus on many positives that your daughter has ahead of her. I decided that I was not going to have it rule my life, kept myself busy with sports and travel and had many friends that understood my condition and got rid of the negitive people that just were downers. I have three beautiful children and a wonderful husband who I have known since I was 20. Right in the middle of all the problems. I was very careful not to let my kids see my pain, so they woundn't have any eating issues Your daughter has the wonderful support of her family and she has her whole wonderful life ahead of her. I never let Achalasia get in the way of my fun. I have stayed positive. I have been so lucky to have had wonderful docs. to help me with my treatments and so many procedures, making childbirth a walk in the parkInner peace will come,with days wondering why me! But it will come. You will be her rock and she will grow up strong, as were my parents for me. After 30 yrs of this condition I finally had to have my E out in December and it has been fine. Everything went well. But that is a long way off for your daughter if ever.Being a parent I can understand your concern and feel for you. You have the support of many members on this site and that is just the beginning. She is also lucky because medicine has come so far since I started having it in the 70's. Please keep us up to date with her progress. She is in good hands. Forcus on her things she loves to do. Even with food that works for her. All my best ________________________________ From: Maureen <mmyoung5758@...> achalasia Sent: Sun, May 15, 2011 8:15:41 PM Subject: New to Forum After 5 mos of testing my daughter was diagnosed with Achalasia and had one balloon treatment then we had the surgery. She was good for 9 mos and started have trouble again this past Dec. Since Jan we have had 2 balloon treatments and she said neither of them have worked. She is now just turned 14 and I try to talk to her about the disease and how she will need to manage it as it will never go away. She has it in her head she needs another surgery...I talked to her gastro doc and he did discuss her case with the surgeon and was told surgery would be a last resort as it would be hard on her. She being 14 is not the easiest to speak with right now but her anger at the disease is playing a part in this. How should I approach her with some coping skills and the reality of how she will need to deal with it. Medically I put it in the hands of her docs but psychologically how do I approach it. Thanks for your help. Maureen Young Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Hello All, Just a note, I has lots of problems from 9 to 16. I was properly diagnosed when I was almost 17 and weigh about 65 pounds. My mother (a RN) threatened to sue our one local GP if he did not find out what was wrong with me. They actually made a bet that if she was wrong and just a worried old hag of a mother (his words) she would pay for the xrays. If she was right and he was an idiot doctor (her words) he would pay for whatever treatment was needed. Well I had one xray followed by a barium swallow and the local home town Gastro (actually a retired Prof. of Gastroenterology) said it was " classic Achalasia normally only seen in people much older " . I first had a stretching. NO ballons then just a solid rubber tube. ugh then all the motility tests we all love and then off to Denver for a consult with another Gastro who specialized in Pediatrics. In the end it was decided the best outcome for me would be surgery. Now folks this was NOT laproscopic!! It was the full open surgery. It was the only option in 1976. They were correct. It was the correct thing for me. I am now 50 and I have lived a full life, been a missionary, lived around the world and I am still going!! Its not just that the surgery is a easy option, it is the best option for most people!! Now it can be done laproscopiclly and I just read the other day they are now doing myotomies through the endoscope!! You people got it easy. There is really no reason to put off surgery, especially with a young person. BTW, My mother held the doctor to his words even though we had insurance. Blessings, JC -------------------------------- www.healingcommunities.org Cool people with Achalasia http://www.facebook.com/home.php?sk=group_200707803300303 & ap=1 > > > > > > After 5 mos of testing my daughter was diagnosed with Achalasia and had one balloon treatment then we had the surgery. She was good for 9 mos and started have trouble again this past Dec. Since Jan we have had 2 balloon treatments and she said neither of them have worked. > > > She is now just turned 14 and I try to talk to her about the disease and how she will need to manage it as it will never go away. She has it in her head she needs another surgery...I talked to her gastro doc and he did discuss her case with the surgeon and was told surgery would be a last resort as it would be hard on her. She being 14 is not the easiest to speak with right now but her anger at the disease is playing a part in this. How should I approach her with some coping skills and the reality of how she will need to deal with it. Medically I put it in the hands of her docs but psychologically how do I approach it. > > > Thanks for your help. > > > Maureen Young > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 I would love to meet your mom. She sounds a lot like me. I am also a nurse. I have this pair of shoes that look like miss gulch shoes on the wizard of oz. When my son saw me put on those shoes he knew the docs were in for it!! Haha. Go momma!!!!...angela Sent from my Verizon Wireless BlackBerry Re: New to Forum Hello All, Just a note, I has lots of problems from 9 to 16. I was properly diagnosed when I was almost 17 and weigh about 65 pounds. My mother (a RN) threatened to sue our one local GP if he did not find out what was wrong with me. They actually made a bet that if she was wrong and just a worried old hag of a mother (his words) she would pay for the xrays. If she was right and he was an idiot doctor (her words) he would pay for whatever treatment was needed. Well I had one xray followed by a barium swallow and the local home town Gastro (actually a retired Prof. of Gastroenterology) said it was " classic Achalasia normally only seen in people much older " . I first had a stretching. NO ballons then just a solid rubber tube. ugh then all the motility tests we all love and then off to Denver for a consult with another Gastro who specialized in Pediatrics. In the end it was decided the best outcome for me would be surgery. Now folks this was NOT laproscopic!! It was the full open surgery. It was the only option in 1976. They were correct. It was the correct thing for me. I am now 50 and I have lived a full life, been a missionary, lived around the world and I am still going!! Its not just that the surgery is a easy option, it is the best option for most people!! Now it can be done laproscopiclly and I just read the other day they are now doing myotomies through the endoscope!! You people got it easy. There is really no reason to put off surgery, especially with a young person. BTW, My mother held the doctor to his words even though we had insurance. Blessings, JC -------------------------------- www.healingcommunities.org Cool people with Achalasia http://www.facebook.com/home.php?sk=group_200707803300303 & ap=1 > > > > > > After 5 mos of testing my daughter was diagnosed with Achalasia and had one balloon treatment then we had the surgery. She was good for 9 mos and started have trouble again this past Dec. Since Jan we have had 2 balloon treatments and she said neither of them have worked. > > > She is now just turned 14 and I try to talk to her about the disease and how she will need to manage it as it will never go away. She has it in her head she needs another surgery...I talked to her gastro doc and he did discuss her case with the surgeon and was told surgery would be a last resort as it would be hard on her. She being 14 is not the easiest to speak with right now but her anger at the disease is playing a part in this. How should I approach her with some coping skills and the reality of how she will need to deal with it. Medically I put it in the hands of her docs but psychologically how do I approach it. > > > Thanks for your help. > > > Maureen Young > > > > > > Quote Link to comment Share on other sites More sharing options...
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