Appreciation

[Guest guest]

Hi All --

I just wanted to send out a note to give a big " THANK YOU " for this group. Many

of your postings have comforted and provided me with valuable information with

the management of my achalasia. I have been managing A for about 10 years and

now I'm mental and emotionally ready to have surgey.

I will start the intense dialogue with my insurance company to see if I can

obtain one of the " highly " qualified doctors that many of you have listed

throughout this group. I live in Virginia so I will need to seek out of state

approval.

If anyone has any suggestions on the best approach for insurance companys please

let me know.

~ Living Life to the Fullest ~

Z

[Guest guest]

Hello,

Start at the top.. ( surgeon that is) they usually will help you. 

Most insurance companies have this ridiculous dictionary of med. procedures.

Because of the rarity of Achalasia, it says... botox or dilation.

The quality well known renown in his field surgeon can and should write or

discuss with the insurance company why these two procedures are NOT NOT NOT

recommended and why the myo and fundo are the " accepted and recommend as

standard " methods of treatment.

Carolyn

mom to Cameron.

  California Collegiate Shooting Sports 4-H All-Star Advisor to the most

awesome  kids of Amador County!

From: Ms <zancotraining@...>

Subject: Appreciation

achalasia

Date: Friday, July 1, 2011, 8:25 AM

 

Hi All --

I just wanted to send out a note to give a big " THANK YOU " for this group. Many

of your postings have comforted and provided me with valuable information with

the management of my achalasia. I have been managing A for about 10 years and

now I'm mental and emotionally ready to have surgey.

I will start the intense dialogue with my insurance company to see if I can

obtain one of the " highly " qualified doctors that many of you have listed

throughout this group. I live in Virginia so I will need to seek out of state

approval.

If anyone has any suggestions on the best approach for insurance companys please

let me know.

~ Living Life to the Fullest ~

Z

[Guest guest]

Hi Z,

 

I also struggled with A for many, many years before I became emotionally ready

to move forward and have the surgery.  I started with getting all the tests

done, especially the manometry, which confirmed EVERYTHING.  Once that was

done, I had a long talk with my GP.  I took my research to him, explained that

I wanted to pursue surgery with only the best of the best in the field of

Achalasia.  I gave my doctor names of surgeons that I wanted presented to the

insurance for approval.  It took some talking and arguing, but I finally was

able to get approved to see someone that I felt good about. 

 

Wishing you all the best, the surgery for me was worth it, I am so angry that I

waited this long, should have done it years ago!  Keep us posted! 

 

Julee So. Calif.

From: Ms <zancotraining@...>

achalasia

Sent: Friday, July 1, 2011 8:25 AM

Subject: Appreciation

 

Hi All --

I just wanted to send out a note to give a big " THANK YOU " for this group. Many

of your postings have comforted and provided me with valuable information with

the management of my achalasia. I have been managing A for about 10 years and

now I'm mental and emotionally ready to have surgey.

I will start the intense dialogue with my insurance company to see if I can

obtain one of the " highly " qualified doctors that many of you have listed

throughout this group. I live in Virginia so I will need to seek out of state

approval.

If anyone has any suggestions on the best approach for insurance companys please

let me know.

~ Living Life to the Fullest ~

Z