Has anyone had NCCPs after myotomy?

[Guest guest]

Hi all,

Met with a surgeon yesterday, and he was pretty adamant that I go straight to

myotomy. I want to do dilation. In trying to get myself to understand why my gut

says no to the myotomoy, here is my question:

I already have these pretty powerful chest pains, or NCCPs that everyone calls

them. My concern is that they will get to be more often and more painful after

myotomy. And that a doctor will not know what to do with it. The last thing I

want to do is to create worse NCCPs.

Has anyone had NCCPs after myotomy? I have Sharan Cline's message from earlier,

thanks for that, and am looking for anyone elses.

As stated previously, my NCCPs are extreme pain in the chest, radiating to the

ears, extremeties, and if untreated by water within 1 second, lead to numb

extremeties, cloudy hearing, confusion, and extreme pain. I *think* I get them

from stress, butter, a little acid reflux (although it's not consistent) or

stuff being left in my E too long. Had a Bravo test which indicated no acid at

time of pain, so I'm assuming it's spasm oriented but not acid oriented. The

whole frustrating thing is the lack of research and knowledge by doctors on this

topic.

So thanks for any feedback you can give me.

[Guest guest]

wrote:

>

> I already have these pretty powerful chest pains, or NCCPs that

> everyone calls them. My concern is that they will get to be more often

> and more painful after myotomy.

>

There are different types of achalasia. One type is called vigorous

achalasia, it comes with lots of true spasms. Achalasia in general can

have NCCPs which may or may not be spasms. If you have vigorous

achalasia spasms are just something you live with unless the esophagus

is removed, though in rare cases you could still have a problem in the

remaining stump of the upper esophagus. The esophagus does not like to

be irritated. Anytime it is it may cause NCCP. Any treatment will

irritate the esophagus until it heals. That means that while healing

NCCPs are more likely after treatment than before. Once the esophagus

heals from treatment many people end up with less NCCPs than they had

before treatment, often reducing them to very few. After treatment there

should be less stasis of food and distention to irritate the esophagus

and cause NCCPs. But, there are no guarantees.

notan

[Guest guest]

Hi Sharon,

I also had many painful spasms prior to surgery. I had a heller myotomy by Dr A

Rosemurgy in Tampa, FL and immediately after the surgery I notched a huge

difference in swallowing but my spasms were terrible. I was afraid that they

were not going to go away. They were actually worse that before. However as I

healed the spasms finally started to lessen. This was over a period of about 6

weeks. I now get 1-2 spasms a day that only last for a minute, I am very glad

I did the surgery. Looking back it was worth the 6 weeks in pain, lol.

>

> Hi all,

>

> Met with a surgeon yesterday, and he was pretty adamant that I go straight to

myotomy. I want to do dilation. In trying to get myself to understand why my gut

says no to the myotomoy, here is my question:

>

> I already have these pretty powerful chest pains, or NCCPs that everyone calls

them. My concern is that they will get to be more often and more painful after

myotomy. And that a doctor will not know what to do with it. The last thing I

want to do is to create worse NCCPs.

>

> Has anyone had NCCPs after myotomy? I have Sharan Cline's message from

earlier, thanks for that, and am looking for anyone elses.

>

> As stated previously, my NCCPs are extreme pain in the chest, radiating to the

ears, extremeties, and if untreated by water within 1 second, lead to numb

extremeties, cloudy hearing, confusion, and extreme pain. I *think* I get them

from stress, butter, a little acid reflux (although it's not consistent) or

stuff being left in my E too long. Had a Bravo test which indicated no acid at

time of pain, so I'm assuming it's spasm oriented but not acid oriented. The

whole frustrating thing is the lack of research and knowledge by doctors on this

topic.

>

> So thanks for any feedback you can give me.

>

>

>

[Guest guest]

Do the myotomy...it is well worth it:)

Sent from my iPhone

[Guest guest]

Does anyone know how long (approximately, average, guess) it takes for esophagus

to heal after surgery?

> >

> > I already have these pretty powerful chest pains, or NCCPs that

> > everyone calls them. My concern is that they will get to be more often

> > and more painful after myotomy.

> >

>

> There are different types of achalasia. One type is called vigorous

> achalasia, it comes with lots of true spasms. Achalasia in general can

> have NCCPs which may or may not be spasms. If you have vigorous

> achalasia spasms are just something you live with unless the esophagus

> is removed, though in rare cases you could still have a problem in the

> remaining stump of the upper esophagus. The esophagus does not like to

> be irritated. Anytime it is it may cause NCCP. Any treatment will

> irritate the esophagus until it heals. That means that while healing

> NCCPs are more likely after treatment than before. Once the esophagus

> heals from treatment many people end up with less NCCPs than they had

> before treatment, often reducing them to very few. After treatment there

> should be less stasis of food and distention to irritate the esophagus

> and cause NCCPs. But, there are no guarantees.

>

> notan

>

>

>

>

[Guest guest]

My surgeon said 4 weeks to 4 months depending on person. Not too helpful I

guess:)

On Jul 21, 2011, at 6:08 PM, " priti19.mahajan " <priti19.mahajan@...>

wrote:

> Does anyone know how long (approximately, average, guess) it takes for

esophagus to heal after surgery?

>

>

> > >

> > > I already have these pretty powerful chest pains, or NCCPs that

> > > everyone calls them. My concern is that they will get to be more often

> > > and more painful after myotomy.

> > >

> >

> > There are different types of achalasia. One type is called vigorous

> > achalasia, it comes with lots of true spasms. Achalasia in general can

> > have NCCPs which may or may not be spasms. If you have vigorous

> > achalasia spasms are just something you live with unless the esophagus

> > is removed, though in rare cases you could still have a problem in the

> > remaining stump of the upper esophagus. The esophagus does not like to

> > be irritated. Anytime it is it may cause NCCP. Any treatment will

> > irritate the esophagus until it heals. That means that while healing

> > NCCPs are more likely after treatment than before. Once the esophagus

> > heals from treatment many people end up with less NCCPs than they had

> > before treatment, often reducing them to very few. After treatment there

> > should be less stasis of food and distention to irritate the esophagus

> > and cause NCCPs. But, there are no guarantees.

> >

> > notan

> >

> >

> >

> >