Am I overreacting? Opinions welcome

[Guest guest]

Hello All,

I have only been part of the group since December and don't post much but I love

it and just wanted to thank everyone. I posted a few months back about my

experience with A and got some great feedback and was hoping to get a few more

opinions.

My quick story is this. I have had A for 21 years, since I was thirteen. Have

had two open myotomy's in the 90's and several balloon dilations. Did great for

a few years after my myotomy in 95' but it the problems have returned. Have the

same problems as most. Struggle to eat, spasms, vomit on occasion and weight

loss.

Here is my question more or less. I've recently had all the tests and have some

ulcers and eshopaghatis, some narrowing at the bottom and its a little stretched

out. I'm not a candidate for another myotomy or a balloon dilation. I posted a

few months back that my GI wanted to try botox. I know its a no no mostly but be

we tried it based on the fact that the only other surgery option would be an

esophectomy. The botox didn't work at all. I just did a barium swallow this

morning and the barium didn't drop into my stomach at all. Just sat in my E. My

GI is hesitant to do the esophectomy because I'm relatively young but I don't

see what other options there could be since I'm not dropping liquids.

So the question is should I just try to live with it? Do you think an

esophectomy too severe. Or should I actively pursue it? Im pretty uncomfortable

and pretty skinny but am unsure what to do next. Any opinions would be welcome.

Thanks,

Stefani SoCal