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Tricia, I would be in line right behind ya for the medical marijuana !!!! I

doubt though that it would ever pass here in Georgia. At least I know if

we go back to Alaska I can get it then

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, that's crappy!!! I thought that they passed the medical marijuana

act they were voting on it in 97 or 98 when we were there. Oh well. I know

someone there told me that up until 1990 you could possess up to 1 oz of

pot, and if caught you only got a fine of $100, or something like that.

Jenn

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  • 6 years later...

,

Since my sleeppattern is very disrupted I tried the " normal form " but

it gave me " flashbacks " .

Tried it 3 times and always flashbacks so I stopped it.

So, back on benzo's.

Recently, there was a poll on a dutch forum where most of the people

say they use it; many use vaporizers and others just " drink it as tea "

The Netherlands are very open-minded on this subject and it is

legalised there.

If you want I can give you the link on the poll.

Greetings,

Dirk

>

> Oregon is one of the States that have a Medical Marijuana plan, and

I

> expect there to be more now after the elections.

>

> My physician suggested I apply for registration, we hope it will

help

> me get some decent sleep and pain/muscle spasms relief and maybe I

can

> drop the Morphine if we get good results.

>

> I went to a introduction morning, learned a lot about the usage,

how

> to make cream, how to make syrup and how to use and the choice of

> different vaporizers.

>

> Does anyone of you have good results with medical marijuana? If so

in

> what form, any specifics I should watch out for? I know there are

> different strains of plants for different uses and pains, if there

is

> someone who is knowledgeable on what works best for people with ME/

> CFIDS I would appreciate some input.

>

> Ken: if this is too experimental and you do not feel comfortable

> discussing this than please ignore this message.

>

> [Moderator: Nothing is TOO Experimental... I will comment when the

risks (health or financial) may be unwarranted... ]

> --

>

> Portland, OR

>

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Thanks for sharing your experiences Dirk, I did hear about the

flashbacks and wondered what they felt like. Are they very disturbing?

Yes, I know about the Netherlands, actually I am from the Netherlands

and have the Dutch citizenship but left many years ago, we moved

around the world quite a bit. I am familiar with the ease of buying

your high (by the state controlled) quality without having to jump

through a 1000 hoops.

Would love to have the link to the poll. I speak and read Dutch of

course so I might find even more info there.

The situation in Oregon, compared to California is completely

different. In California there are dispensaries where you can buy/get

your MM. In Oregon however they decided that they didn't want to deal

with all the Feds raids and the burglaries so we have to either grow

our own Marijuana or find someone to grow it for you. You get a

license card and are allowed to carry 24 ounces with you at any time

and there's a limit on how many plants you can have.

The problem is of course that as soon as you have to card you're on

your own. It's up to you to find someone, no-one will give you an

address or a contact of a grower. People who have an excess in harvest

will donate it to vets and hospices. But for people like me, who is in

all honestly too ill to be able to manage a big project of making a

growing box and the right environment to grow the plants(lamps,

irrigation, fans, isolation and isolated electric box) it's s struggle

to find it.

I've heard that a large conglomeration of Dutch growers moved and took

up shop in BC Canada [Moderator: This industry is BC's greatest revenue

producer, som $7 billion/year --- for a recent story,

http://www.canada.com/vancouversun/news/westcoastnews/story.html?id=409039f3-1d9\

b-4a51-a1ad-c8c2cf1a79e9 -- you can get Certified Organic], so I will have to

check that out.

I wonder how other States deal with this issue.

Thanks again for the info Dirk.

--

Portland, OR

On Dec 10, 2008, at 5:52 PM, dirk.goffin wrote:

> ,

>

> Since my sleeppattern is very disrupted I tried the " normal form " but

> it gave me " flashbacks " .

> Tried it 3 times and always flashbacks so I stopped it.

> So, back on benzo's.

>

> Recently, there was a poll on a dutch forum where most of the people

> say they use it; many use vaporizers and others just " drink it as tea "

> The Netherlands are very open-minded on this subject and it is

> legalised there.

>

> If you want I can give you the link on the poll.

>

> Greetings,

> Dirk

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hi,

i am new to the list. can you explain the flashbacks to me. it usually makes me

feel pretty

wonderful. mutes the symptoms, great for pain and nausea. just doesn't do

wonders for

brain fog so i don't use it when i have to think or drive.

donna

> >

> > Oregon is one of the States that have a Medical Marijuana plan, and

> I

> > expect there to be more now after the elections.

> >

> > My physician suggested I apply for registration, we hope it will

> help

> > me get some decent sleep and pain/muscle spasms relief and maybe I

> can

> > drop the Morphine if we get good results.

> >

> > I went to a introduction morning, learned a lot about the usage,

> how

> > to make cream, how to make syrup and how to use and the choice of

> > different vaporizers.

> >

> > Does anyone of you have good results with medical marijuana? If so

> in

> > what form, any specifics I should watch out for? I know there are

> > different strains of plants for different uses and pains, if there

> is

> > someone who is knowledgeable on what works best for people with ME/

> > CFIDS I would appreciate some input.

> >

> > Ken: if this is too experimental and you do not feel comfortable

> > discussing this than please ignore this message.

> >

> > [Moderator: Nothing is TOO Experimental... I will comment when the

> risks (health or financial) may be unwarranted... ]

> > --

> >

> > Portland, OR

> >

>

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I tried it, I couldnt tolerate it at all. It seems marijuana causes a

orthostatic intolerance or POTS type effect on those who are not sick

anyway. It made my symptoms worse temporarily....

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Good to know, I have NCS NeuroCardiogenic Syncope and used to faint a

couple of times a day. I have it a bit under control now but still

can't take showers and go out or drive a car by myself.

Thanks for your input.

--

Portland, OR

On Dec 11, 2008, at 10:38 AM, rickstr420 wrote:

> I tried it, I couldnt tolerate it at all. It seems marijuana causes a

> orthostatic intolerance or POTS type effect on those who are not sick

> anyway. It made my symptoms worse temporarily....

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I can attest to the rickstr420. I was still using when I became ill and

immediately I could not tolerate smoking it. I would get extreme racing heart

rate and faint.. Very odd for a drug that is supposed to slow everything down. I

blacked out once after that upon trying my luck again.. Totally intolerable for

me.

________________________________

From: rickstr420 <rickstr420@...>

Sent: Thursday, December 11, 2008 11:38:32 AM

Subject: Re: Medical marijuana

I tried it, I couldnt tolerate it at all. It seems marijuana causes a

orthostatic intolerance or POTS type effect on those who are not sick

anyway. It made my symptoms worse temporarily. ...

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Hi,

I have had some experience with marijuana; like, years (too many,

lol) of ..um.. 'use' during my youth. I DID, in fact, know of someone

many ears ago who did usepot to allieviate his symptoms related to

ME/ CFS. I cannot tell you much about this as at the time I was still

smoking, did not know him that well, and he was not very forthcoming

with information. (I did not realize at that time I have ME/ fibro;

my then boyfriend was in a political 'legalize pot' group with him).

In any case I did not see one other way of taking in pot. I do not

advise smoking it at all as this is REALLY bad for your lungs as I've

come to find out. When one sautes pot in butter -or some similar way-

and cooks it in food, be that eggs, cookies, or simply as a sauce

THAT also works. It does make the stuff rather strong. The only

medical usesI've been more closely familiar with were those for AIDS

patients (a close friend who has since passed away) and this was in

pharmeceutical pill form. He disliked it as he was simply 'too out of

it' when they gave it to him so as to increase his appetite. As with

any mood/ mind altering drug, one need be wary of daily use; however,

if this is replacing something like morphine I don't see how this

could nesecarily be a bad thing. What I remember from back when I

smoked was that different kinds had different effects. That is to say

that one might have 'flashbacks' on one kind and entirely not get

that on another... Hope something here was helpful or relevant...

Best of luck with this!

Jane, the one with the hound

[Moderator: marijuna has drug effects and CFIDS are often hypersensitive to

drugs (working model is physical (instead of infection caused) brain trauma

which also exhibits this drug hyper-sensitivity. Using this model, one can check

PUBMED for possible issues/benefits.

I found the following:

" Marijuana contains over 60 different types of cannabinoids, which are its

medicinally active ingredients. Cannabinoids have the capacity for

neuromodulation--through direct, receptor-based mechanisms--at many levels

within the nervous system, providing therapeutic properties that may be

applicable to the treatment of neurologic disorders. These include

antioxidation, neuroprotection, analgesia, anti-inflammation, immunomodulation,

modulation of glial cells, and tumor growth regulation. " PMID: 15458761

" These endogenous cannabinoids appear to play an important role in signal

transduction, which may be starting points for therapy regarding: cardiovascular

diseases, multiple sclerosis and spinal cord disorders. cerebrovascular accident

and brain trauma, neurodegenerative diseases, epilepsy, pain management,

glaucoma, oncologic and aids-related disorders such as nausea, vomiting and

appetite problems. "

PMID: 9543785

" For nervous system disorders, cannabinoids may be useful by modulating

neurotransmission and calcium homeostasis as well as by anti-inflammatory and

anti-oxidant actions. " PMID: 14529462

" Currently, the synthetic cannabinoid HU211 is undergoing trials as a

protective agent after brain trauma. " PMID: 11152013 [

Note: that smoking it would not be advised because it would reduce oxygen

delivery to the tissue... For those of you in the Netherlands, any coffee shop

has suitable brownies... I love the signs on the coffee shops -- no admission to

under 18, No alcohol.... they take their coffee serious ;-) ]

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Hello,

I have M. E., and I had any dental injury causing infection/neuropathic

pain

3 1/2 years ago. I finally ended up with a legal prescription for medical

marijuana (California) after my pain doctor & neurosurgeons at my HMO had

tried

a number of narcotic pain medications all the way up to Dilaudid (which

is five times stronger than morphine) & a number of neuropathic pain meds.,

including Dilantin, Neurontin, Tegretol, and you get the picture.

So, I include here a portion of a letter to a friend explaining my use

of cannabis,

which I use very sparingly (two inhalations per day--1 p.m. & 5 p.m.)

along with 50 mg of Lyrica three times per day in order to dampen the

severe neuropathic pain. In fact, too much cannabis can make the pain

worse.

I think you might find this portion of this very recent letter useful:

" Recently, after all the drug trials for over three years,

I heard about Sativex (2 cannabinoids--CBD & THC) in a liposomal form

used legally for neuropathic pain for MS patients in Canada.

Since MS & M. E. are both neurological disorders, and some of the same

brain & inflammation and abnormalities are present, I thought maybe there

would be a chance for some extra pain relief.

Note:

Sativex:

http://jnnp.bmj.com/cgi/eletters/76/12/1612

Unfortunately, Sativex is not available in the US yet.

But I inquired with my pain doctor about Marinol (2.5 mg twice a day),

which only has one cannabinoid, and which is used in Scandinavian

countries for neuropathic pain in MS until Sativex gets approval for use.

The Marinol (THC) did help in quieting the CNS in conjunction with the

Lyrica, but Marinol made me too high & lightheaded. The CBD in the

Sativex mitigates most of the lightheaded & other disorienting symptoms.

So, a couple months ago, I conferred with a local medical doctor,

who does prescribe the medical cannabis, to see if he thought it would be

worthwhile to try that in place of Marinol. He indicated that Sativex, if

made

available in the US, would probably solve the legal battle over medical

cannabis, but until then, he thought that I would benefit from having all

80 cannabinoids present in cannabis, and he thought that it would further

enhance the pain relief. Also, I found that they have strains of the

cannabis

called Sativa which are helpful in quieting down the CNS without causing the

lightheadedness and allowing for more normal activity. There is also the

Indica strain, which is too heavy on the body for me, and also

is not safe in my opinion for driving.

Further research on the cannabis has revealed some beneficial

effects also for the endocrine system & for microcirculation. A turning

point was when I learned that the endocannabinoid system functions

as a master modulator, setting the tone and tempo at which other

neurotransmitters fire. It inhibits neurons firing too intensely &

disinhibits

neurons firing too sluggishly. Cannabinoids promote homeostasis in

systems that regulate appetite, movement, learning & forgetting,

perception of pain, immune response & inflammation, neuroprotection

and other vital processes. So, it made sense to have all of the 80

cannabinoids working together as close to natural as possible.

At this point, on only two pipe inhalations per day,

(probably less than the 2.5 mg Marinol twice a day), plus the Lyrica

at a reduced dosage, I have been able for the past couple months

trial period to get the needed dampening of the pain about 95% of the

time so that I don't have to take Percocet or Dilaudid orally to try

to stay out of ER.

The only previous experience I had was in the 1970s with some minor

recreational exposure to marijuana, thankfully no hard drugs or addictions.

Even then, I did not sit around and get stoned. Instead, I would

take one or two inhalations and then go out and do things and walk

around and just enjoy the different kinds of people I met along the way.

Most neuropathic pain medications had quite a lot of side effects,

which I don't have to endure with the cannabis, & I feel less clouded

mentally than I did with the other neuropathic or narcotic medications. "

A couple articles for your reading pleasure:

{Moderator: I trimmed the articles due to length of this post. Please add the

link and a snippet rather than the entire articles. While these two articles

were not excessively long, the entire message was long. Please repost the

article links. Thanks!

}

Du Pre

Poetry website: http://www.angelfire.com/poetry/soareagle/index.html

" By words the mind is winged. " Aristophanes

Website for National Alliance for Myalgic Encephalomyelitis:

http://www.name-us.org

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  • 2 weeks later...

,

Here are the links to users of marijuana :

http://www.mecvs.net/Forum-viewtopic-p-27784.html#27784

http://www.mecvs.net/Forum-viewtopic-p-27779.html#27779

Greetings,

Dirk

>

> Thanks for sharing your experiences Dirk, I did hear about the

> flashbacks and wondered what they felt like. Are they very

disturbing?

>

> Yes, I know about the Netherlands, actually I am from the

Netherlands

> and have the Dutch citizenship but left many years ago, we moved

> around the world quite a bit. I am familiar with the ease of

buying

> your high (by the state controlled) quality without having to jump

> through a 1000 hoops.

>

> Would love to have the link to the poll. I speak and read Dutch of

> course so I might find even more info there.

>

> The situation in Oregon, compared to California is completely

> different. In California there are dispensaries where you can

buy/get

> your MM. In Oregon however they decided that they didn't want to

deal

> with all the Feds raids and the burglaries so we have to either

grow

> our own Marijuana or find someone to grow it for you. You get a

> license card and are allowed to carry 24 ounces with you at any

time

> and there's a limit on how many plants you can have.

>

> The problem is of course that as soon as you have to card you're

on

> your own. It's up to you to find someone, no-one will give you an

> address or a contact of a grower. People who have an excess in

harvest

> will donate it to vets and hospices. But for people like me, who is

in

> all honestly too ill to be able to manage a big project of making

a

> growing box and the right environment to grow the plants(lamps,

> irrigation, fans, isolation and isolated electric box) it's s

struggle

> to find it.

..

>

> I wonder how other States deal with this issue.

>

> Thanks again for the info Dirk.

>

> --

>

> Portland, OR

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Hi, Donna,

Flashbacks : after smoking it I " thought " I was at work, having a

discussion with a co-worker an then realised I was at home, in bed.

This went on continuously but I couldn't get to sleep.

To me that was horrible so I never try it again.

Don't tolerate alcohol also.

Greetings,

Dirk

> hi,

>

> i am new to the list. can you explain the flashbacks to me. it

usually makes me feel pretty

> wonderful. mutes the symptoms, great for pain and nausea. just

doesn't do wonders for

> brain fog so i don't use it when i have to think or drive.

>

> donna

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yes, that sounds most unpleasant. alcohol intolerance is pretty common for cfids

and i

experience that for sure. sounds like the cfids turned pot into lsd, dangerous.

i dont like

feeling that out of control, even pre-cfids. cfids can be like a bad trip.

without end.

>

> Hi, Donna,

>

> Flashbacks : after smoking it I " thought " I was at work, having a

> discussion with a co-worker an then realised I was at home, in bed.

> This went on continuously but I couldn't get to sleep.

> To me that was horrible so I never try it again.

>

> Don't tolerate alcohol also.

>

> Greetings,

> Dirk

>

> > hi,

> >

> > i am new to the list. can you explain the flashbacks to me. it

> usually makes me feel pretty

> > wonderful. mutes the symptoms, great for pain and nausea. just

> doesn't do wonders for

> > brain fog so i don't use it when i have to think or drive.

> >

> > donna

>

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  • 2 years later...

Has anyone used MM to help(or made worse) with key CFS/ME symptoms- PEM,

sickness/nausea, pain, insomnia, OI-dizziness/lightheadedness/brain fog,

fatigue, concentration and short term memory problems, mood(uplifting)? Please

share your experiences.

From: marti_zavala <marti_zavala@...>

Subject: Medical Marijuana

Date: Tuesday, December 28, 2010, 6:36 PM

 

Some interesting articles I ran across today...

http://www.huffingtonpost.com/2010/12/21/medical-marijuana_n_797932.html#s209932

http://www.medicalmarijuana.com/

http://www.health.com/health/condition-article/0,,20345530,00.html

http://healthosity.blogspot.com/2010/05/medical-marijuana-and-cfs-expert.html

http://www.scientificamerican.com/blog/post.cfm?id=pot-joins-the-fight-against-a\

lzheim-2008-11-19

Marti

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MEDICAL MARIJUANA FOR PEM?

How does that work?

On Dec 28, 2010, at 6:23 PM, Larry wrote:

> Has anyone used MM to help(or made worse) with key CFS/ME symptoms-

> PEM, sickness/nausea, pain, insomnia, OI-dizziness/lightheadedness/

> brain fog, fatigue, concentration and short term memory problems,

> mood(uplifting)? Please share your experiences.

>

>

>

> From: marti_zavala <marti_zavala@...>

> Subject: Medical Marijuana

>

> Date: Tuesday, December 28, 2010, 6:36 PM

>

>

>

> Some interesting articles I ran across today...

>

>

http://www.huffingtonpost.com/2010/12/21/medical-marijuana_n_797932.html#s209932

>

> http://www.medicalmarijuana.com/

>

> http://www.health.com/health/condition-article/0,,20345530,00.html

>

> http://healthosity.blogspot.com/2010/05/medical-marijuana-and-cfs-expert.html

>

>

http://www.scientificamerican.com/blog/post.cfm?id=pot-joins-the-fight-against-a\

lzheim-2008-11-19

>

> Marti

>

>

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I wouldn't know how medical marijuana helps for PEM or CFS since i've never

tried it. I would like to hear if anyone has actually tried it to tell us. i did

a quick search on google, " medical marijuana in pem and cfs " and the first thing

that popped up was:

Medical Marijuana for Pain and Sleep and the PEM (!) in CFS

http://forums.aboutmecfs.org/showthread.php?5137-Medical-Marijuana-for-Pain-and-\

Sleep-and-the-PEM-%28!%29-in-CFS

seems to have some good feedbacks.

> >

> > From: marti_zavala <marti_zavala@...>

> > Subject: Medical Marijuana

> >

> > Date: Tuesday, December 28, 2010, 6:36 PM

> >

> >

> >

> > Some interesting articles I ran across today...

> >

> >

http://www.huffingtonpost.com/2010/12/21/medical-marijuana_n_797932.html#s209932

> >

> > http://www.medicalmarijuana.com/

> >

> > http://www.health.com/health/condition-article/0,,20345530,00.html

> >

> >

http://healthosity.blogspot.com/2010/05/medical-marijuana-and-cfs-expert.html

> >

> >

http://www.scientificamerican.com/blog/post.cfm?id=pot-joins-the-fight-against-a\

lzheim-2008-11-19

> >

> > Marti

> >

> >

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i have found nothing better for pain, nausea, mood uplifting, insomnia. not so

much for the other symptoms u mentioned. it mutes the symptoms if not

alleviating them completely while simultaneously ridding of some of the

hopelessness that accompanies a chronic illness in my experience.

>

> From: marti_zavala <marti_zavala@...>

> Subject: Medical Marijuana

>

> Date: Tuesday, December 28, 2010, 6:36 PM

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

> Some interesting articles I ran across today...

>

>

>

>

http://www.huffingtonpost.com/2010/12/21/medical-marijuana_n_797932.html#s209932

>

>

>

> http://www.medicalmarijuana.com/

>

>

>

> http://www.health.com/health/condition-article/0,,20345530,00.html

>

>

>

> http://healthosity.blogspot.com/2010/05/medical-marijuana-and-cfs-expert.html

>

>

>

>

http://www.scientificamerican.com/blog/post.cfm?id=pot-joins-the-fight-against-a\

lzheim-2008-11-19

>

>

>

> Marti

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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I have moderately severe CFS, POTS, pain, lightheadedness, balance problems,

etc. On days when I have " Light " symptoms I can smoke a little MM and it

distracts my mind off the pains. On days when my symptoms are bad, I dont smoke

it because it will make me feel worse. I will feel " stoned " on top of all my

symptoms. So only on " good " days. I tried both sativa and Indica. Didnt like the

Indica variety, it made me feel VERY VERY fatigued. Sativa is a mental high so

it easily distracts the mind from pain. But I only smoke very little, enough to

do the job, one or 2 puffs and save it for later. If youve tried various

pharmaceuticals and failed, you should at least give this a try, remember todays

MJ is not the 1970's MJ. Start off slow....

> >

> > From: marti_zavala <marti_zavala@...>

> > Subject: Medical Marijuana

> >

> > Date: Tuesday, December 28, 2010, 6:36 PM

> >

> >

> >

> > Some interesting articles I ran across today...

> >

> >

http://www.huffingtonpost.com/2010/12/21/medical-marijuana_n_797932.html#s209932

> >

> > http://www.medicalmarijuana.com/

> >

> > http://www.health.com/health/condition-article/0,,20345530,00.html

> >

> >

http://healthosity.blogspot.com/2010/05/medical-marijuana-and-cfs-expert.html

> >

> >

http://www.scientificamerican.com/blog/post.cfm?id=pot-joins-the-fight-against-a\

lzheim-2008-11-19

> >

> > Marti

> >

> >

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I just tried it and it was one of the longest most painful nights ever. It

seemed like it amplified the pain I had, and I also got very nauseous.

I have some strange reactions to medications so it's not that surprising. I'm

still feeling like crap from my experiment last night and really wish I hadn't

tried it.

I also got a rub on cream for topical use, that went a little better. Though it

wasn't a huge difference it seemed like it reduced the inflammation a bit.

ugh.

> >

> > From: marti_zavala <marti_zavala@>

> > Subject: Medical Marijuana

> >

> > Date: Tuesday, December 28, 2010, 6:36 PM

> >

> >

> >

> >

> >

> >

> >

> >  

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Some interesting articles I ran across today...

> >

> >

> >

> >

http://www.huffingtonpost.com/2010/12/21/medical-marijuana_n_797932.html#s209932

> >

> >

> >

> > http://www.medicalmarijuana.com/

> >

> >

> >

> > http://www.health.com/health/condition-article/0,,20345530,00.html

> >

> >

> >

> >

http://healthosity.blogspot.com/2010/05/medical-marijuana-and-cfs-expert.html

> >

> >

> >

> >

http://www.scientificamerican.com/blog/post.cfm?id=pot-joins-the-fight-against-a\

lzheim-2008-11-19

> >

> >

> >

> > Marti

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

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I think it is the best thing i have used for pain ever.

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> > From: marti_zavala <marti_zavala@>

> > Subject: Medical Marijuana

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> > Date: Tuesday, December 28, 2010, 6:36 PM

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> > Some interesting articles I ran across today...

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http://www.huffingtonpost.com/2010/12/21/medical-marijuana_n_797932.html#s209932

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> > http://www.medicalmarijuana.com/

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> > http://www.health.com/health/condition-article/0,,20345530,00.html

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http://healthosity.blogspot.com/2010/05/medical-marijuana-and-cfs-expert.html

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http://www.scientificamerican.com/blog/post.cfm?id=pot-joins-the-fight-against-a\

lzheim-2008-11-19

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> > Marti

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  • 5 months later...
Guest guest

I have been having more and more trouble with being sick, especially first

thing in the morning.I am okay when I get out of bed, but within an hour I want

to throw up which I can't do.I am on ondansetron and ranitidine but they are

losing their effectiveness.

I wished Pennsylvania would consider legalizing medical marijuana as I have

heard it works well for cancer patients who have trouble with upset stomach from

chemotherapy.Wished that you could get some kind that would get rid of the

stomach upset but wouldn't make you stoned.

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