Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 My nerve issues are different from yours but my world is bliss when I take my Lyrica and when I take it on time! Lori I am Bippy on Twitter. ________________________________ From: Joy <j0yeuxx@...> Sent: Wed, August 11, 2010 12:24:38 PM Subject: Nerves I'm wondering if anyone experiences this and if so how do you cope... It's hard to explain but I often feel like my nerves are racing and won't slow down! it is especially difficult at night when I try to relax to go to sleep-it feels like my nerves or muscles(not even sure what) tighten up and let go causing my whole body to " jerk. " It's like a super tense feeling where you clench up and then let go. The thing is I don't feel stressed or anxious mentally or anything. I already took caffeine out of my diet... It's like I have so much physical energy but no way to use it. It's getting annoying because I can't sleep....even with meds. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 How does Lyrica help you? I experience “restless leg†syndrome sometimes when I awake in the middle of the night. It’s a very weird and uncomfortable feeling, wanting to move my legs, and even when I move them, that sensation won’t go away. Is that normal for people with SMA? Oh, and I did my Sleep Study. I do NOT have sleep apnea. My breathing/hear rate/pulse were all regular and I never stopped breathing. But I don’t enter deep sleep, even though I dream. My results are in the mail, so that’s all I was told by the technician. Even now, as I type, my eyes are closing because I am so sleepy! What is happening to me? In Hope, Maggie ( " Meg " ) W. From: [mailto: ] On Behalf Of Lori G Sent: Thursday, August 12, 2010 6:03 PM Subject: Re: Nerves My nerve issues are different from yours but my world is bliss when I take my Lyrica and when I take it on time! Lori I am Bippy on Twitter. ________________________________ From: Joy <j0yeuxx@... <mailto:j0yeuxx%40> > <mailto:%40> Sent: Wed, August 11, 2010 12:24:38 PM Subject: Nerves I'm wondering if anyone experiences this and if so how do you cope... It's hard to explain but I often feel like my nerves are racing and won't slow down! it is especially difficult at night when I try to relax to go to sleep-it feels like my nerves or muscles(not even sure what) tighten up and let go causing my whole body to " jerk. " It's like a super tense feeling where you clench up and then let go. The thing is I don't feel stressed or anxious mentally or anything. I already took caffeine out of my diet... It's like I have so much physical energy but no way to use it. It's getting annoying because I can't sleep....even with meds. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 My father-in-law takes Lyrica for the symptoms you are describing and it does help him. Is that normal for people with SMA? I haven't heard that it is. I hope you find relief! Lori I am Bippy on Twitter. ________________________________ From: Maggie Witkowski <meg.w@...> Sent: Thu, August 12, 2010 7:42:08 PM Subject: RE: Nerves How does Lyrica help you? I experience “restless leg†syndrome sometimes when I awake in the middle of the night. It’s a very weird and uncomfortable feeling, wanting to move my legs, and even when I move them, that sensation won’t go away. Is that normal for people with SMA? Oh, and I did my Sleep Study. I do NOT have sleep apnea. My breathing/hear rate/pulse were all regular and I never stopped breathing. But I don’t enter deep sleep, even though I dream. My results are in the mail, so that’s all I was told by the technician. Even now, as I type, my eyes are closing because I am so sleepy! What is happening to me? In Hope, Maggie ( " Meg " ) W. From: [mailto: ] On Behalf Of Lori G Sent: Thursday, August 12, 2010 6:03 PM Subject: Re: Nerves My nerve issues are different from yours but my world is bliss when I take my Lyrica and when I take it on time! Lori I am Bippy on Twitter. ________________________________ From: Joy <j0yeuxx@... <mailto:j0yeuxx%40> > <mailto:%40> Sent: Wed, August 11, 2010 12:24:38 PM Subject: Nerves I'm wondering if anyone experiences this and if so how do you cope... It's hard to explain but I often feel like my nerves are racing and won't slow down! it is especially difficult at night when I try to relax to go to sleep-it feels like my nerves or muscles(not even sure what) tighten up and let go causing my whole body to " jerk. " It's like a super tense feeling where you clench up and then let go. The thing is I don't feel stressed or anxious mentally or anything. I already took caffeine out of my diet... It's like I have so much physical energy but no way to use it. It's getting annoying because I can't sleep....even with meds. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 Hi, Has anyone ever gotten an MRI of their back and had a doctor to look closely at nerves? I asked my GI and he said this was irrelevant because the nerve damage is so local to the esophagus. I feel like the connection from the brain to the sphincter is not working, in addition to the fact that the sphincter itself is not working. Plus I feel like I have a pinched nerve in my upper back on the right. Thanks for any comments you can give me, Gunn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 wrote: > > Has anyone ever gotten an MRI of their back and had a doctor to look > closely at nerves? > Keep in mind that the nerve damage that happens in achalasia not only seems to be at the lower part of the esophagus but those nerves are connected to the vagus nerve. The vagus nerve is not a spinal nerve. It is a cranial nerve which exits directly from the brain stem through a hole in the skull (jugular foramen), not down through the spine. An injury to the neck could cause injury to the vagus nerve but evidence of a possible pinched nerve in the spine would not necessarily mean much about the vagus. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 Notan -  I starting noticing my first symptoms of achalasia after jaw surgery. I even went back to my oral-maxofacial surgeon to see if he had ever heard of such a thing. I also started having symptoms of burning tongue syndrome.  Pam From: notan ostrich <notan_ostrich@...> achalasia Sent: Saturday, June 4, 2011 3:26 PM Subject: Re: Nerves  wrote: > > Has anyone ever gotten an MRI of their back and had a doctor to look > closely at nerves? > Keep in mind that the nerve damage that happens in achalasia not only seems to be at the lower part of the esophagus but those nerves are connected to the vagus nerve. The vagus nerve is not a spinal nerve. It is a cranial nerve which exits directly from the brain stem through a hole in the skull (jugular foramen), not down through the spine. An injury to the neck could cause injury to the vagus nerve but evidence of a possible pinched nerve in the spine would not necessarily mean much about the vagus. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2011 Report Share Posted June 5, 2011 I had back surgery in 2009 for a disk compression at L4-L5, so I had an MRI previous to my surgery, and also had a chiropractor do some sort of nerve scan that showed colours of 'activity' or something fancy  I don't think that any spinal nerves have much correlation with achalasia issues though.  If you're thinking you have a pinched nerve in that specific a location, is that because you're having pain there?  I know I thought that I had really buggered my leg, when in fact it was my back and all of my pain was not in the location of the nerve issue.  I'd check with your doctor though, to make sure. kim in canada From: Gunn <pletchsr@...> achalasia group <achalasia > Sent: Saturday, June 4, 2011 9:31 AM Subject: Nerves  Hi, Has anyone ever gotten an MRI of their back and had a doctor to look closely at nerves? I asked my GI and he said this was irrelevant because the nerve damage is so local to the esophagus.  I feel like the connection from the brain to the sphincter is not working, in addition to the fact that the sphincter itself is not working. Plus I feel like I have a pinched nerve in my upper back on the right. Thanks for any comments you can give me, Gunn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2011 Report Share Posted June 5, 2011 Notan, Do you know of any studies on the nerves in the lower E that are damaged? The reason I asked about the MRI is because my sister recommended it; she found that she had a rare nerve disorder when she had an MRI. I have a little " pinch " in my upperback/neck area. I am curious if people that have achalasia also have back/neck/jaw problems. Thanks to Pam for chiming in there. Thanks for everyone's comments. > > > > Has anyone ever gotten an MRI of their back and had a doctor to look > > closely at nerves? > > > > Keep in mind that the nerve damage that happens in achalasia not only > seems to be at the lower part of the esophagus but those nerves are > connected to the vagus nerve. The vagus nerve is not a spinal nerve. It > is a cranial nerve which exits directly from the brain stem through a > hole in the skull (jugular foramen), not down through the spine. An > injury to the neck could cause injury to the vagus nerve but evidence of > a possible pinched nerve in the spine would not necessarily mean much > about the vagus. > > notan > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2011 Report Share Posted June 6, 2011 > > > > > > Has anyone ever gotten an MRI of their back and had a doctor to look > > > closely at nerves? > > > > > > > Keep in mind that the nerve damage that happens in achalasia not only > > seems to be at the lower part of the esophagus but those nerves are > > connected to the vagus nerve. The vagus nerve is not a spinal nerve. It > > is a cranial nerve which exits directly from the brain stem through a > > hole in the skull (jugular foramen), not down through the spine. An > > injury to the neck could cause injury to the vagus nerve but evidence of > > a possible pinched nerve in the spine would not necessarily mean much > > about the vagus. > > > > notan > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2011 Report Share Posted June 6, 2011 Pam, This sounds familiar, I too had some dental work done and started having symptoms of burning tongue syndrome. Then this Achalasia started ruling my life. I have wondered if all this was linked. The body is a challenging machine. We can only speculate on the cause of Achalasia, even the doctors are unsure. Barb C. > > > > Has anyone ever gotten an MRI of their back and had a doctor to look > > closely at nerves? > > > > Keep in mind that the nerve damage that happens in achalasia not only > seems to be at the lower part of the esophagus but those nerves are > connected to the vagus nerve. The vagus nerve is not a spinal nerve. It > is a cranial nerve which exits directly from the brain stem through a > hole in the skull (jugular foramen), not down through the spine. An > injury to the neck could cause injury to the vagus nerve but evidence of > a possible pinched nerve in the spine would not necessarily mean much > about the vagus. > > notan > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2011 Report Share Posted June 13, 2011 Hi , I haven't been on this message board. I had a Hellers Myotomy with Fundoplication at the Cleveland Clinic about 4 years ago. For about the past week, I have a sharp pain on the right side of my upper back. At first I thought I just slept funny, but it is not going away. I am thinking it has something to do with my A. Did you have any surgery in the past? Has anyone heard of complications, 4 years later with a tell tale sign of a sharp pain in their back? It is my upper back on the right hand side. Thanks to all, and good luck ! Corri > > Hi, > Has anyone ever gotten an MRI of their back and had a doctor to look closely at nerves? I asked my GI and he said this was irrelevant because the nerve damage is so local to the esophagus. I feel like the connection from the brain to the sphincter is not working, in addition to the fact that the sphincter itself is not working. Plus I feel like I have a pinched nerve in my upper back on the right. > Thanks for any comments you can give me, Gunn > > > Quote Link to comment Share on other sites More sharing options...
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