Re: Re: Docs and Hospitals

[Guest guest]

Hi ,

I live in Oconomowoc area...actually south of there in Village of Summit. My

daughter Amber goes to Childrens Hospital. I dont know where an adult with

Achalasia would go although since Childrens is in cahoots with Froedert I would

think they may have some peeps. But the nice folks on this site are directing me

to Docs and Hospitals that actually do alot of procedures and have more insight

and experience with the disease. Keep watching I am sure I will get some great

info.

Maureen

________________________________

From: milwaukeemommy <milwaukeemommy@...>

achalasia

Sent: Tuesday, May 17, 2011 9:24 PM

Subject: Re: Docs and Hospitals

 

Hi Maureen!!

Where do you live?? I am in Waukesha. My husband has achalasia, unfortunately he

was treated before I found this group & we didn't do our homework. I have

absolutely no idea how much experience with achalasia his doctor had. He is

having problems again, but hasn't seen the doctor in a little over 2 years. That

is stubbornness on his part. I will be watching to see who you end up going to.

>

> Hi Everyone,

>

> Thanks for all the info you have been giving me....I created a folder to put

it all in...lol.

> Since now I know my insurance will allow me to go to other hospitals I wanted

to know where everyone has been to have their surgeries and disease treated to

narrow my search knowing that they are excellent in what they do concerning

achalasia. I live in a suburb of Milwaukee in Wisconsin. Any referrals would be

great....you have now convinced me I should seek out the professionals who know

what they are doing specifically when dealing with this. Names of docs, hospital

and state so I can pinpoint where my insurance allows and how far we are willing

to go.

> Thanks!

> Maureen Young

>

[Guest guest]

Is Dr. Marco Patti at a University or a Hospital in Chicago?

________________________________

From: spotoca <cspoto@...>

achalasia

Sent: Tuesday, May 17, 2011 8:58 PM

Subject: Re: Docs and Hospitals

 

Maureen,

You are close to dr. Marco patti at U of C in Chicago. He is top notch.

Others:

Dr. Rice the Cleveland clinic , Cleveland Ohio

Dr. Luketich, UPMC Pittsburgh PA

Again two of the best here. dr. L is my surgeon.

There is also a Dr. Pelligrini that is considered an expert in achalasia. Not

sure where he is located. Seattle possibly...

Hope this helps

c

>

> Hi Everyone,

>

> Thanks for all the info you have been giving me....I created a folder to put

it all in...lol.

> Since now I know my insurance will allow me to go to other hospitals I wanted

to know where everyone has been to have their surgeries and disease treated to

narrow my search knowing that they are excellent in what they do concerning

achalasia. I live in a suburb of Milwaukee in Wisconsin. Any referrals would be

great....you have now convinced me I should seek out the professionals who know

what they are doing specifically when dealing with this. Names of docs, hospital

and state so I can pinpoint where my insurance allows and how far we are willing

to go.

> Thanks!

> Maureen Young

>

[Guest guest]

I agree...Thanks so much. I am in contact with Dr. Patti and am getting the

records sent over for a looksy. Will let you know how it pans out.

Maureen

________________________________

From: pletchsr <pletchsr@...>

achalasia

Sent: Wednesday, May 18, 2011 11:12 AM

Subject: Re: Docs and Hospitals

 

Just wanted to say thanks so much for all these doctor recommendations.

-S

> > >

> > > Hi Everyone,

> > >

> > > Thanks for all the info you have been giving me....I created a folder to

put it all in...lol.

> > > Since now I know my insurance will allow me to go to other hospitals I

wanted to know where everyone has been to have their surgeries and disease

treated to narrow my search knowing that they are excellent in what they do

concerning achalasia. I live in a suburb of Milwaukee in Wisconsin. Any

referrals would be great....you have now convinced me I should seek out the

professionals who know what they are doing specifically when dealing with this.

Names of docs, hospital and state so I can pinpoint where my insurance allows

and how far we are willing to go.

> > > Thanks!

> > > Maureen Young

> > >

> >

> >

> >

> >

> >

[Guest guest]

,

 

Would you happen to know anything about Dr. Dempsey at the Temple University? 

Would anyone know if he is equally good as Dr. Rice,  Dr.Luketich in Pittsburgh

and Dr. Patti.  My insurance covers Dr. Dempsey but not other doctor's. 

However I do seek the best for my 16 year old son. I know few people have

suggested him but is he one of the best in achlasia surgery?

 

Any advise/suggestion from anyone in the group is welcomed

 

Thanks,

Priti

  

From: zlmmom1 <mcnairmichelle@...>

Subject: Re: Docs and Hospitals

achalasia

Date: Wednesday, May 18, 2011, 5:17 AM

 

Maureen - I just googled dr. patti and found this link

http://www.uchospitals.edu/physicians/marco-patti.html

I would go to either him, Dr. Rice in Cleveland or Dr. Luketich in Pittsburgh

Dr. L's email is luketichjd @ UPMC.edu - take out the spaces - I emailed him and

he contacted me within a day or two personally - if you speak with him, please

tell him from the Outer Banks of NC - who had an ectomy 3 1/2 years ago

says hi and I'm feeling great!!

Dr. Rice - from google can be reached at

http://my.clevelandclinic.org/staff_directory/staff_display.aspx?doctorid=718

contact info is all there.

I'm so glad you've already contacted your insurance company - that can be half

the battle right there!!

Keep us posted and rest easy - you're in the right direction.

~ in NC

> >

> > Hi Everyone,

> >

> > Thanks for all the info you have been giving me....I created a folder to put

it all in...lol.

> > Since now I know my insurance will allow me to go to other hospitals I

wanted to know where everyone has been to have their surgeries and disease

treated to narrow my search knowing that they are excellent in what they do

concerning achalasia. I live in a suburb of Milwaukee in Wisconsin. Any

referrals would be great....you have now convinced me I should seek out the

professionals who know what they are doing specifically when dealing with this.

Names of docs, hospital and state so I can pinpoint where my insurance allows

and how far we are willing to go.

> > Thanks!

> > Maureen Young

> >

>

>

>

>

>

[Guest guest]

Preeti wrote:

>

>

> Would you happen to know anything about Dr. Dempsey at the Temple

> University?

>

The message search feature gives 341 hits for " Dempse " .

achalasia/msearch?query=Dempsey

notan

[Guest guest]

Hi Priti,

I'm not , but and I have met in person (if that's any

consolation).  She might even refer to me in responding to your question about

Dr. Dempsey. One of the best measures of the competence of a surgeon, whether

its for achalasia (a very specialized area), or for other types of surgery is

how many times the surgeon has performed this type of operation. It is generally

accepted on this Board that Dr. Rice, Dr. Patti, and Dr. Luketich probably

perform the greatest number of these surgeries, and their reputations as amongst

the best (if not the best), is well deserved.

Then there are the second tier of surgeons, very competent doctors who are

probably nearly as good, and if the operation is considered to be routine, for

all intents and purposes, might be just as good.  Dr. Dempsey, lesser known, is

connected with GI Dr. Richter, who is extremely well known, plus Richter worked

with Dr. Rice for many years.

As many of the people on this Board knows, when I was told by Dr. Altorki in

2006 that I had to have an ectomy, I went to Dr. Richter for a second opinion,

and he agreed with Dr. Altorki. That same day I went to Dr. Dempsey for a third

opinion. He felt it could wait. In 2011, 5 years later, it can still wait. 

Priti, I got a very good sense of Dr. Dempsey.  I felt that from Dr. Richter's

recommendation about him, that he was a top notch surgeon, yet unlike many

surgeons, I found him to be compassionate about his patients, plus conservative

in his approach. ( " Do no harm " kind of thing).

For a myotomy I would feel very comfortable recommending him to you.  I would

ask one question of him (feel free to ask many, I did), and that is if he feels

the operation on a 16 year old boy might involve any other skills or knowledge

than an operation on an adult, and if so, how many myotomies he has performed on

children.

 

________________________________

From: Preeti Mahajan <priti19.mahajan@...>

achalasia

Sent: Wed, May 18, 2011 9:36:02 PM

Subject: Re: Re: Docs and Hospitals

 

,

 

Would you happen to know anything about Dr. Dempsey at the Temple University? 

Would anyone know if he is equally good as Dr. Rice,  Dr.Luketich in Pittsburgh

and Dr. Patti.  My insurance covers Dr. Dempsey but not other doctor's. 

However

I do seek the best for my 16 year old son. I know few people have suggested

him

but is he one of the best in achlasia surgery?

 

Any advise/suggestion from anyone in the group is welcomed

 

Thanks,

Priti

  

From: zlmmom1 <mcnairmichelle@...>

Subject: Re: Docs and Hospitals

achalasia

Date: Wednesday, May 18, 2011, 5:17 AM

 

Maureen - I just googled dr. patti and found this link

http://www.uchospitals.edu/physicians/marco-patti.html

I would go to either him, Dr. Rice in Cleveland or Dr. Luketich in Pittsburgh

Dr. L's email is luketichjd @ UPMC.edu - take out the spaces - I emailed him and

he contacted me within a day or two personally - if you speak with him, please

tell him from the Outer Banks of NC - who had an ectomy 3 1/2 years ago

says hi and I'm feeling great!!

Dr. Rice - from google can be reached at

http://my.clevelandclinic.org/staff_directory/staff_display.aspx?doctorid=718

contact info is all there.

I'm so glad you've already contacted your insurance company - that can be half

the battle right there!!

Keep us posted and rest easy - you're in the right direction.

~ in NC

> >

> > Hi Everyone,

> >

> > Thanks for all the info you have been giving me....I created a folder to put

>it all in...lol.

> > Since now I know my insurance will allow me to go to other hospitals I

wanted

>to know where everyone has been to have their surgeries and disease treated to

>narrow my search knowing that they are excellent in what they do concerning

>achalasia. I live in a suburb of Milwaukee in Wisconsin. Any referrals would be

>great....you have now convinced me I should seek out the professionals who know

>what they are doing specifically when dealing with this. Names of docs,

hospital

>and state so I can pinpoint where my insurance allows and how far we are

willing

>to go.

> > Thanks!

> > Maureen Young

> >

>

>

>

>

>

[Guest guest]

Thank you .  I will call him and ask these very good questions.

 

Just so the groupalso  knows Dr. Dempsey is moving to University of

Pennslyvania in July.

From: zlmmom1 <mcnairmichelle@...>

Subject: Re: Docs and Hospitals

achalasia

Date: Wednesday, May 18, 2011, 5:17 AM

 

Maureen - I just googled dr. patti and found this link

http://www.uchospitals.edu/physicians/marco-patti.html

I would go to either him, Dr. Rice in Cleveland or Dr. Luketich in Pittsburgh

Dr. L's email is luketichjd @ UPMC.edu - take out the spaces - I emailed him and

he contacted me within a day or two personally - if you speak with him, please

tell him from the Outer Banks of NC - who had an ectomy 3 1/2 years ago

says hi and I'm feeling great!!

Dr. Rice - from google can be reached at

http://my.clevelandclinic.org/staff_directory/staff_display.aspx?doctorid=718

contact info is all there.

I'm so glad you've already contacted your insurance company - that can be half

the battle right there!!

Keep us posted and rest easy - you're in the right direction.

~ in NC

> >

> > Hi Everyone,

> >

> > Thanks for all the info you have been giving me....I created a folder to put

>it all in...lol.

> > Since now I know my insurance will allow me to go to other hospitals I

wanted

>to know where everyone has been to have their surgeries and disease treated to

>narrow my search knowing that they are excellent in what they do concerning

>achalasia. I live in a suburb of Milwaukee in Wisconsin. Any referrals would be

>great....you have now convinced me I should seek out the professionals who know

>what they are doing specifically when dealing with this. Names of docs,

hospital

>and state so I can pinpoint where my insurance allows and how far we are

willing

>to go.

> > Thanks!

> > Maureen Young

> >

>

>

>

>

>

[Guest guest]

Can you please let me know Dr. Luketich email address and best way to

reach him?

Thanks,

Priti

From: spotoca <cspoto@...>

Subject: Re: Docs and Hospitals

achalasia

Date: Tuesday, May 17, 2011, 6:58 PM

 

Maureen,

You are close to dr. Marco patti at U of C in Chicago. He is top notch.

Others:

Dr. Rice the Cleveland clinic , Cleveland Ohio

Dr. Luketich, UPMC Pittsburgh PA

Again two of the best here. dr. L is my surgeon.

There is also a Dr. Pelligrini that is considered an expert in achalasia. Not

sure where he is located. Seattle possibly...

Hope this helps

c

>

> Hi Everyone,

>

> Thanks for all the info you have been giving me....I created a folder to put

it all in...lol.

> Since now I know my insurance will allow me to go to other hospitals I wanted

to know where everyone has been to have their surgeries and disease treated to

narrow my search knowing that they are excellent in what they do concerning

achalasia. I live in a suburb of Milwaukee in Wisconsin. Any referrals would be

great....you have now convinced me I should seek out the professionals who know

what they are doing specifically when dealing with this. Names of docs, hospital

and state so I can pinpoint where my insurance allows and how far we are willing

to go.

> Thanks!

> Maureen Young

>

[Guest guest]

Thank you .  Since I am in NJ and Dr. Luketich is not covered in our

insurance, how can this be pursued with our insurance so we can get coverage. 

Any advise?  Would the doctor's office be able to help with this or I should be

speaking with my NJ blue cross blue shield insurance representative.  Any

suggestion welcomed from the group?  Thanks! Priti

From: zlmmom1 <mcnairmichelle@...>

Subject: Re: Docs and Hospitals

achalasia

Date: Sunday, May 22, 2011, 5:31 AM

 

Priti - I sent him copies of my most recent EGD and barium swallow via

fedex and then emailed him a couple of days later at luketichjd @ upmc.edu (take

out the spaces) and he called me.

you can also google him to get good contact info and addresses, etc.

>

> >

>

> > Hi Everyone,

>

> >

>

> > Thanks for all the info you have been giving me....I created a folder to put

it all in...lol.

>

> > Since now I know my insurance will allow me to go to other hospitals I

wanted to know where everyone has been to have their surgeries and disease

treated to narrow my search knowing that they are excellent in what they do

concerning achalasia. I live in a suburb of Milwaukee in Wisconsin. Any

referrals would be great....you have now convinced me I should seek out the

professionals who know what they are doing specifically when dealing with this.

Names of docs, hospital and state so I can pinpoint where my insurance allows

and how far we are willing to go.

>

> > Thanks!

>

> > Maureen Young

>

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

When I first got diagnosed, it was by a local GI, who is one of the best in our

area.  I knew I was in trouble when he went to get a textbook and began reading

to me about achalasia.  Then, he started discussing dilation, etc.  My husband

and I ran from his office and have never looked back. 

 

We didn't find this group, until after I found Dr. Rice at Cleveland Clinic. 

He is the one that actually told me about the group.  Finding the right doctor

is critical.  I had my myotomy three years ago and have never looked back. 

 

Pam in Ohio

From: milwaukeemommy <milwaukeemommy@...>

achalasia

Sent: Tuesday, May 17, 2011 10:24 PM

Subject: Re: Docs and Hospitals

 

Hi Maureen!!

Where do you live?? I am in Waukesha. My husband has achalasia, unfortunately he

was treated before I found this group & we didn't do our homework. I have

absolutely no idea how much experience with achalasia his doctor had. He is

having problems again, but hasn't seen the doctor in a little over 2 years. That

is stubbornness on his part. I will be watching to see who you end up going to.

>

> Hi Everyone,

>

> Thanks for all the info you have been giving me....I created a folder to put

it all in...lol.

> Since now I know my insurance will allow me to go to other hospitals I wanted

to know where everyone has been to have their surgeries and disease treated to

narrow my search knowing that they are excellent in what they do concerning

achalasia. I live in a suburb of Milwaukee in Wisconsin. Any referrals would be

great....you have now convinced me I should seek out the professionals who know

what they are doing specifically when dealing with this. Names of docs, hospital

and state so I can pinpoint where my insurance allows and how far we are willing

to go.

> Thanks!

> Maureen Young

>