child with recurring symptoms after Heller Myotomy

[Guest guest]

Hello all-

New to the group here and hoping to find some info/support, really anything at

this point. Can't find a lot of info on the web.

My son was born w/achalasia but wasn't diagnosed until he was 9. He was 56

pounds when we found out. We've gone through feeding tubes, supplements, all of

that. He had 4 dilations before they determined those weren't working. He

finally had a myotomy about 2 years ago.

He's been doing GREAT until recently. I've noticed the same things: not eating a

lot, frequent trips to the bathroom during meals, rushing for a drink while

eating.

We go back to the doctor in a week. My question is what's the next option? I

read something about an open Heller's Myotomy, which terrifies me.

Has anyone else been through this? Any advice would be greatly appreciated!