Newbie, again.....back with diagnosis this time.

[Guest guest]

Hello all

This is my 3rd time on board. My name is Susie, 4+ years of doctors & dozens of

tests. Recently, abdominal ultrasound, 2nd manommetry both normal. Two balloon

dilations failed last Feb. By then I was being looked at as a mental case & told

to see a shrink, even though only liquified foods & water would go down.

Worst episode 2 months ago was when I had to vomit...I collapsed half way thru

the kitchen, burning pain in mid-chest took me to my knees as it felt like a

small car battery was stuck in my chest. Pain finally passed, I got up & vomited

1 oz of water. That's when I realized how tiny the opening is in my esophagus,

all that effort to bring water up or down.

Found a new GI, he did an EGD & a Maloney Bougie dilation same day & I was

suddenly able to eat soft food for the 1st time in over a year. He plans to

follow that up soon with a " hot dog " dilation as soon as special equip. is

ordered.

He quickly scheduled a soft bowel follow thru barium swallow & found all of my

intestines are reversed (on wrong side of my body) & tangled. Said the muscles

above & below my stomach are so tight, he doesn't know how food gets into or out

of my stomach.

Next test Feb 1st is a barium enema. So I am a mess & gotta wonder how all

this was missed considering years of elaborate tests & endless doctors !

Anyway, I must catch up, learn fast & fit in here with all of you experts.

Best, Susie