Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 Heyy just thought i would answer a few of your questions even though im sure alot of other will be able to give you more help > a) I have had multiple dilatation, all under general anaesthesia, but only because im under 18. > Well i have heard you are at an increased risk, but its very unlikely i think .. > c) Nope, there is no cure, but some of the treatment can last ages, but it changes person to person. > d) My esophagus has been perforated twice, once it was stitched back up whilst i was still under the GA, they put an NG tube in to aspirate my stomach, then i had a barium swallow two days after to check it wasn't leaking. The second time it was only a tiny perforation so it was just left to heal. > e) I'm sorry i dont know :/ > > > Hi, > Hope everyone is doing well. I am the new member of this group and i feel great to be part of this wonderful community. With respect to Achalasia, i have few questions and would be grateful if i get some response from you guys. > > a) Were you given the dilatation, if applicable, under local or general anesthesia? > I have heard achalasia patients may have a risk of cancer - is it true? > c) Is there any permanent treatment of achalasia? > d) Do you know someone who had a dilatation and his/her esophagus got perforated? If yes, how was he/she treated? > e) Is there anyone from Pakistan? > > Thank you, > > Regards > > Hassaan > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2011 Report Share Posted April 12, 2011 > a) Were you given the dilatation, if applicable, under local or general anesthesia? It's actually done under Conscious Sedation the vast majority of the time. This is where you are able to hear instructions from the doctor/nurse and cooperate with them, but you have little-to-no memory of the entire procedure until after the sedation wears off in the recovery room. > I have heard achalasia patients may have a risk of cancer - is it true? Although this is widely reported as a risk factor, I can't think of any members here who experienced this happening. My belief is that any " risk " comes from allowing food to rot in your esophagus, due to not getting any sort of treatment at all. You're more likely to die from achalasia-related pneumonia than you are from achalasia-related cancer. > c) Is there any permanent treatment of achalasia? No. > d) Do you know someone who had a dilatation and his/her esophagus got perforated? If yes, how was he/she treated? I don't remember any dilations who perforated. There were a few surgical myotomies in which the mucosa was perforated, but they were either sutured back together at the time of the surgery or the perforation healed on its own. > e) Is there anyone from Pakistan? Not that I'm aware of. Hope this helps. Debbi in Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2011 Report Share Posted April 13, 2011 Hi friends, Thank you for your valuable feedback. Let me share an experience with you. My brother has an achalasia and he had his dilatation last year and it went well as he can still eat and drink - ofcourse with the help of some liquid intake which i suppose is normal. His dilatation was performed without general anesthesia. Dodctor said he would feel some pain for some time during dilatation however the local sedation would make it less painful. He was given some kind of injection however it didnt have any impact as my brother felt all the pain involved in the dilatation. It was a horrible experience for him and for us as well because we were there and could listen to his screams. Later i asked his doctor why he wasnt given general anesthesia and his reply was 'we dont give general anesthesia to avoid the risk of perforation. As the patient feels the pain, we know how further we can go with the dilatation'. Thats why i wanted to know what was the standard procedure of dilatation and so far i have observed atleast in US, doctors prefer dilatation through general anesthesia. May be you guys could further comment on this. Thanks Hassaan achalasia From: imahockeymom@... Date: Tue, 12 Apr 2011 15:31:23 +0000 Subject: Re: few questions ... > a) Were you given the dilatation, if applicable, under local or general anesthesia? It's actually done under Conscious Sedation the vast majority of the time. This is where you are able to hear instructions from the doctor/nurse and cooperate with them, but you have little-to-no memory of the entire procedure until after the sedation wears off in the recovery room. > I have heard achalasia patients may have a risk of cancer - is it true? Although this is widely reported as a risk factor, I can't think of any members here who experienced this happening. My belief is that any " risk " comes from allowing food to rot in your esophagus, due to not getting any sort of treatment at all. You're more likely to die from achalasia-related pneumonia than you are from achalasia-related cancer. > c) Is there any permanent treatment of achalasia? No. > d) Do you know someone who had a dilatation and his/her esophagus got perforated? If yes, how was he/she treated? I don't remember any dilations who perforated. There were a few surgical myotomies in which the mucosa was perforated, but they were either sutured back together at the time of the surgery or the perforation healed on its own. > e) Is there anyone from Pakistan? Not that I'm aware of. Hope this helps. Debbi in Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2011 Report Share Posted April 13, 2011 Hassaan - about 30 years ago this was more normal. A few of our members who are long time A sufferers will tell you about having scopes and dilations done without meds but that is NOT AT ALL the case now. That sounds just horrible and I'm so sorry for your brother and for you - having to hear that. Some people, like Debi who also answered you - have the conscious sedation - but even that should keep the pain away. I go for the full sleep - if they try to do conscious sedation with me - I wind up struggling and fighting them. Please investigate some other doctors and see if there is someone more experienced for your brother. Glad you found us - I hope we can help! ~ in NC > > > Hi friends, > Thank you for your valuable feedback. Let me share an experience with you. My brother has an achalasia and he had his dilatation last year and it went well as he can still eat and drink - ofcourse with the help of some liquid intake which i suppose is normal. His dilatation was performed without general anesthesia. Dodctor said he would feel some pain for some time during dilatation however the local sedation would make it less painful. He was given some kind of injection however it didnt have any impact as my brother felt all the pain involved in the dilatation. It was a horrible experience for him and for us as well because we were there and could listen to his screams. > Later i asked his doctor why he wasnt given general anesthesia and his reply was 'we dont give general anesthesia to avoid the risk of perforation. As the patient feels the pain, we know how further we can go with the dilatation'. Thats why i wanted to know what was the standard procedure of dilatation and so far i have observed atleast in US, doctors prefer dilatation through general anesthesia. May be you guys could further comment on this. > > Thanks > > Hassaan > > > > achalasia > From: imahockeymom@... > Date: Tue, 12 Apr 2011 15:31:23 +0000 > Subject: Re: few questions ... > > > > > > > > > a) Were you given the dilatation, if applicable, under local or general anesthesia? > > It's actually done under Conscious Sedation the vast majority of the time. This is where you are able to hear instructions from the doctor/nurse and cooperate with them, but you have little-to-no memory of the entire procedure until after the sedation wears off in the recovery room. > > > I have heard achalasia patients may have a risk of cancer - is it true? > > Although this is widely reported as a risk factor, I can't think of any members here who experienced this happening. My belief is that any " risk " comes from allowing food to rot in your esophagus, due to not getting any sort of treatment at all. > > You're more likely to die from achalasia-related pneumonia than you are from achalasia-related cancer. > > > c) Is there any permanent treatment of achalasia? > > No. > > > d) Do you know someone who had a dilatation and his/her esophagus got perforated? If yes, how was he/she treated? > > I don't remember any dilations who perforated. There were a few surgical myotomies in which the mucosa was perforated, but they were either sutured back together at the time of the surgery or the perforation healed on its own. > > > e) Is there anyone from Pakistan? > > Not that I'm aware of. > > Hope this helps. > > Debbi in Michigan > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2011 Report Share Posted April 13, 2011 Hi. I recently had a dilatation and couldn't have sedation as i am alergic to what is generally used here in the UK and that is Medazolam, so i had a very strong painkiller similat to pethadine. I felt everything. The pain wan't so bad but i still felt everything. And to top it all the baloon burst in my throat flooding my throat and went down the wrong way which made me cough like hell. They only use General Anaesthesia here in the UK if the doctor performing the dilatation is expecting complications. As i said the sedative Medazolam is the choice of sedative that they use here and if you cannot have that then you can have a coice of Pethadine or Fentanyl which i had during my recent dilatation. from the UK From: Hassaan Tariq <hassaan_st@...> achalasia Sent: Wednesday, April 13, 2011 10:53 AM Subject: Re: Re: few questions ...  Hi friends, Thank you for your valuable feedback. Let me share an experience with you. My brother has an achalasia and he had his dilatation last year and it went well as he can still eat and drink - ofcourse with the help of some liquid intake which i suppose is normal. His dilatation was performed without general anesthesia. Dodctor said he would feel some pain for some time during dilatation however the local sedation would make it less painful. He was given some kind of injection however it didnt have any impact as my brother felt all the pain involved in the dilatation. It was a horrible experience for him and for us as well because we were there and could listen to his screams. Later i asked his doctor why he wasnt given general anesthesia and his reply was 'we dont give general anesthesia to avoid the risk of perforation. As the patient feels the pain, we know how further we can go with the dilatation'. Thats why i wanted to know what was the standard procedure of dilatation and so far i have observed atleast in US, doctors prefer dilatation through general anesthesia. May be you guys could further comment on this. Thanks Hassaan achalasia From: imahockeymom@... Date: Tue, 12 Apr 2011 15:31:23 +0000 Subject: Re: few questions ... > a) Were you given the dilatation, if applicable, under local or general anesthesia? It's actually done under Conscious Sedation the vast majority of the time. This is where you are able to hear instructions from the doctor/nurse and cooperate with them, but you have little-to-no memory of the entire procedure until after the sedation wears off in the recovery room. > I have heard achalasia patients may have a risk of cancer - is it true? Although this is widely reported as a risk factor, I can't think of any members here who experienced this happening. My belief is that any " risk " comes from allowing food to rot in your esophagus, due to not getting any sort of treatment at all. You're more likely to die from achalasia-related pneumonia than you are from achalasia-related cancer. > c) Is there any permanent treatment of achalasia? No. > d) Do you know someone who had a dilatation and his/her esophagus got perforated? If yes, how was he/she treated? I don't remember any dilations who perforated. There were a few surgical myotomies in which the mucosa was perforated, but they were either sutured back together at the time of the surgery or the perforation healed on its own. > e) Is there anyone from Pakistan? Not that I'm aware of. Hope this helps. Debbi in Michigan Quote Link to comment Share on other sites More sharing options...
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