Re: Re: How long before seek IV fluids

April 26, 2011

I'm glad to hear that your body is still clearing itself out and that you've

been able to get some fluids in, at least

It's too bad that you don't live close to the border and you could go back and

forth. Â We live about 15 mins away from Maine, and my husband is American as

well, and a medical radiation technologist, and he can't believe how much better

it is here compared to down there. Â Especially with my achalasia not in control

atm, and being pregnant, he just keeps saying how horrible it would be if we

were in the US instead of here. Â I honestly can't imagine having to worry about

something ELSE on top of the medical.

I wish you the absolute best in getting something into yourself, and if you want

to talk, feel free to send me a message. Â I'm always around

kim in canada

From: jennlee_2 <webmail@...>

Subject: Re: How long before seek IV fluids

achalasia

Date: Tuesday, April 26, 2011, 1:45 PM

Â

Thanks for the info, Kim -

I did urinate a couple times today so that sounds like it is good.

And luckily I tried the nitro twice again today and finally got some relief and

have been able to drink 4-6 oz of liquids so far. I still don't feel " right "

but at least it seems to be going down (still not feeling the thirst though -

last time I had this, when it was finally over, boy was I feeling thirsty!)

So hopefully will be able to avoid the ER. I was going to try to go to Urgent

Care if possible, for which I think my copay is not so bad (I think it's between

$35 and $75 for Urgent Care, but $500 for the ER).

I've also freaked out the family as my acute onset began during a family Easter

dinner. They normally don't get to experience my Achalasia issues much ;-)

Its annoying that I and my employer pay so much for insurance, but it is still

very cost prohibitive to actually have to use it. By the way, I'm a dual US and

Canadian citizen (born in Canada, but American parents). Maybe I should move to

Canada and then I could actually go to the ER if I needed to!

>

> From: jennlee_2 <webmail@...>

> Subject: How long before seek IV fluids

> achalasia

> Date: Tuesday, April 26, 2011, 9:48 AM

>

> Ã‚Â

>

> About a month ago I had a flare up where I couldn't eat or drink

anything for several days. My nitro finally seemed to help ease it (or maybe it

just ended on its own), thank goodness! Well, I've gotten another one starting

on Sunday evening (Easter) and so far haven't eaten or drunk anything since

then. I've taken several nitro and so far they haven't eased things.

>

> I'm going to call my GI doc and see if he can prescribe me something else to

try, but at the moment I'm also concerned with getting dehydrated. How long can

I wait before I should go to urgent care or the ER and see if I can get IV

fluids? I really want to avoid the ER because of very high copay cost.

>

> I don't feel thirsty or hungry (when I have the flare ups and can't eat, its

like my body knows and doesn't want food/water). I am regurgitating most of my

saliva I think, because I'm spitting up foam a lot, and having dry heaves a lot.

I weighed myself last night and I weighed 3 pounds less than about a week and a

half ago, and this morning I was down another 3.5 pounds. I'm sure much of this

is water weight (although have been on a diet, so first 3 pounds may be some of

that from before this incident). But I don't feel too bad (other than the

miserable nausea and spitting up foam, and heaviness in the chest).

>

> I'm just not sure how long to try to give it. Today? Wait until tomorrow?

Last time I had a span from Saturday midday until Tuesday evening with no

intake, but I'm wondering if I should let it go that long.

>

April 26, 2011

's help here in the states too,u dont have to go to canada....You need to seek

more info in your state n find a doctor,that knows about ach. I had a heller 20

month ago n know problems so far.Picked up all my weight and eatting what I want

2......God is good....I'm here in orlando and had the sugery done @ tampa

General hosp.By a doctor that teaches other surgeon how to do this

procedure...Look up doctor Rosemurgy @ Tampa General hospital....sO FAR SO

GOOD,THANK YOU JESUS.If u need anything else please don't hesitate and email

me....I've been throuhh it for 8 yrs before surgery..Remember when water was

hard to swallow? god bless in good luck..yes there's help available......

________________________________

From: jennlee_2 <webmail@...>

achalasia

Sent: Tue, April 26, 2011 12:45:39 PM

Subject: Re: How long before seek IV fluids

Â

Thanks for the info, Kim -

I did urinate a couple times today so that sounds like it is good.

And luckily I tried the nitro twice again today and finally got some relief and

have been able to drink 4-6 oz of liquids so far. I still don't feel " right " but

at least it seems to be going down (still not feeling the thirst though - last

time I had this, when it was finally over, boy was I feeling thirsty!)

So hopefully will be able to avoid the ER. I was going to try to go to Urgent

Care if possible, for which I think my copay is not so bad (I think it's between

$35 and $75 for Urgent Care, but $500 for the ER).

I've also freaked out the family as my acute onset began during a family Easter

dinner. They normally don't get to experience my Achalasia issues much ;-)

Its annoying that I and my employer pay so much for insurance, but it is still

very cost prohibitive to actually have to use it. By the way, I'm a dual US and

Canadian citizen (born in Canada, but American parents). Maybe I should move to

Canada and then I could actually go to the ER if I needed to!

>

> From: jennlee_2 <webmail@...>

> Subject: How long before seek IV fluids

> achalasia

> Date: Tuesday, April 26, 2011, 9:48 AM

>

> Ã‚Â

>

> About a month ago I had a flare up where I couldn't eat or drink anything for

>several days. My nitro finally seemed to help ease it (or maybe it just ended

on

>its own), thank goodness! Well, I've gotten another one starting on Sunday

>evening (Easter) and so far haven't eaten or drunk anything since then. I've

>taken several nitro and so far they haven't eased things.

>

> I'm going to call my GI doc and see if he can prescribe me something else to

>try, but at the moment I'm also concerned with getting dehydrated. How long can

>I wait before I should go to urgent care or the ER and see if I can get IV

>fluids? I really want to avoid the ER because of very high copay cost.

>

> I don't feel thirsty or hungry (when I have the flare ups and can't eat, its

>like my body knows and doesn't want food/water). I am regurgitating most of my

>saliva I think, because I'm spitting up foam a lot, and having dry heaves a

lot.

>I weighed myself last night and I weighed 3 pounds less than about a week and a

>half ago, and this morning I was down another 3.5 pounds. I'm sure much of this

>is water weight (although have been on a diet, so first 3 pounds may be some of

>that from before this incident). But I don't feel too bad (other than the

>miserable nausea and spitting up foam, and heaviness in the chest).

>

> I'm just not sure how long to try to give it. Today? Wait until tomorrow? Last

>time I had a span from Saturday midday until Tuesday evening with no intake,

but

>I'm wondering if I should let it go that long.

>

April 26, 2011

Your not too far from me. I live in Maine. I am about 20 miles north of

Bangor. In the US it is very difficult to get good treatment due to no

availability of cost effective health insurance. My in laws went for years

without insurance and both have health issues which need to be monitored. I

am lucky enough to have MaineCare( which is Maine's form of medicaid) but it

does limit treatment options. They are always cutting back on what they

will pay for. My daughter couldn't even get them to cover allergy medicine

because MaineCare wouldn't cover any prescription allergy medication.

Luckily the pharmacy had one that she could get for the same price as what

MaineCare would pay.

S

-- How long before seek IV fluids

> achalasia

> Date: Tuesday, April 26, 2011, 9:48 AM

>

> Â

>

> About a month ago I had a flare up where I couldn't eat or drink

anything for several days. My nitro finally seemed to help ease it (or

maybe it just ended on its own), thank goodness! Well, I've gotten another

one starting on Sunday evening (Easter) and so far haven't eaten or drunk

anything since then. I've taken several nitro and so far they haven't eased

things.

>

> I'm going to call my GI doc and see if he can prescribe me something else

to try, but at the moment I'm also concerned with getting dehydrated. How

long can I wait before I should go to urgent care or the ER and see if I can

get IV fluids? I really want to avoid the ER because of very high copay

cost.

>

> I don't feel thirsty or hungry (when I have the flare ups and can't eat,

its like my body knows and doesn't want food/water). I am regurgitating

most of my saliva I think, because I'm spitting up foam a lot, and having

dry heaves a lot. I weighed myself last night and I weighed 3 pounds less

than about a week and a half ago, and this morning I was down another 3.5

pounds. I'm sure much of this is water weight (although have been on a diet

so first 3 pounds may be some of that from before this incident). But I

don't feel too bad (other than the miserable nausea and spitting up foam,

and heaviness in the chest).

>

> I'm just not sure how long to try to give it. Today? Wait until

tomorrow? Last time I had a span from Saturday midday until Tuesday evening

with no intake, but I'm wondering if I should let it go that long.

>

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