Guest guest Posted June 17, 2011 Report Share Posted June 17, 2011 Hi Stefani, I can only offer what I might do if in your position. Is your esophagus in a mega condition?? Have you seen the pictures of it? I would ask the surgeon to draw me a picture of where he could cut further and why. Are they thinking of making the myotomy longer up the esophagus? I would have to wrap my head around it and ask them to explain their reasons that it may work, then make that decision. Will your 3rd myotomy be done Lapro? Just curious, what was the difference between your first and second surgery? Was the first surgery not successful? Who is your current doctor? I bet this is very tough on you, hang in there. Best regards, Julee So Calif. ________________________________ From: fattsolove <fattsolove@...> achalasia Sent: Thu, June 16, 2011 5:29:09 PM Subject: Third heller myotomy  Hey guys, It's been a while since vie checked in with the group. On my last post my doctors where leaning towards an ectomy since I've already had two myotomies. Now they are thinking of trying a third myotomy as a last ditch effort before the ectomy. Both my previous myotomies where open so I have a lot of scar tissue which make having a third one more risky. The question is, has any one from this group had three myotomies . Did it work? And what was your experience? The surgeon said it might not work at all. Should I bother trying it or just go ahead and push for the ectomy. Any thoughts are welcome. Stefani from so cal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2011 Report Share Posted June 17, 2011 At this stage of the game, if you have not already done so, I would seek out the 'world class experts' for consultation. They are frequently sought out for more challenging situations/most difficult cases and tend to have the most experience with this smaller population of patients. --Rich > > Hey guys, > > It's been a while since vie checked in with the group. On my last post my doctors where leaning towards an ectomy since I've already had two myotomies. Now they are thinking of trying a third myotomy as a last ditch effort before the ectomy. Both my previous myotomies where open so I have a lot of scar tissue which make having a third one more risky. > > The question is, has any one from this group had three myotomies . Did it work? And what was your experience? The surgeon said it might not work at all. Should I bother trying it or just go ahead and push for the ectomy. > > Any thoughts are welcome. > > Stefani from so cal > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2011 Report Share Posted June 17, 2011 Julee, Thanks fir the impute. The first hellers I had was in 93 and it didn't work at all. The second that I had was in 95 and the cut as far as the could possibly could go. They pretty much cut up and down the whole thing and gave me the wrap as well. The second worked for about 15 years. Now my E has zero movement except for the bottom sphincter. So nothing really goes down anymore. I'm not mega esophagus yet but I'm close to end stage.I'm am a little streched out at the bottom. surgeon says that it might not wwork at all.he just wants to go in and see if I don't have to much scar tissue to even try. He even said if if he finished the procedure it won't garetee how long it will last. Maybe a couple of years. And yes he would do it lap. I also met wit maish. And she left it up to me to either do the hellers or the lap.. I guess I just don't know which way to go. > > Hi Stefani, > > I can only offer what I might do if in your position. Is your esophagus in a > mega condition?? Have you seen the pictures of it? I would ask the surgeon to > draw me a picture of where he could cut further and why. Are they thinking of > making the myotomy longer up the esophagus? I would have to wrap my head around > it and ask them to explain their reasons that it may work, then make that > decision. Will your 3rd myotomy be done Lapro? > > > Just curious, what was the difference between your first and second surgery? > Was the first surgery not successful? Who is your current doctor? > > > I bet this is very tough on you, hang in there. > > Best regards, Julee So Calif. > > > > > ________________________________ > From: fattsolove <fattsolove@...> > achalasia > Sent: Thu, June 16, 2011 5:29:09 PM > Subject: Third heller myotomy > >  > Hey guys, > > It's been a while since vie checked in with the group. On my last post my > doctors where leaning towards an ectomy since I've already had two myotomies. > Now they are thinking of trying a third myotomy as a last ditch effort before > the ectomy. Both my previous myotomies where open so I have a lot of scar tissue > which make having a third one more risky. > > > The question is, has any one from this group had three myotomies . Did it work? > And what was your experience? The surgeon said it might not work at all. Should > I bother trying it or just go ahead and push for the ectomy. > > Any thoughts are welcome. > > Stefani from so cal > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 Stefani wrote: > > > The question is, has any one from this group had three myotomies . Did > it work? And what was your experience? The surgeon said it might not > work at all. Should I bother trying it or just go ahead and push for > the ectomy. > The muscles or scar tissue can become to tight again. We don't all scar the same. Some have much more trouble with scarring than others. Often these things can be dealt with by dilatation. If not, sometime surgery can help. I don't know that there is any limit on the number of times it can help. There is more they can do with surgery too. They may deal with some adhesions from the old surgeries that are causing problems. They may also do some straightening of the esophagus. There is more than just making the myotomy. Off the top of my head I can't think of anyone that had a myotomy and two redoes. There have been some that were told a redo may not help but it did. There were others that the redo was not much help. Wish I knew what you should do, but I don't. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2011 Report Share Posted July 9, 2011 Thank you notion! > > > > > > The question is, has any one from this group had three myotomies . Did > > it work? And what was your experience? The surgeon said it might not > > work at all. Should I bother trying it or just go ahead and push for > > the ectomy. > > > > The muscles or scar tissue can become to tight again. We don't all scar > the same. Some have much more trouble with scarring than others. Often > these things can be dealt with by dilatation. If not, sometime surgery > can help. I don't know that there is any limit on the number of times it > can help. There is more they can do with surgery too. They may deal with > some adhesions from the old surgeries that are causing problems. They > may also do some straightening of the esophagus. There is more than just > making the myotomy. Off the top of my head I can't think of anyone that > had a myotomy and two redoes. There have been some that were told a redo > may not help but it did. There were others that the redo was not much help. > > Wish I knew what you should do, but I don't. > > notan > > > > Quote Link to comment Share on other sites More sharing options...
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