Re: Molecular genetic study in

[Guest guest]

Can you check with Dr. Gockel and see if she has arranged for any docs in the US

to collect the samples? I have been in touch with her before and I know she was

trying to arrange with Dr. Luketich, Patti and it seems someone else but I'm not

aware it's done.

That's my issue - I'm more than happy to 'donate' a swab of blood but it's the

getting it to Germany part that's the hold up.

Thanks for keeping us posted.

for anyone considering the psychosocial survey - it only took me about 20

minutes - there's a few quirky translation things and a few questions about

distance that are in km instead of miles - had to really think that one

through!!

Glad to know someone is doing something!

~ in NC

>

> Heres another good study going on.

> Dear patient,

> We are dedicated to research into the biological and environmental causes of

achalasia, and would like to

> invite you to take part in our scientific study, conducted by the University

Hospital of Mainz, Germany.

> For our molecular genetic investigation, only a small blood probe is

necessary. Almost 400 patients have

> participated already, and this will be the largest study on genetics in

achalasia worldwide. We would be

> very thankful, if you participate. Your contribution will be a large step to

further characterize the etiology

> of achalasia, which is still largely unknown.

> Please find all information on the leaflet attached, and feel free to ask us

further questions regarding the

> study by e-mail:

> achalasie@...

> With kind regards,

> Yours Sincerely

> Ines Gockel, M.D

>

[Guest guest]

I contacted the email address about the genetic study, I was advised there is no

way to participate from the USA as of this time. They may include us in about a

year.