Spasms and Spasms and more Spasms..

January 7, 2011

Hello All- Its been a while for some of you but many of you I see on facebook.

As you see in my topic line , things are still ruff for .He is a senior

this year but with the constant spasms he has, he is now on home bound from

school again.The pain Dr has pretty much told us he cant help us anymore as he

has tried everything for for pain with no relief. We have even bought pure

peppermint oil and tried that but didnt help.We know that esophectomy is the

only option left but when he can eat everything and anything you dont wanna go

to that extreme ya know?

We have been up all night as he is having bad bouts of nasuea , vomiting, the

past 2 days.Thank God the phenegran works!Im assuming a virus. He constantly has

something going on.Poor kid. has also developed IBS they think from stress

about the spasms.Do any of you also have that along with A?

Where do we go from here? I dont know.... Honestly , at this point I dont see

graduating.He is sooo far behind. also is not physically or

mentally ready for that extreme of a operation. I have talked and met many

people on facebook with this disease now.Its unbelievable! Its like people are

coming out of the wood work with this disease.I only hope and pray there is a

cure here in the near future as so many people are suffering. Hopefully more

awareness will help aid in the research and cure! I have been talking with one

lady who has been in touch with Dr Phils Producers..keep your fingers crossed.We

need awareness and that would be a great start! I hope you all are well in 2011.

Tonia In Virginia

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