Greetings from Australia - a newbie with Achalasia

[Guest guest]

Hi Everyone, I'm new to this support group. I'm in Australia and was recently

diagnosed with Achalasia. I've recently undergone the Heller Myotomy (8 weeks

ago) and have recovered well from the surgery, but unfortunately seem to have

been left with symptoms that are far more unbearable than they were before

surgery. I mean, sure I couldn't swallow food/drink at all before surgery and

had lost considerable weight, so following the surgery, that's changed and I can

now swallow food. However, I can only eat about the amount of my fist in size,

everything has to be sloppy, the reflux is unbearable and meds aren't helping

that, I can't bend, lie down, let alone run and I'm a marathon runner so this is

highly disappointing. The burping is also incredible, sometimes I can just sit

with my mouth open and the noise is incredible.

In Oz, this is apparently a pretty rare condition to have, and mine is atypical

in that the mid section of my e functioned normally prior to surgery, however

this too has now started to spasm. My husband and I are on a reflux, japanese

diet to minimise the affects of the reflux.

Basically I want to know if there's other people out there that are experiencing

this and is it normal? Does it get any better or is it about adapting to my new

" life " now.

Thanks Ren :-)