Re: Rabeprazole, a.k.a. Aciphex, questions?

[Guest guest]

I lived on aciphex for 5years. it worked wonders for me. I did take it in

chewable form. All pills just sat in my E big or small. It can't hurt to get it

in none pill form.

Hope all works for you

from CA

________________________________

From: evelynlove2000 <evelynlove@...>

achalasia

Sent: Tue, April 12, 2011 3:32:43 PM

Subject: Rabeprazole, a.k.a. Aciphex, questions?

Because I'm experiencing NCCP's for the first time, I was given a

prescription of rebeprazole yesterday to see if this drug might help. I

have been told by a specialist not to take medication unless it's liquid

or chewable. This is a round small yellow pill, and I'm wondering about

how difficult it is to swallow. Anyone have experience with getting it

past your LES?

NIH recommends that this drug may cause low serum magnesium levels.

Those of you who've used this drug or other PPI's, have you asked your

healthcare professional to obtain serum magnesium levels prior to

starting this prescription?

I will soon have an esophagram again to see if another dilatation is

needed.

Thanks,

Love in San Diego

[Guest guest]

Hi ,

My experience with these chest spasms lasted two decades.  I was on Aciphex

for

awhile, in my situation I didn't see the point of taking it, so I stopped. 

When

I feel one of those pains coming on, I would immediately drink something and

take a bite of a cracker or something.  This would stop the pain rather

quickly.  The pains were triggered by many things for me, for example...being

on

an empty stomach, bending over, sleeping without extra pillows to prop my head

up.  I would also chew on a Gaviscon tablet, which is like a Tums.  If you are

having ones that won't budge and are very painful, try the Aciphex and keep

water handy at all times.  For me these spasms seemed to come in cycles, some

weeks I had none and other weeks I had a few.  Please let me know if there is

anything I can help you with!  Take Care!

Julee So Calif.

________________________________

From: evelynlove2000 <evelynlove@...>

achalasia

Sent: Tue, April 12, 2011 3:32:43 PM

Subject: Rabeprazole, a.k.a. Aciphex, questions?

 

Because I'm experiencing NCCP's for the first time, I was given a

prescription of rebeprazole yesterday to see if this drug might help. I

have been told by a specialist not to take medication unless it's liquid

or chewable. This is a round small yellow pill, and I'm wondering about

how difficult it is to swallow. Anyone have experience with getting it

past your LES?

NIH recommends that this drug may cause low serum magnesium levels.

Those of you who've used this drug or other PPI's, have you asked your

healthcare professional to obtain serum magnesium levels prior to

starting this prescription?

I will soon have an esophagram again to see if another dilatation is

needed.

Thanks,

Love in San Diego

[Guest guest]

My husband took Aciphex for a while, but when we switched health insurance it

was no longer covered. He took Ranitidine for a while, but that started to make

him sick. Now he takes Pantoprozale. Sometimes 2, 3 a day. To refresh your

memory, my husband is the one who hasn't been back to the dr. He had his myotomy

11/09 & an endoscopy 4/10 but has not been back nor has he talked to the dr. But

he still keeps getting his RX so I guess he's fine. He doesn't sound fine

----his cough is out of control --- but if he can live with it so can I.

>

>

> Because I'm experiencing NCCP's for the first time, I was given a

> prescription of rebeprazole yesterday to see if this drug might help. I

> have been told by a specialist not to take medication unless it's liquid

> or chewable. This is a round small yellow pill, and I'm wondering about

> how difficult it is to swallow. Anyone have experience with getting it

> past your LES?

>

>

>

> NIH recommends that this drug may cause low serum magnesium levels.

> Those of you who've used this drug or other PPI's, have you asked your

> healthcare professional to obtain serum magnesium levels prior to

> starting this prescription?

>

>

>

> I will soon have an esophagram again to see if another dilatation is

> needed.

>

>

>

> Thanks,

>

> Love in San Diego

>

[Guest guest]

Dear ,

Sorry to hear you are having spasms. I didn't ever take anything for them, my

best cure was water with something to eat, like crackers. If food isn't going

down it is hard, but it seemed like keeping my esophagus busy and full stopped

the spasms. You might try something like Wheat thins or other crackers that

would dissolve in water. Once the spasm subsides then wash the crackers down.

I know that doesn't make sense, but putting something in that will stick for a

while and slow down the spasms.

I have a visual, from a barium swallow, of my esophagus twisting and turning

like a dying snake with a shovel holding it down on both ends. So in my mind if

I stuff a bunch of French bread in my esophagus, it can't move like that

anymore, and the spasm goes away.

I'm with Julee odd things can trigger them, bending over... YES! people don't

talk much about it here, but reaching in the dryer, picking up something that

has rolled under a table are situations when I think about the odds of something

else rolling under the table so I can group the pick ups together.

Going without food can be a trigger.... thus the irony of not being able to eat,

then eating things with higher fat to get them to go down, and then the reason

many of us can be overweight, yet not able to eat well.

I agree on the pillows and all the other triggers Julee mentioned. Through the

years it is odd to see how these subconsciously affect our lives... I always

look at pillows in stores, always come home with bread, and to be honest, there

are a few pens laying under my dining room table and under my desk that have

been there for a while, in a corner. Gardening, which used to be a source of

enjoyment seems to be something I can do later.

Let us know how you are. If you come up to USC or close by, I'd love to see you

again.

Sandy

>

>

> Because I'm experiencing NCCP's for the first time, I was given a

> prescription of rebeprazole yesterday to see if this drug might help. I

> have been told by a specialist not to take medication unless it's liquid

> or chewable. This is a round small yellow pill, and I'm wondering about

> how difficult it is to swallow. Anyone have experience with getting it

> past your LES?

>

>

>

> NIH recommends that this drug may cause low serum magnesium levels.

> Those of you who've used this drug or other PPI's, have you asked your

> healthcare professional to obtain serum magnesium levels prior to

> starting this prescription?

>

>

>

> I will soon have an esophagram again to see if another dilatation is

> needed.

>

>

>

> Thanks,

>

> Love in San Diego

>

[Guest guest]

........ Let us know how you are. If you come up to USC or close by, I'd

love to see you again.......

Thanks for writing and for telling me about your experiences. To review

my situation: In 2008 when I was 65 years old, I had a balloon

dilatation [30 mm] at the University of Southern California. Because

I'm an " older female " , I am a good candidate for a

dilatation and didn't want to have the surgery. I had NCCP's

[spasms] for four days after the dilatation. Since then, I have been

doing fine.

I've had little appetite and some nausea [no vomitng] for the past

couple of months. Are those symptoms related to achalasia? The past few

weeks I have experienced NCCP's at nighttime. They wake me up. Next

Monday, April 18th, I will have an esophagram to determine whether I

need another balloon dilatation. If so, I will go up to Los Angeles

again for the experts at USC. Warm regards, Love in San Diego

[Guest guest]

Can you swallow well? I don't hear that much about little appetite until the

swallowing is so bad and you can't eat and your body eventually gives up asking

for food. Same with nausea. Are you talking about an urge to regurgitate or

nausea like the flu?

If you aren't eating much and go to bed hungry, I've had that trigger spasms.

I've heard others here talk about lots of little meals instead of large ones

during the day just so they don't get hungry.

If the tests show a tight esophagus again, then that is likely the main problem.

You might try eating more before bedtime, but that can also cause some reflux

issues when you lay down. If a spasm comes at night, I used to keep crackers

close by and try to distract my esophagus from the spasms, along with water.

Let us know!

Sandy

>

>

> ....... Let us know how you are. If you come up to USC or close by, I'd

> love to see you again.......

>

> Thanks for writing and for telling me about your experiences. To review

> my situation: In 2008 when I was 65 years old, I had a balloon

> dilatation [30 mm] at the University of Southern California. Because

> I'm an " older female " , I am a good candidate for a

> dilatation and didn't want to have the surgery. I had NCCP's

> [spasms] for four days after the dilatation. Since then, I have been

> doing fine.

> I've had little appetite and some nausea [no vomitng] for the past

> couple of months. Are those symptoms related to achalasia? The past few

> weeks I have experienced NCCP's at nighttime. They wake me up. Next

> Monday, April 18th, I will have an esophagram to determine whether I

> need another balloon dilatation. If so, I will go up to Los Angeles

> again for the experts at USC. Warm regards, Love in San Diego

>

>

>

[Guest guest]

>

>

> Can you swallow well? I don't hear that much about little appetite

until the swallowing is so bad and you can't eat and your body

eventually gives up asking for food. Same with nausea. Are you talking

about an urge to regurgitate or nausea like the flu?

>

.............> Let us know!

>

> Sandy

Thanks, Sandy, for caring about me. I had the esophagram on April 18th.

The results were " unremarkable, no significant change since your last

esophagram in 2008. " That's the year I went to USC for my first

pneumatic dilatation. It seems that I do not need to return to USC for

another.

Looking back on the NCCP's that I experienced in March and April, I

believe they were a result of huge amounts of stress and having been

sick with some kind of generic " flu " for a few weeks. I made three

lengthy international trips recently, hosted back-to-back houseguests,

plus traveled with family in the United States here and there. It's time

to stay home for awhile, read some books, work in the garden, and watch

" Law and Order " reruns. :^)

Cheers,

Love in San Diego

[Guest guest]

It sounds like you were doing a lot! My spasms go in cycles, maybe not for

months, then a few days of spasms. Somewhat related to stress, but not always.

Doing all that you did would probably bring out spasms for me.

I'm glad there isn't much of a change according to your tests.

Really, it is impressive you did that much, that is outside your normal routine.

Sandy

> >

> >

> > Can you swallow well? I don't hear that much about little appetite

> until the swallowing is so bad and you can't eat and your body

> eventually gives up asking for food. Same with nausea. Are you talking

> about an urge to regurgitate or nausea like the flu?

> >

> ............> Let us know!

> >

> > Sandy

>

>

> Thanks, Sandy, for caring about me. I had the esophagram on April 18th.

> The results were " unremarkable, no significant change since your last

> esophagram in 2008. " That's the year I went to USC for my first

> pneumatic dilatation. It seems that I do not need to return to USC for

> another.

>

>

>

> Looking back on the NCCP's that I experienced in March and April, I

> believe they were a result of huge amounts of stress and having been

> sick with some kind of generic " flu " for a few weeks. I made three

> lengthy international trips recently, hosted back-to-back houseguests,

> plus traveled with family in the United States here and there. It's time

> to stay home for awhile, read some books, work in the garden, and watch

> " Law and Order " reruns. :^)

>

>

>

> Cheers,

>

> Love in San Diego

>