Guest guest Posted May 6, 2011 Report Share Posted May 6, 2011 ,  I really appreciate hearing your message. Having been fearful of my A's power over my life for the last 20 years, you have given me some confidence about the future.  Santa Fe From: zlmmom1 <mcnairmichelle@...> achalasia Sent: Friday, May 6, 2011 6:21 AM Subject: stefani in socal  is an ectomy severe - yes! is it a very reasonable option for someone your age - yes! I had A from the age of 12 and had an ectomy 3 1/2 years ago at age 39 and my life is so much better than before I want to do a happy dance everytime I think about it!! I have had NO SPASMS!! I can eat a much greater variety of things - still a few that don't work so well but let's see - this morning I had a banana, 1/2 a peanut butter sandwich on 12 grain bread (I'll eat the other 1/2 in about an hour) and I'm having a cup of coffee. For lunch today I'm having some leftover grilled sausage with peppers and cheese and some sauteed squash and tonight I'm hanging with some friends at a beach house, we're going to have some shrimp, cheese and crackers, raw veggies and appetizer stuff for dinner and SEVERAL glasses of wine!! Life is good. the first 6 months or so kind of suck - but as your body adjusts to your new normal - it gets better and better. Check past posts from Isabella, in WV, and from NY - all in their 30's when they had their ectomies and all doing great - there's a whole herd more and some of them should chime in too. The best thing is that we are here for you and can help you get through it all. We're here to help and we 'get it' Keep us posted and ask away!! I'm on the other coast but you can also feel free to call me anytime - 252-256-3843 - just leave a message because I don't answer calls I don't recognize. ~ in NC achalasia free since jan. 2008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2011 Report Share Posted May 6, 2011 I can attest to the fact (having met in person) that once you meet your fear of an 'ectomy is decreased significantly. She is so energetic and lively and positive. I feel like, if she can get through it, then I can as well. Especially since we share the same surgeon! So if I have to cross that bridge (and I say IF - for then I can be a little more relaxed about the outcome since I have had face to face proof of a great quiality of life post 'ectomy. Cara > > , >  > I really appreciate hearing your message. Having been fearful of my A's power over my life for the last 20 years, you have given me some confidence about the future. >  > > Santa Fe > > From: zlmmom1 <mcnairmichelle@...> > achalasia > Sent: Friday, May 6, 2011 6:21 AM > Subject: stefani in socal > > >  > is an ectomy severe - yes! is it a very reasonable option for someone your age - yes! I had A from the age of 12 and had an ectomy 3 1/2 years ago at age 39 and my life is so much better than before I want to do a happy dance everytime I think about it!! I have had NO SPASMS!! I can eat a much greater variety of things - still a few that don't work so well but let's see - this morning I had a banana, 1/2 a peanut butter sandwich on 12 grain bread (I'll eat the other 1/2 in about an hour) and I'm having a cup of coffee. For lunch today I'm having some leftover grilled sausage with peppers and cheese and some sauteed squash and tonight I'm hanging with some friends at a beach house, we're going to have some shrimp, cheese and crackers, raw veggies and appetizer stuff for dinner and SEVERAL glasses of wine!! Life is good. > > the first 6 months or so kind of suck - but as your body adjusts to your new normal - it gets better and better. > Check past posts from Isabella, in WV, and from NY - all in their 30's when they had their ectomies and all doing great - there's a whole herd more and some of them should chime in too. > > The best thing is that we are here for you and can help you get through it all. We're here to help and we 'get it' > > Keep us posted and ask away!! I'm on the other coast but you can also feel free to call me anytime - 252-256-3843 - just leave a message because I don't answer calls I don't recognize. > > ~ in NC > achalasia free since jan. 2008 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2011 Report Share Posted May 6, 2011 You can also give me a call or ask away. It will be 4 years December 6th for me. My life has been amazing since having the ectomy. I'm also on the east, but feel free to call. 606-776-0007 C Hyden Sent via DROID on Verizon Wireless stefani in socal  is an ectomy severe - yes! is it a very reasonable option for someone your age - yes! I had A from the age of 12 and had an ectomy 3 1/2 years ago at age 39 and my life is so much better than before I want to do a happy dance everytime I think about it!! I have had NO SPASMS!! I can eat a much greater variety of things - still a few that don't work so well but let's see - this morning I had a banana, 1/2 a peanut butter sandwich on 12 grain bread (I'll eat the other 1/2 in about an hour) and I'm having a cup of coffee. For lunch today I'm having some leftover grilled sausage with peppers and cheese and some sauteed squash and tonight I'm hanging with some friends at a beach house, we're going to have some shrimp, cheese and crackers, raw veggies and appetizer stuff for dinner and SEVERAL glasses of wine!! Life is good. the first 6 months or so kind of suck - but as your body adjusts to your new normal - it gets better and better. Check past posts from Isabella, in WV, and from NY - all in their 30's when they had their ectomies and all doing great - there's a whole herd more and some of them should chime in too. The best thing is that we are here for you and can help you get through it all. We're here to help and we 'get it' Keep us posted and ask away!! I'm on the other coast but you can also feel free to call me anytime - 252-256-3843 - just leave a message because I don't answer calls I don't recognize. ~ in NC achalasia free since jan. 2008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2011 Report Share Posted May 6, 2011 Thank you guys so much! I already feel better. I might even take a few of your offers to call up if I have any more questions. One question that comes to mind now would be do you know of any surgeons on the west coast that specialize in ectomys for A? > > is an ectomy severe - yes! is it a very reasonable option for someone your age - yes! I had A from the age of 12 and had an ectomy 3 1/2 years ago at age 39 and my life is so much better than before I want to do a happy dance everytime I think about it!! I have had NO SPASMS!! I can eat a much greater variety of things - still a few that don't work so well but let's see - this morning I had a banana, 1/2 a peanut butter sandwich on 12 grain bread (I'll eat the other 1/2 in about an hour) and I'm having a cup of coffee. For lunch today I'm having some leftover grilled sausage with peppers and cheese and some sauteed squash and tonight I'm hanging with some friends at a beach house, we're going to have some shrimp, cheese and crackers, raw veggies and appetizer stuff for dinner and SEVERAL glasses of wine!! Life is good. > > the first 6 months or so kind of suck - but as your body adjusts to your new normal - it gets better and better. > Check past posts from Isabella, in WV, and from NY - all in their 30's when they had their ectomies and all doing great - there's a whole herd more and some of them should chime in too. > > The best thing is that we are here for you and can help you get through it all. We're here to help and we 'get it' > > Keep us posted and ask away!! I'm on the other coast but you can also feel free to call me anytime - 252-256-3843 - just leave a message because I don't answer calls I don't recognize. > > ~ in NC > achalasia free since jan. 2008 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2011 Report Share Posted May 6, 2011 Go see Dr. Maish at UCLA. From: fattsolove <fattsolove@...> Subject: Re: stefani in socal achalasia Date: Friday, May 6, 2011, 10:14 AM Â Thank you guys so much! I already feel better. I might even take a few of your offers to call up if I have any more questions. One question that comes to mind now would be do you know of any surgeons on the west coast that specialize in ectomys for A? > > is an ectomy severe - yes! is it a very reasonable option for someone your age - yes! I had A from the age of 12 and had an ectomy 3 1/2 years ago at age 39 and my life is so much better than before I want to do a happy dance everytime I think about it!! I have had NO SPASMS!! I can eat a much greater variety of things - still a few that don't work so well but let's see - this morning I had a banana, 1/2 a peanut butter sandwich on 12 grain bread (I'll eat the other 1/2 in about an hour) and I'm having a cup of coffee. For lunch today I'm having some leftover grilled sausage with peppers and cheese and some sauteed squash and tonight I'm hanging with some friends at a beach house, we're going to have some shrimp, cheese and crackers, raw veggies and appetizer stuff for dinner and SEVERAL glasses of wine!! Life is good. > > the first 6 months or so kind of suck - but as your body adjusts to your new normal - it gets better and better. > Check past posts from Isabella, in WV, and from NY - all in their 30's when they had their ectomies and all doing great - there's a whole herd more and some of them should chime in too. > > The best thing is that we are here for you and can help you get through it all. We're here to help and we 'get it' > > Keep us posted and ask away!! I'm on the other coast but you can also feel free to call me anytime - 252-256-3843 - just leave a message because I don't answer calls I don't recognize. > > ~ in NC > achalasia free since jan. 2008 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2011 Report Share Posted May 8, 2011 Hi Stefani, I'm sorry that you are having so many problems. I understand how difficult this must be. I think you are seeing good doctors and would only add that if you want to consult with anyone else please try Dr. Maish at UCLA, she does many ectomy's, and is brilliant and has a real passion about Achalasia. Highly trained in her field, head of the whole department. I had a great/perfect experience before, during and after the surgery, was top rate experience. Best regards, Julee SoCal ________________________________ From: fattsolove <fattsolove@...> achalasia Sent: Fri, May 6, 2011 10:14:44 AM Subject: Re: stefani in socal  Thank you guys so much! I already feel better. I might even take a few of your offers to call up if I have any more questions. One question that comes to mind now would be do you know of any surgeons on the west coast that specialize in ectomys for A? > > is an ectomy severe - yes! is it a very reasonable option for someone your age >- yes! I had A from the age of 12 and had an ectomy 3 1/2 years ago at age 39 >and my life is so much better than before I want to do a happy dance everytime I >think about it!! I have had NO SPASMS!! I can eat a much greater variety of >things - still a few that don't work so well but let's see - this morning I had >a banana, 1/2 a peanut butter sandwich on 12 grain bread (I'll eat the other 1/2 >in about an hour) and I'm having a cup of coffee. For lunch today I'm having >some leftover grilled sausage with peppers and cheese and some sauteed squash >and tonight I'm hanging with some friends at a beach house, we're going to have >some shrimp, cheese and crackers, raw veggies and appetizer stuff for dinner and >SEVERAL glasses of wine!! Life is good. > > the first 6 months or so kind of suck - but as your body adjusts to your new >normal - it gets better and better. > Check past posts from Isabella, in WV, and from NY - all in >their 30's when they had their ectomies and all doing great - there's a whole >herd more and some of them should chime in too. > > The best thing is that we are here for you and can help you get through it all. >We're here to help and we 'get it' > > Keep us posted and ask away!! I'm on the other coast but you can also feel free >to call me anytime - 252-256-3843 - just leave a message because I don't answer >calls I don't recognize. > > ~ in NC > achalasia free since jan. 2008 > Quote Link to comment Share on other sites More sharing options...
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