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That is a HUGE deal. Congratuations!

Rhonda

From: lesley hicks <lesley_hcks@...>Subject: Devinautism@...Date: Friday, July 17, 2009, 12:09 PM

Hello all,

We went to Cedar Point on Wensday and had a great day we decided to go at 5pm and have 5 hours at the park... We let Devin go on the rides he was able to and when he was done I decided that I would go on some rides with my girls since they can go on all of them... Well at the time my husband and i had been holding Devin's hand so he could walk some because he was is his stroller some.. I was able to go on 1 roller coster and Devin was ok with me walking away

but when I was go to go on the 2nd one I walked away from Devin he started crying and ran after me and grabbed my hand so I decided to walk with him till we got to the ride.. Well we were at the ride I just walk away to get on the ride.. OMG Devin cryed and screamed for me he even said Momma 2 times my husband tryed to calm him down and people were stareing and a police officer even was watching.... Any way i went on the ride luckly there was no wait to get on. I got back to Devin and as soon as he saw me he stoped crying... It was the first time Devin has relized i was leaving him... I was so happy I wanted to cry....

Sorry so long but i wanted to share..

Lesley

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Oh Lesley, that's great!! I mean, not that he made a bit of a scene...but yes that he made a bit of a scene because he recognized that his mama was leaving and he's attached to you!! And he asked for you! I'm near tears here myself! How old is Devin?

I'm so grateful that you shared this with us today. It may seem so small to anybody else, but we all know what a huge deal it is and every success and joyful moment buoys all of us I believe! Jake and I had a pleasant, unexpected interaction at the grocery store this morning that I wrote about on my blog if you want to check it out. Again, not a huge breakthrough or major milestone, but one of those small things that we all treasure and that help us make it through the rough days.

BTW, I saw your post asking about Jake's behavior before Abilify and I'll respond to that ASAP...probably later tonight. Today is my older son's 12th birthday and I'm busy zesting lemons for the cake he requested (I know, lemon cake, no idea where he got that from but birthdays are sacred around here so he wants lemon, he gets lemon!) I will tell you that Jake was very aggressive and violent before Abilify and our situation had pretty much become critical, so while I don't say it out loud because I try not to be overdramatic, I admit that the thought that Abilify saved our lives has crossed my mind more than once.

Love,

Judy (mom to , age 12, NT, and Jake, age 10.5, ASD)

www.bforbedlam.wordpress.com

Lesley shared:

Hello all,

We went to Cedar Point on Wensday and had a great day we decided to go at 5pm and have 5 hours at the park... We let Devin go on the rides he was able to and when he was done I decided that I would go on some rides with my girls since they can go on all of them... Well at the time my husband and i had been holding Devin's hand so he could walk some because he was is his stroller some.. I was able to go on 1 roller coster and Devin was ok with me walking away

but when I was go to go on the 2nd one I walked away from Devin he started crying and ran after me and grabbed my hand so I decided to walk with him till we got to the ride.. Well we were at the ride I just walk away to get on the ride.. OMG Devin cryed and screamed for me he even said Momma 2 times my husband tryed to calm him down and people were stareing and a police officer even was watching.... Any way i went on the ride luckly there was no wait to get on. I got back to Devin and as soon as he saw me he stoped crying... It was the first time Devin has relized i was leaving him... I was so happy I wanted to cry....

Sorry so long but i wanted to share..

Lesley

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Thank you Judy ..

Devin is 6 he weights 44 pounds he will be 7 october..

Hope your son has a happy birthday my NT daughter will be 14 the 25th..

I put Devin on prozac it helped him for a while and after a yr he became agressive so we tried Concerta also and it made him werse.. You can email me privately if you would like..

Lesley

-- Re: Devin

Oh Lesley, that's great!! I mean, not that he made a bit of a scene...but yes that he made a bit of a scene because he recognized that his mama was leaving and he's attached to you!! And he asked for you! I'm near tears here myself! How old is Devin?

I'm so grateful that you shared this with us today. It may seem so small to anybody else, but we all know what a huge deal it is and every success and joyful moment buoys all of us I believe! Jake and I had a pleasant, unexpected interaction at the grocery store this morning that I wrote about on my blog if you want to check it out. Again, not a huge breakthrough or major milestone, but one of those small things that we all treasure and that help us make it through the rough days.

BTW, I saw your post asking about Jake's behavior before Abilify and I'll respond to that ASAP...probably later tonight. Today is my older son's 12th birthday and I'm busy zesting lemons for the cake he requested (I know, lemon cake, no idea where he got that from but birthdays are sacred around here so he wants lemon, he gets lemon!) I will tell you that Jake was very aggressive and violent before Abilify and our situation had pretty much become critical, so while I don't say it out loud because I try not to be overdramatic, I admit that the thought that Abilify saved our lives has crossed my mind more than once.

Love,

Judy (mom to , age 12, NT, and Jake, age 10.5, ASD)

www.bforbedlam.wordpress.com

Lesley shared:

Hello all,

We went to Cedar Point on Wensday and had a great day we decided to go at 5pm and have 5 hours at the park... We let Devin go on the rides he was able to and when he was done I decided that I would go on some rides with my girls since they can go on all of them... Well at the time my husband and i had been holding Devin's hand so he could walk some because he was is his stroller some.. I was able to go on 1 roller coster and Devin was ok with me walking away

but when I was go to go on the 2nd one I walked away from Devin he started crying and ran after me and grabbed my hand so I decided to walk with him till we got to the ride.. Well we were at the ride I just walk away to get on the ride.. OMG Devin cryed and screamed for me he even said Momma 2 times my husband tryed to calm him down and people were stareing and a police officer even was watching.... Any way i went on the ride luckly there was no wait to get on. I got back to Devin and as soon as he saw me he stoped crying... It was the first time Devin has relized i was leaving him... I was so happy I wanted to cry....

Sorry so long but i wanted to share..

Lesley

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hey Rhonda

Thanks ya it was a great day!

-- Devinautism@...Date: Friday, July 17, 2009, 12:09 PM

Hello all,

We went to Cedar Point on Wensday and had a great day we decided to go at 5pm and have 5 hours at the park... We let Devin go on the rides he was able to and when he was done I decided that I would go on some rides with my girls since they can go on all of them... Well at the time my husband and i had been holding Devin's hand so he could walk some because he was is his stroller some.. I was able to go on 1 roller coster and Devin was ok with me walking away

but when I was go to go on the 2nd one I walked away from Devin he started crying and ran after me and grabbed my hand so I decided to walk with him till we got to the ride.. Well we were at the ride I just walk away to get on the ride.. OMG Devin cryed and screamed for me he even said Momma 2 times my husband tryed to calm him down and people were stareing and a police officer even was watching.... Any way i went on the ride luckly there was no wait to get on. I got back to Devin and as soon as he saw me he stoped crying... It was the first time Devin has relized i was leaving him... I was so happy I wanted to cry....

Sorry so long but i wanted to share..

Lesley

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This is beautiful Lesley...sorry I "missed" you today...we've been gone all day :)

So happy for this....so good!!!

Love to you,

e

From: lesley hicks <lesley_hcks@...>autism Sent: Friday, July 17, 2009 11:09:13 AMSubject: Devin

Hello all,

We went to Cedar Point on Wensday and had a great day we decided to go at 5pm and have 5 hours at the park... We let Devin go on the rides he was able to and when he was done I decided that I would go on some rides with my girls since they can go on all of them... Well at the time my husband and i had been holding Devin's hand so he could walk some because he was is his stroller some.. I was able to go on 1 roller coster and Devin was ok with me walking away

but when I was go to go on the 2nd one I walked away from Devin he started crying and ran after me and grabbed my hand so I decided to walk with him till we got to the ride.. Well we were at the ride I just walk away to get on the ride.. OMG Devin cryed and screamed for me he even said Momma 2 times my husband tryed to calm him down and people were stareing and a police officer even was watching.... Any way i went on the ride luckly there was no wait to get on. I got back to Devin and as soon as he saw me he stoped crying... It was the first time Devin has relized i was leaving him... I was so happy I wanted to cry....

Sorry so long but i wanted to share..

Lesley

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Just a quick "chime"--

Lily is 6 and weighs 41 pounds... LOL... So cute...they'd be darling playng together :)

j

From: lesley hicks <lesley_hcks@...>autism Sent: Friday, July 17, 2009 1:01:05 PMSubject: Re: Devin

Thank you Judy ..

Devin is 6 he weights 44 pounds he will be 7 october..

Hope your son has a happy birthday my NT daughter will be 14 the 25th..

I put Devin on prozac it helped him for a while and after a yr he became agressive so we tried Concerta also and it made him werse.. You can email me privately if you would like..

Lesley

-- Re: Devin

Oh Lesley, that's great!! I mean, not that he made a bit of a scene...but yes that he made a bit of a scene because he recognized that his mama was leaving and he's attached to you!! And he asked for you! I'm near tears here myself! How old is Devin?

I'm so grateful that you shared this with us today. It may seem so small to anybody else, but we all know what a huge deal it is and every success and joyful moment buoys all of us I believe! Jake and I had a pleasant, unexpected interaction at the grocery store this morning that I wrote about on my blog if you want to check it out. Again, not a huge breakthrough or major milestone, but one of those small things that we all treasure and that help us make it through the rough days.

BTW, I saw your post asking about Jake's behavior before Abilify and I'll respond to that ASAP...probably later tonight. Today is my older son's 12th birthday and I'm busy zesting lemons for the cake he requested (I know, lemon cake, no idea where he got that from but birthdays are sacred around here so he wants lemon, he gets lemon!) I will tell you that Jake was very aggressive and violent before Abilify and our situation had pretty much become critical, so while I don't say it out loud because I try not to be overdramatic, I admit that the thought that Abilify saved our lives has crossed my mind more than once.

Love,

Judy (mom to , age 12, NT, and Jake, age 10.5, ASD)

www.bforbedlam. wordpress. com

Lesley shared:

Hello all,

We went to Cedar Point on Wensday and had a great day we decided to go at 5pm and have 5 hours at the park... We let Devin go on the rides he was able to and when he was done I decided that I would go on some rides with my girls since they can go on all of them... Well at the time my husband and i had been holding Devin's hand so he could walk some because he was is his stroller some.. I was able to go on 1 roller coster and Devin was ok with me walking away

but when I was go to go on the 2nd one I walked away from Devin he started crying and ran after me and grabbed my hand so I decided to walk with him till we got to the ride.. Well we were at the ride I just walk away to get on the ride.. OMG Devin cryed and screamed for me he even said Momma 2 times my husband tryed to calm him down and people were stareing and a police officer even was watching.... Any way i went on the ride luckly there was no wait to get on. I got back to Devin and as soon as he saw me he stoped crying... It was the first time Devin has relized i was leaving him... I was so happy I wanted to cry....

Sorry so long but i wanted to share..

Lesley

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It is amazing the things other people take for granted that give us so much joy. I share your joy. Love and blessings, Pat K

Devin

Hello all,

We went to Cedar Point on Wensday and had a great day we decided to go at 5pm and have 5 hours at the park... We let Devin go on the rides he was able to and when he was done I decided that I would go on some rides with my girls since they can go on all of them... Well at the time my husband and i had been holding Devin's hand so he could walk some because he was is his stroller some.. I was able to go on 1 roller coster and Devin was ok with me walking away

but when I was go to go on the 2nd one I walked away from Devin he started crying and ran after me and grabbed my hand so I decided to walk with him till we got to the ride.. Well we were at the ride I just walk away to get on the ride.. OMG Devin cryed and screamed for me he even said Momma 2 times my husband tryed to calm him down and people were stareing and a police officer even was watching.... Any way i went on the ride luckly there was no wait to get on. I got back to Devin and as soon as he saw me he stoped crying... It was the first time Devin has relized i was leaving him... I was so happy I wanted to cry....

Sorry so long but i wanted to share..

Lesley

What's for dinner tonight? Find quick and easy dinner ideas for any occasion.

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Wow Lesley! Even though it was sad that happened, in a way it is good. He said momma and also he realized you were leaving him. Great really!

Stacie

In a message dated 7/17/2009 11:10:53 A.M. Central Daylight Time, lesley_hcks@... writes:

Hello all,

We went to Cedar Point on Wensday and had a great day we decided to go at 5pm and have 5 hours at the park... We let Devin go on the rides he was able to and when he was done I decided that I would go on some rides with my girls since they can go on all of them... Well at the time my husband and i had been holding Devin's hand so he could walk some because he was is his stroller some.. I was able to go on 1 roller coster and Devin was ok with me walking away

but when I was go to go on the 2nd one I walked away from Devin he started crying and ran after me and grabbed my hand so I decided to walk with him till we got to the ride.. Well we were at the ride I just walk away to get on the ride.. OMG Devin cryed and screamed for me he even said Momma 2 times my husband tryed to calm him down and people were stareing and a police officer even was watching.... Any way i went on the ride luckly there was no wait to get on. I got back to Devin and as soon as he saw me he stoped crying... It was the first time Devin has relized i was leaving him... I was so happy I wanted to cry....

Sorry so long but i wanted to share..

Lesley

Can love help you live longer? Find out now.

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  • 2 months later...

Happy Birthday Devin!! My, oh my, he is handsome! : )Sent from my Verizon Wireless BlackBerryFrom: "lesley hicks" Date: Thu, 1 Oct 2009 10:44:40 -0400 (Eastern Daylight Time)<autism >Subject: Devin Well today is my little mans birthday.. I can't beleive he is 7... I am so blessed to have Devin in my lifeand I am so proud of all that he has been able to acomplish.. He has come so far and I can't wait to see what he will do in the next 7 yrs... I also wanted to thank all for your kindness and Friendship with out it I would be lost... Lesley This is my Angle :)

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HAPPY BIRTHDAY TO YOU...HAPPY BIRTHDAY TOO YOU, HAPPY BIRTHDAY DEAR DEVIN...HAPPY BIRTHDAY TOO YOU! LOVE YOU SWEET BOY! KISS, KISS :)

JUSTINE

From: lesley hicks <lesley_hcks@...>autism Sent: Thursday, October 1, 2009 9:44:40 AMSubject: Devin

Well today is my little mans birthday.. I can't beleive he is 7... I am so blessed to have Devin in my life

and I am so proud of all that he has been able to acomplish.. He has come so far and I can't wait to see what he will do in the next 7 yrs...

I also wanted to thank all for your kindness and Friendship with out it I would be lost...

Lesley This is my Angle :)

__________________________________________________

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HAPPY BIRTHDAY TO YOU...HAPPY BIRTHDAY TOO YOU, HAPPY BIRTHDAY DEAR DEVIN...HAPPY BIRTHDAY TOO YOU! LOVE YOU SWEET BOY! KISS, KISS :)

JUSTINE

From: lesley hicks <lesley_hcks@...>autism Sent: Thursday, October 1, 2009 9:44:40 AMSubject: Devin

Well today is my little mans birthday.. I can't beleive he is 7... I am so blessed to have Devin in my life

and I am so proud of all that he has been able to acomplish.. He has come so far and I can't wait to see what he will do in the next 7 yrs...

I also wanted to thank all for your kindness and Friendship with out it I would be lost...

Lesley This is my Angle :)

__________________________________________________

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Happy Birthday Devin xxxxx Hope you have a lovely day and receive lots of great pressies

Love Clair

autism From: lesley_hcks@...Date: Thu, 1 Oct 2009 10:44:40 -0400Subject: Devin

Well today is my little mans birthday.. I can't beleive he is 7... I am so blessed to have Devin in my life

and I am so proud of all that he has been able to acomplish.. He has come so far and I can't wait to see what he will do in the next 7 yrs...

I also wanted to thank all for your kindness and Friendship with out it I would be lost...

Lesley This is my Angle :)

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Happy Birthday Devin xxxxx Hope you have a lovely day and receive lots of great pressies

Love Clair

autism From: lesley_hcks@...Date: Thu, 1 Oct 2009 10:44:40 -0400Subject: Devin

Well today is my little mans birthday.. I can't beleive he is 7... I am so blessed to have Devin in my life

and I am so proud of all that he has been able to acomplish.. He has come so far and I can't wait to see what he will do in the next 7 yrs...

I also wanted to thank all for your kindness and Friendship with out it I would be lost...

Lesley This is my Angle :)

View your Twitter and Flickr updates from one place - Learn more!

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Happy birthday to Devin; he is so handsome!! Love and blessings, Pat K

Devin

Well today is my little mans birthday.. I can't beleive he is 7... I am so blessed to have Devin in my life

and I am so proud of all that he has been able to acomplish.. He has come so far and I can't wait to see what he will do in the next 7 yrs...

I also wanted to thank all for your kindness and Friendship with out it I would be lost...

Lesley This is my Angle :)

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Awe, Happy birthday to Devin. What a cutie he is.

Stacie

In a message dated 10/1/2009 9:51:53 A.M. Central Daylight Time, lesley_hcks@... writes:

Well today is my little mans birthday.. I can't beleive he is 7... I am so blessed to have Devin in my life

and I am so proud of all that he has been able to acomplish.. He has come so far and I can't wait to see what he will do in the next 7 yrs...

I also wanted to thank all for your kindness and Friendship with out it I would be lost...

Lesley This is my Angle :)

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Awe, Happy birthday to Devin. What a cutie he is.

Stacie

In a message dated 10/1/2009 9:51:53 A.M. Central Daylight Time, lesley_hcks@... writes:

Well today is my little mans birthday.. I can't beleive he is 7... I am so blessed to have Devin in my life

and I am so proud of all that he has been able to acomplish.. He has come so far and I can't wait to see what he will do in the next 7 yrs...

I also wanted to thank all for your kindness and Friendship with out it I would be lost...

Lesley This is my Angle :)

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Lelsey I'm sorry I have been trying to reply to my messages with my iphone for two days now and nothing is going through......

Tell Devin we said Happy 7th Birthday. I hope he had a great birthday. I'm sorry I didn't get around to sending him a birthday card too. Today was a crazy day.

Happy Birthday Devin from Gwen and Caleb

autism From: lesley_hcks@...Date: Thu, 1 Oct 2009 10:44:40 -0400Subject: Devin

Well today is my little mans birthday.. I can't beleive he is 7... I am so blessed to have Devin in my life

and I am so proud of all that he has been able to acomplish.. He has come so far and I can't wait to see what he will do in the next 7 yrs...

I also wanted to thank all for your kindness and Friendship with out it I would be lost...

Lesley This is my Angle :)

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Happy birthday Devin! Sorry, a little behind on my emails. He is a handsome little boy!

Devin

Well today is my little mans birthday.. I can't beleive he is 7... I am so blessed to have Devin in my life

and I am so proud of all that he has been able to acomplish.. He has come so far and I can't wait to see what he will do in the next 7 yrs...

I also wanted to thank all for your kindness and Friendship with out it I would be lost...

Lesley This is my Angle :)

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Happy birthday Devin! Sorry, a little behind on my emails. He is a handsome little boy!

Devin

Well today is my little mans birthday.. I can't beleive he is 7... I am so blessed to have Devin in my life

and I am so proud of all that he has been able to acomplish.. He has come so far and I can't wait to see what he will do in the next 7 yrs...

I also wanted to thank all for your kindness and Friendship with out it I would be lost...

Lesley This is my Angle :)

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  • 1 year later...
Guest guest

as far as feeding tubes - I had a J tube after my ectomy - directly into my

intestines - maybe that's an option for you? right now it seems it'd be easy

enough - I'm sure they can do it with just local anesthetic but maybe it'd be an

issue as the baby grows? I don't really know but it may be worth asking about.

I only used my tube feeds at night - at home - not as portable I suppose but I

knew I was only going to use it short term so I never looked into long term

options. I guess my point is, you can still get the calories and nutrients you

needed but without the inconvenience of having it on 24 hours a day.

Good luck and keep us posted!

~ in NC

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