Guest guest Posted January 12, 2011 Report Share Posted January 12, 2011 Hi, I'm new to group. My son was diagnosed with achalasia a year ago at age 17. He had the Heller myotomy and wrap, which opened up the LES. So getting food down is no longer a problem for him. Before that, it got to where everything was coming up, and he lost 30 lbs (he has since gained it back). However, he still seems to be having problems swallowing. I have several questions for the group. 1) I've searched the comments, and people talk of having to have the procedure multiple times. It seems to me that trouble swallowing, since it's likely neurological, would probably not go away just because the LES gets opened up. But the " hole " is still there - was surgery needed again because it closed back up? Or is it somehow related to swallowing difficulty, for which I don't see an obvious connection. 2) The surgeon said for most people, the trouble swallowing does go away. Is it likely after a year for that to happen? 3) Why would it go away just because the LES gets cut? The nerve problem hasn't changed. Would that just be because the esophagus " retrains " itself somehow? 4) Is continued problems swallowing (but not getting the food down, and so far not GERD) somehow dangerous? Should this be looked at? Given more time? Ignored? Right now it's fairly minor but happens pretty much with every meal - at the beginning of the meal, then seems to get better as he eats. 5) I may try acupuncture (sure worked for my back, so I know it's not voodoo). I did read several posts on that, but any thoughts on that would be appreciated. Thanks for any input. Not having had the disease myself, my questions may be naive, but I'd really like to understand this. My son is now technically an adult, but at 18 he of course just wants to ignore this whole thing instead of being proactive, and as his mom I think I'm going to have to help him manage this for awhile. Quote Link to comment Share on other sites More sharing options...
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