Rare Disease Day

[Guest guest]

Rare Disease Day is On February 28, 2011. It is celebrated (if

celebrate an appropriate word in this context) on the 29th when possible

because that is a rare day.

Anybody have any suggestions.

For more information see:

http://www.rarediseaseday.org/ and http://rarediseaseday.us/ and

probably other .XX country variations.

This years focus " Rare but Equal " address the Inequalities of how rare

diseases are handled.

http://rarediseases.info.nih.gov/RareDiseaseDay.aspx

" National Institutes of Health (NIH) will celebrate the 4th annual Rare

Disease Day with a day-long celebration and recognition of the various

rare diseases research activities supported by the NIH Office of Rare

Diseases Research, ... Attendance is free and open to the public. "

http://www.crdnetwork.org/blog/rare-disease-day-2011-logos-now-available-from-gl\

obal-genes-project-childrens-rare-disease-network/

It looks to me like the blue ribbon is actually blue jeans. Most rare

diseases are genetic so wearing " genes " shows support.

http://www.eurordis.org/content/rare-disease-day-2010-coming

Last years page from Rare Diseases Europe.

http://www.youtube.com/user/rarediseaseday

A lot of rare disease and Rare Disease Day videos.

http://health.discovery.com/features/rare-disease-day/about-rare-disease-day.htm\

l

" Each episode features patients who are initially misdiagnosed or

undiagnosed altogether due to the uncommon nature of their symptoms and

general lack of awareness regarding their conditions. "

http://en.wikipedia.org/wiki/Rare_Disease_Day

http://www.facebook.com/RareDiseaseDay.US?v=info

notan