Re: Kay in UK

[Guest guest]

Hi

thanks so much. My heller worked well and I could eat almost anything for the

first few years. I had an endoscope and barium a few months ago to figure out

what was going on and the problem is that the general motility is very bad and

the upper end is going into spasm. I just always feel like I should be able to

cope and constantly beat myself up about it all when I struggle.

Kay

xx

>

> didn't you have a hellers? are you still having a lot of trouble swallowing? A

successful hellers will never make you 'normal' but after my hellers I could eat

or drink most of what I wanted most of the time and could easily eat out with

others with no issues. There are always going to be foods that you don't

tolerate - I just avoided those. Do you need a follow up scope? It's possible

for some scar tissue to build up after surgery which can create swallowing

problems again.

> You shouldn't have to be this way.

> I hope you get a chance to meet a few of our members face to face - it's a

great experience.

>

> Happy Swallowing!

> ~ in NC

>

[Guest guest]

Kay - first things first. STRESS is VERY bad for us. Across the board - all

symptoms get worse with stress so please, please, please keep reading posts and

maybe meet up with someone so you realize that what you are going through is the

beast that is achalasia and you have NOTHING to beat yourself up for- we did not

ask for this!!

maybe it will help as you are able to hear more of our stories and realize we

all go through this to an extent. None of us has good motility - that's why the

heller is not a cure but a fix.

If I may, have you tried a low-level anti-depresssant? Many of us have used

seratonin uptake receptor drugs to help with the spasms. I still take the lowest

dose of amitryptaline every night as there seems to be a family connection to

reduced levels of seratonin. It never made my spasms go away completely but it

helped a whole lot. If it can reduce your spasms, you should be able to eat

better I would think. Also, have you tracked your food intake and figured out

what works doesn't work for you? I still find that raw carrots are tough but if

they are shredded in a salad or cooked they are fine. There may just be a few

things that you can't tolerate. I still have problems with popcorn. Before my

ectomy I could no longer have coffee, butter or chocolate.

I hope some of this helps. I hope you get to a good point where you can swallow

comfortably again soon.

~ in NC

> >

> > didn't you have a hellers? are you still having a lot of trouble swallowing?

A successful hellers will never make you 'normal' but after my hellers I could

eat or drink most of what I wanted most of the time and could easily eat out

with others with no issues. There are always going to be foods that you don't

tolerate - I just avoided those. Do you need a follow up scope? It's possible

for some scar tissue to build up after surgery which can create swallowing

problems again.

> > You shouldn't have to be this way.

> > I hope you get a chance to meet a few of our members face to face - it's a

great experience.

> >

> > Happy Swallowing!

> > ~ in NC

> >

>