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Update since diagnosis

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Hello again

I was finally diagnosed with achalasia in late Dec after 4 & 1/2 years of tests

& many doctors. I posted that a new GI performed a Maloney Bougie dilation on

Dec 29th so I can now get soft foods down.

Since then I've had barium swallow & barium enema tests. Both show that my

intestines & colon are horribly twisted, reversed, tangled like spaghetti,

called malrotation of intestions. Apparently this condition is life-long, since

birth. Next test will be the pill with camera in it which I'll swallow. I've

been aware for years that something was wrong in my midriff & abdomen...now I

know why. Even pureed food took hours to work its way thru the tangled

intestines.

I'll need another esophageal dilation soon. Also I have the feeling of a lump

in my throat, making it hard to breathe. Not sure if that's from achalasia or

perhaps a nodule in my thyroid. The nodule can't be felt by the doctor. Also,

some days I cough so hard, my throat hurts.

I'm back on all liquid food again because soft or purees take too long to go

thru the maze of intestines. I wonder which of these issues is the most urgent.

Any opinions ? I'm 67 years old, almost starving but hanging on. Thanks for

any advice. Susie

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