Re: Positive ANA and CCP tests

[Guest guest]

wrote:

> ...positive ANA test (anti-nuclear antibody) along with a positive anti cyclic

citrullinated antibody?

I think you are the first to bring up those results. Let me guess, you

have arthritis (rheumatoid)? Had your vitamin D checked?

> ... I am considered morbidly obese and have achalasia ...

This subject has come up before. You are not alone.

> and I guess the surgery is not so friendly to people who have any sort of fat

on their liver (per my surgeon).

Some surgeons are more willing to do surgery on obese patients that

others are. Surgeons that do lap bands have to work in almost the same

area as the myotomy is done.

notan

[Guest guest]

I figured to wait for Notan to address the ANA and CCP test

and then I would jump in on the other things.

First lets address the Fevers.

Quite possible you are creating a condition of aspiration pneumonia.

Get checked!!

How do you prevent it?

Don't go to bed within 5 hours of eating.

Make sure the " E " is empty.  Empty it.!!!

Get those nifty little risers from walmart and raise the head of your bed

or use bricks, a foam wedge, whatever it takes.

Lay on left side, E is on the right side and stomach is on the left.

Take a PPO Prilosec over the counter is popular.

Lastly.. start looking at the site page for a new , better, more

knowledgeable, more concerned ACHALASIA  SPECIALIST.

Get a family member or good friend who is tough to advocate for you.  Be your

ears and question.

Don't mess around with aspiration ... Coughing is like a fire alarm going off.

Would you ignore it?

The people on this board know what your are going through.

please read, search , and talk to many. 

Hope this helps.

Carolyn

mom to Cameron

myo'd fundo'd in 05

From: <lindsaywalk76@...>

Subject: Positive ANA and CCP tests

achalasia

Date: Sunday, February 20, 2011, 6:33 PM

 

Just wondering if anyone else has had a positive ANA test (anti-nuclear

antibody) along with a positive anti cyclic citrullinated antibody?

Also another problem I am having quite frequently now that I believe is

associated with my achalasia is that I am waking up with really bad chills

(physically shaking) and high fevers, up to about 104, that last for about 8

hours. I assumed it was due to me coughing up into my lungs while I am laying

down flat but my doctor doesn't seem to agree with me and thus has been running

a lot of other tests on me. I cough up every night, but maybe once or twice a

month I get these high fevers in the AM. Can this do long term damage to your

lungs?

I have been trying to get my achalasia under control for years now, but nothing

has worked. I am still waiting to have surgery. Interesting enough, I am

considered morbidly obese and have achalasia and I guess the surgery is not so

friendly to people who have any sort of fat on their liver (per my surgeon).

Anyone else have obesity problems with this disease?(I know it is an extreme

rarity but I thought I would try)

I would really like to hear from others! I am sick of talking to people who

have no idea because they haven't seen or lived with this and I just keep

feeling like I am getting left in the dark and made to suck up all the throwing

up and coughing up just because I am still fat.

[Guest guest]

Notan,

Actually no, I don't think I have RA, I have no joint problems what so ever, but

I have a feeling my doctor may go towards RA. I am only 27, so maybe it is what

is to come. I know there is a theory floating that A might be due to an auto

immune disease, so that is why I asked.

Glad I am not the only one with the opposite weight problem, I have to admit I

feel pretty stupid. My other concern is the A gets fixed and I end up gaining

tons of weight because I can actually swallow without a struggle.

Carolyn,

Thank you for your suggestions, they are good ones! I have definitely learned to

empty my E before bed. I am in the process of trying to figure out how I can

prevent the coughing up, but I am having a hard time managing it, the wedge

doesn't seem high enough for me. In hadn't thought to lie on my other side

however.

> > ...positive ANA test (anti-nuclear antibody) along with a positive anti

cyclic citrullinated antibody?

>

> I think you are the first to bring up those results. Let me guess, you

> have arthritis (rheumatoid)? Had your vitamin D checked?

>

> > ... I am considered morbidly obese and have achalasia ...

>

> This subject has come up before. You are not alone.

>

> > and I guess the surgery is not so friendly to people who have any sort of

fat on their liver (per my surgeon).

>

> Some surgeons are more willing to do surgery on obese patients that

> others are. Surgeons that do lap bands have to work in almost the same

> area as the myotomy is done.

>

> notan

>

[Guest guest]

wrote:

> Just wondering if anyone else has had a positive ANA test (anti-nuclear

antibody) along with a positive anti cyclic citrullinated antibody?

I did a search of the old messages there are two that report

anti-nuclear antibody findings. I don't see any for anti cyclic

citrullinated antibody.

achalasia/message/23273

achalasia/message/48130

The following message is related to the last one:

achalasia/message/51746

notan

[Guest guest]

Carolyn wrote:

> I figured to wait for Notan to address the ANA and CCP test

> and then I would jump in on the other things.

> First lets address the Fevers.

> Quite possible you are creating a condition of aspiration pneumonia.

> Get checked!!

> ...

> Don't mess around with aspiration ... Coughing is like a fire alarm going off.

Would you ignore it?

You are right, aspiration is nothing to mess with. Lung damage would not

be a good thing. Also poor lung condition could be reason to postpone a

surgery and cause increased risk of hospital infections. I was a bit

puzzled by the " frequent " night fevers. Do others here have fevers from

aspiration frequently? I could see it sometimes leading to fever just as

it sometimes leads to pneumonia. I think it is good that the doctor is

checking for causes besides the achalasia, but I think you are right

that addressing the achalasia would be a big help to the lungs.

notan

[Guest guest]

Thanks Notan, I don't post much on here but I know that your knowledge of the

disease is some what vast from the posts I have read. Thank you!

>

> > I figured to wait for Notan to address the ANA and CCP test

> > and then I would jump in on the other things.

> > First lets address the Fevers.

> > Quite possible you are creating a condition of aspiration pneumonia.

> > Get checked!!

> > ...

> > Don't mess around with aspiration ... Coughing is like a fire alarm going

off. Would you ignore it?

>

> You are right, aspiration is nothing to mess with. Lung damage would not

> be a good thing. Also poor lung condition could be reason to postpone a

> surgery and cause increased risk of hospital infections. I was a bit

> puzzled by the " frequent " night fevers. Do others here have fevers from

> aspiration frequently? I could see it sometimes leading to fever just as

> it sometimes leads to pneumonia. I think it is good that the doctor is

> checking for causes besides the achalasia, but I think you are right

> that addressing the achalasia would be a big help to the lungs.

>

> notan

>

[Guest guest]

Regarding your chills, I used to have chills were I wuold be really cold and

shaking for several hours in the morning...sometimes after I got to work. This

is when I was coughing up a lot at night and I was really weak and loosing

weight. No one could explain the chills. Now I did not have the fever. I

don't have the chills any longer. They stopped after the night time coughing

stopped which was after I had my dilatation last year and started on the Chinese

herbs and diet and got my strength back.

I'm sorry I'm not more helpful. I understand how badly you feel.

Eva in Chicagoland

>

> Just wondering if anyone else has had a positive ANA test (anti-nuclear

antibody) along with a positive anti cyclic citrullinated antibody?

>

> Also another problem I am having quite frequently now that I believe is

associated with my achalasia is that I am waking up with really bad chills

(physically shaking) and high fevers, up to about 104, that last for about 8

hours. I assumed it was due to me coughing up into my lungs while I am laying

down flat but my doctor doesn't seem to agree with me and thus has been running

a lot of other tests on me. I cough up every night, but maybe once or twice a

month I get these high fevers in the AM. Can this do long term damage to your

lungs?

>

> I have been trying to get my achalasia under control for years now, but

nothing has worked. I am still waiting to have surgery. Interesting enough, I

am considered morbidly obese and have achalasia and I guess the surgery is not

so friendly to people who have any sort of fat on their liver (per my surgeon).

Anyone else have obesity problems with this disease?(I know it is an extreme

rarity but I thought I would try)

>

> I would really like to hear from others! I am sick of talking to people who

have no idea because they haven't seen or lived with this and I just keep

feeling like I am getting left in the dark and made to suck up all the throwing

up and coughing up just because I am still fat.

>

[Guest guest]

achalasia

From: wooleeacre@...

Date: Sun, 20 Feb 2011 23:34:36 -0800

Subject: Re: Positive ANA and CCP tests

I figured to wait for Notan to address the ANA and CCP test

and then I would jump in on the other things.

First lets address the Fevers.

Quite possible you are creating a condition of aspiration pneumonia.

Get checked!!

How do you prevent it?

Don't go to bed within 5 hours of eating.

Make sure the " E " is empty. Empty it.!!!

Get those nifty little risers from walmart and raise the head of your bed

or use bricks, a foam wedge, whatever it takes.

Lay on left side, E is on the right side and stomach is on the left.

Take a PPO Prilosec over the counter is popular.

Lastly.. start looking at the site page for a new , better, more

knowledgeable, more concerned ACHALASIA SPECIALIST.

Get a family member or good friend who is tough to advocate for you. Be your

ears and question.

Don't mess around with aspiration ... Coughing is like a fire alarm going off.

Would you ignore it?

The people on this board know what your are going through.

please read, search , and talk to many.

Hope this helps.

Carolyn

mom to Cameron

myo'd fundo'd in 05

From: <lindsaywalk76@...>

Subject: Positive ANA and CCP tests

achalasia

Date: Sunday, February 20, 2011, 6:33 PM

Just wondering if anyone else has had a positive ANA test (anti-nuclear

antibody) along with a positive anti cyclic citrullinated antibody?

Also another problem I am having quite frequently now that I believe is

associated with my achalasia is that I am waking up with really bad chills

(physically shaking) and high fevers, up to about 104, that last for about 8

hours. I assumed it was due to me coughing up into my lungs while I am laying

down flat but my doctor doesn't seem to agree with me and thus has been running

a lot of other tests on me. I cough up every night, but maybe once or twice a

month I get these high fevers in the AM. Can this do long term damage to your

lungs?

I have been trying to get my achalasia under control for years now, but nothing

has worked. I am still waiting to have surgery. Interesting enough, I am

considered morbidly obese and have achalasia and I guess the surgery is not so

friendly to people who have any sort of fat on their liver (per my surgeon).

Anyone else have obesity problems with this disease?(I know it is an extreme

rarity but I thought I would try)

I would really like to hear from others! I am sick of talking to people who have

no idea because they haven't seen or lived with this and I just keep feeling

like I am getting left in the dark and made to suck up all the throwing up and

coughing up just because I am still fat.

[Guest guest]

Hi ,

Regarding the fact that you say you are not thin; I have active Achalasia, and

am not thin, either.  This is my take on that; If you retain a lot of what you

have ingested in your esophogus, it is not readily reaching your stomach in a

timely fashion where it would send the message to your brain that you have

eaten.  This can make you overeat, as you do not get the fullness in the

stomach, only in the E.  My doctor feels there is validity to this, because

after my two dilations, I was able to lose weight pretty easily.  The feeling

of

being full stopped the hunger as it should.  My doctor said that weight loss

from A depends on the severity and the the individual case.

The issue of coughing and fever must be addressed.  If you are walking around

with a bit of aspiration pneumonia, you need to have an antibiotic.  See a

pulminary doctor.  They are also familiar with Achalasia, as some of their

patients often get pneumonia from aspirating.

Have you ever had a dilation? This could help you to empty your esophogus

properly before lying down.

Hope some of this is helpful to you.

Bonnie

________________________________

From: <lindsaywalk76@...>

achalasia

Sent: Sun, February 20, 2011 6:33:50 PM

Subject: Positive ANA and CCP tests

 

Just wondering if anyone else has had a positive ANA test (anti-nuclear

antibody) along with a positive anti cyclic citrullinated antibody?

Also another problem I am having quite frequently now that I believe is

associated with my achalasia is that I am waking up with really bad chills

(physically shaking) and high fevers, up to about 104, that last for about 8

hours. I assumed it was due to me coughing up into my lungs while I am laying

down flat but my doctor doesn't seem to agree with me and thus has been running

a lot of other tests on me. I cough up every night, but maybe once or twice a

month I get these high fevers in the AM. Can this do long term damage to your

lungs?

I have been trying to get my achalasia under control for years now, but nothing

has worked. I am still waiting to have surgery. Interesting enough, I am

considered morbidly obese and have achalasia and I guess the surgery is not so

friendly to people who have any sort of fat on their liver (per my surgeon).

Anyone else have obesity problems with this disease?(I know it is an extreme

rarity but I thought I would try)

I would really like to hear from others! I am sick of talking to people who have

no idea because they haven't seen or lived with this and I just keep feeling

like I am getting left in the dark and made to suck up all the throwing up and

coughing up just because I am still fat.

[Guest guest]

Thanks for your response Eva, just glad to know I am not the only one.

Sounds like it is something similar to what I am having.

> >

> > Just wondering if anyone else has had a positive ANA test (anti-nuclear

antibody) along with a positive anti cyclic citrullinated antibody?

> >

> > Also another problem I am having quite frequently now that I believe is

associated with my achalasia is that I am waking up with really bad chills

(physically shaking) and high fevers, up to about 104, that last for about 8

hours. I assumed it was due to me coughing up into my lungs while I am laying

down flat but my doctor doesn't seem to agree with me and thus has been running

a lot of other tests on me. I cough up every night, but maybe once or twice a

month I get these high fevers in the AM. Can this do long term damage to your

lungs?

> >

> > I have been trying to get my achalasia under control for years now, but

nothing has worked. I am still waiting to have surgery. Interesting enough, I

am considered morbidly obese and have achalasia and I guess the surgery is not

so friendly to people who have any sort of fat on their liver (per my surgeon).

Anyone else have obesity problems with this disease?(I know it is an extreme

rarity but I thought I would try)

> >

> > I would really like to hear from others! I am sick of talking to people who

have no idea because they haven't seen or lived with this and I just keep

feeling like I am getting left in the dark and made to suck up all the throwing

up and coughing up just because I am still fat.

> >

>