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Re: R. D. DAY

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HI GROUP, i REALLY DONT KNOW WHAT TO POST, BUT I DO KNOW THAT I WANTED TO DO MY

PART IN SUPPOT OF THIS DAY.  ITS BEEN A CRAZY NINE MONTHS FOR ME BATTLING WITH

THIS CONDITION OF OURS AND IM SURE ALOT LONGER FOR OTHERS OF YOU.  IM JUST GALD

THAT NOW I CAN LEAD A MOSTLY NORMAL LIFE AGAIN, BECAUSE FOR A SHORT WHILE I

STARTED TO LOSE HOPE.  HOPEFULLY WE CAN CONTINUE TO DO THINGS LIKE THIS AND

RAISE AWHERENESS BECAUSE IT IS SO NEEDED.  HOPE EVERYONE IS DOING WELL AND IS IN

GOOD SPIRITS! LET TODAY BE A GOOD DAY!!  :-D 

                                                                               

                                            AJA

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Just one voice, but I don't care how people post here, as long as they post and

find support. I'm guessing was having a bad moment and did not mean

this post to sound rude.

Aja-tai, your comments are welcome anyway you want to send them.

Sandy

>

> Must you write in capital letters. It makes it hard to read what you write.

Anyway isn't there something in the e-mailetiquette about writting in caps?

> from the UK

>

>

> From: aja-tai Romer <nazaja_04@...>

> achalasia

> Sent: Monday, February 28, 2011 5:25 PM

> Subject: Re: R. D. DAY

>

>

>  

> HI GROUP, i REALLY DONT KNOW WHAT TO POST, BUT I DO KNOW THAT I WANTED TO DO

MY

> PART IN SUPPOT OF THIS DAY.  ITS BEEN A CRAZY NINE MONTHS FOR ME BATTLING

WITH

> THIS CONDITION OF OURS AND IM SURE ALOT LONGER FOR OTHERS OF YOU.  IM JUST

GALD

> THAT NOW I CAN LEAD A MOSTLY NORMAL LIFE AGAIN, BECAUSE FOR A SHORT WHILE I

> STARTED TO LOSE HOPE.  HOPEFULLY WE CAN CONTINUE TO DO THINGS LIKE THIS AND

> RAISE AWHERENESS BECAUSE IT IS SO NEEDED.  HOPE EVERYONE IS DOING WELL AND IS

IN

> GOOD SPIRITS! LET TODAY BE A GOOD DAY!!  :-D 

>

>                                            

                                   

>                                            

AJA

>

>

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Hi

I too am having a really bad time of it at the moment. I am so sorry you are

too. I feel at the moment that the Achalasia is controlling my life. I will get

through this as you will. I had such good relief for the first few years after

my myotomy and then over the last year things have become very bad again.

At the moment things just seem like a relentless daily struggle to get enough

food down. Hang in there. This is the place where people really understand. All

the best

Kay

nr Oxford, UK

> >

> > Must you write in capital letters. It makes it hard to read what you write.

Anyway isn't there something in the e-mailetiquette about writting in caps?

> > from the UK

> >

> >

> > From: aja-tai Romer <nazaja_04@>

> > achalasia

> > Sent: Monday, February 28, 2011 5:25 PM

> > Subject: Re: R. D. DAY

> >

> >

> >  

> > HI GROUP, i REALLY DONT KNOW WHAT TO POST, BUT I DO KNOW THAT I WANTED TO DO

MY

> > PART IN SUPPOT OF THIS DAY.  ITS BEEN A CRAZY NINE MONTHS FOR ME BATTLING

WITH

> > THIS CONDITION OF OURS AND IM SURE ALOT LONGER FOR OTHERS OF YOU.  IM

JUST GALD

> > THAT NOW I CAN LEAD A MOSTLY NORMAL LIFE AGAIN, BECAUSE FOR A SHORT WHILE I

> > STARTED TO LOSE HOPE.  HOPEFULLY WE CAN CONTINUE TO DO THINGS LIKE THIS

AND

> > RAISE AWHERENESS BECAUSE IT IS SO NEEDED.  HOPE EVERYONE IS DOING WELL

AND IS IN

> > GOOD SPIRITS! LET TODAY BE A GOOD DAY!!  :-D 

> >

> >                    

                       

                       

           

> >                    

                       

AJA

> >

> >

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Hi

so lovely to chat with you. I am pleased to say I don't have huge reflux

problems although have woken up choking a couple of times recently which is

pretty rare these days. Something I will keep an eye on and have adjusted my

pillows accordingly!

I am resorting at the moment to calorie counting to try to get my intake up. It

makes me feel like I am taking a bit more control of my well being, and I always

cope better when I am in control! I find I can managed 1000 fairly easily but

more than that becomes a bit of a struggle when i am on a soft food diet. I have

all the tools though (seen a dietician recently who was really helpful and

practical about how to stay well without resorting to horrid build up drinks!)

so I know I can manage this. Just taking one day at a time though like you said.

this condition is tough. I know I can survive and manage it but it would be nice

sometimes to not have to concentrate so hard.

lovely to have found this group and let me know how you are getting on. I will

be thinking of you and hope the chest infection clears up soon.

Kay xx

> > >

> > > Must you write in capital letters. It makes it hard to read what you

write. Anyway isn't there something in the e-mailetiquette about writting in

caps?

> > > from the UK

> > >

> > >

> > > From: aja-tai Romer <nazaja_04@>

> > > achalasia

> > > Sent: Monday, February 28, 2011 5:25 PM

> > > Subject: Re: R. D. DAY

> > >

> > >

> > >  

> > > HI GROUP, i REALLY DONT KNOW WHAT TO POST, BUT I DO KNOW THAT I WANTED TO

DO MY

> > > PART IN SUPPOT OF THIS DAY.  ITS BEEN A CRAZY NINE MONTHS FOR ME

BATTLING WITH

> > > THIS CONDITION OF OURS AND IM SURE ALOT LONGER FOR OTHERS OF

YOU.  IM JUST GALD

> > > THAT NOW I CAN LEAD A MOSTLY NORMAL LIFE AGAIN, BECAUSE FOR A SHORT WHILE

I

> > > STARTED TO LOSE HOPE.  HOPEFULLY WE CAN CONTINUE TO DO THINGS LIKE

THIS AND

> > > RAISE AWHERENESS BECAUSE IT IS SO NEEDED.  HOPE EVERYONE IS DOING

WELL AND IS IN

> > > GOOD SPIRITS! LET TODAY BE A GOOD DAY!!  :-D 

> > >

> > >        

       

       

       

       

       

       

       

       

       

> > >        

       

       

       

       

    AJA

> > >

> > >

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Hi

I am so glad you are on the mend. Do you often get chest infections or is this

the first time? I have been able to avoid them so far which I am glad about.

The feeding tube sounds interesting. I am due to see my consultant soon so am

going to have a good chat about options. Do you mind me asking, is your

malabsorption problem in addition to the Achalasia? Feel free to not talk about

it if you prefer.

I had a great day today. Went out on the back of my husband's motorbike on a

rally in London with loads of other bikers and for a while I didn't think about

my gullet - bliss!!!

Kay xx

> > > >

> > > > Must you write in capital letters. It makes it hard to read what you

write. Anyway isn't there something in the e-mailetiquette about writting in

caps?

> > > > from the UK

> > > >

> > > >

> > > > From: aja-tai Romer <nazaja_04@>

> > > > achalasia

> > > > Sent: Monday, February 28, 2011 5:25 PM

> > > > Subject: Re: R. D. DAY

> > > >

> > > >

> > > > ÃÆ'‚ 

> > > > HI GROUP, i REALLY DONT KNOW WHAT TO POST, BUT I DO KNOW THAT I WANTED

TO DO MY

> > > > PART IN SUPPOT OF THIS DAY.ÃÆ'‚  ITS BEEN A CRAZY NINE

MONTHS FOR ME BATTLING WITH

> > > > THIS CONDITION OF OURS AND IM SURE ALOT LONGERÃÆ'‚ FOR

OTHERS OF YOU.ÃÆ'‚  IM JUST GALD

> > > > THAT NOW I CAN LEAD A MOSTLY NORMAL LIFE AGAIN, BECAUSE FOR A SHORT

WHILE I

> > > > STARTED TO LOSE HOPE.ÃÆ'‚  HOPEFULLY WE CAN CONTINUE TO

DO THINGS LIKE THIS AND

> > > > RAISE AWHERENESS BECAUSE IT IS SO NEEDED.ÃÆ'‚  HOPE

EVERYONE IS DOING WELL AND IS IN

> > > > GOOD SPIRITS! LET TODAY BE A GOOD

DAY!!ÃÆ'‚ ÃÆ'‚ :-DÃÆ'‚ 

> > > >

> > > > ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ 

ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ 

ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ 

ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ 

ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ 

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> ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ 

ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ 

ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ 

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ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ 

> > > > ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ 

ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ 

ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ 

ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ 

ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ 

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ÃÆ'‚ ÃÆ'‚ ÃÆ'‚ 

ÃÆ'‚ ÃÆ'‚ ÃÆ'‚  AJA

> > > >

> > > >

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Hi

Thanks so much for being so frank about things. Please feel free to email me

directly if you would prefer. I cope much better when I have as much info as I

can get so I really appreciate you sharing this. I will discuss all these things

with my consultant when I see him in a few weeks time. I am being treated in

Oxford by Mr Nick Maynard who is very experienced with Achalasia so I am very

confident that I can have a good chat with him. He has looked after me for many

years and carried out my myotomy so I have a lot of trust in him.

Keep getting well. I am feeling more on top of things this week now I am keeping

a calorie diary again. I am still struggling to get more than 1000 without

resorting to massive bars of chocolate but hey - every cloud!

Kay xx

> > > > >

> > > > > Must you write in capital letters. It makes it hard to read what you

write. Anyway isn't there something in the e-mailetiquette about writting in

caps?

> > > > > from the UK

> > > > >

> > > > >

> > > > > From: aja-tai Romer <nazaja_04@>

> > > > > achalasia

> > > > > Sent: Monday, February 28, 2011 5:25 PM

> > > > > Subject: Re: R. D. DAY

> > > > >

> > > > >

> > > > > ÃÆ'Æ'‚ÃÆ'‚ 

> > > > > HI GROUP, i REALLY DONT KNOW WHAT TO POST, BUT I DO KNOW THAT I WANTED

TO DO MY

> > > > > PART IN SUPPOT OF THIS DAY.ÃÆ'Æ'‚ÃÆ'‚ 

ITS BEEN A CRAZY NINE MONTHS FOR ME BATTLING WITH

> > > > > THIS CONDITION OF OURS AND IM SURE ALOT

LONGERÃÆ'Æ'‚ÃÆ'‚ FOR OTHERS OF

YOU.ÃÆ'Æ'‚ÃÆ'‚  IM JUST GALD

> > > > > THAT NOW I CAN LEAD A MOSTLY NORMAL LIFE AGAIN, BECAUSE FOR A SHORT

WHILE I

> > > > > STARTED TO LOSE HOPE.ÃÆ'Æ'‚ÃÆ'‚ 

HOPEFULLY WE CAN CONTINUE TO DO THINGS LIKE THIS AND

> > > > > RAISE AWHERENESS BECAUSE IT IS SO

NEEDED.ÃÆ'Æ'‚ÃÆ'‚  HOPE EVERYONE IS DOING WELL

AND IS IN

> > > > > GOOD SPIRITS! LET TODAY BE A GOOD

DAY!!ÃÆ'Æ'‚ÃÆ'‚ ÃÆ'Æ'‚ÃÆ'‚\

 :-DÃÆ'Æ'‚ÃÆ'‚ 

> > > > >

> > > > >

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> > > > >

> > > > >

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Guest guest

Hi

I do hope the scope and dilatation go ok. It is always so nerveracking. I hope

you have been able to organise it with sedation - I wouldn't even think about

having it without. Shame about moving your tube when it has been working out so

well. I will be thinking of you.

Kay xx

> > > > > >

> > > > > > Must you write in capital letters. It makes it hard to read what you

write. Anyway isn't there something in the e-mailetiquette about writting in

caps?

> > > > > > from the UK

> > > > > >

> > > > > >

> > > > > > From: aja-tai Romer <nazaja_04@>

> > > > > > achalasia

> > > > > > Sent: Monday, February 28, 2011 5:25 PM

> > > > > > Subject: Re: R. D. DAY

> > > > > >

> > > > > >

> > > > > >

ÃÆ'Æ'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'‚ÃÆ'‚Ã\

‚ 

> > > > > > HI GROUP, i REALLY DONT KNOW WHAT TO POST, BUT I DO KNOW THAT I

WANTED TO DO MY

> > > > > > PART IN SUPPOT OF THIS

DAY.ÃÆ'Æ'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'‚ÃÆ'â€\

šÃ‚  ITS BEEN A CRAZY NINE MONTHS FOR ME BATTLING WITH

> > > > > > THIS CONDITION OF OURS AND IM SURE ALOT

LONGERÃÆ'Æ'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'‚ÃÆ'ââ\

‚¬Å¡Ãƒâ€šÃ‚ FOR OTHERS OF

YOU.ÃÆ'Æ'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'‚ÃÆ'â€\

šÃ‚  IM JUST GALD

> > > > > > THAT NOW I CAN LEAD A MOSTLY NORMAL LIFE AGAIN, BECAUSE FOR A SHORT

WHILE I

> > > > > > STARTED TO LOSE

HOPE.ÃÆ'Æ'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'‚ÃÆ'ââ‚\

¬Å¡Ãƒâ€šÃ‚  HOPEFULLY WE CAN CONTINUE TO DO THINGS LIKE THIS AND

> > > > > > RAISE AWHERENESS BECAUSE IT IS SO

NEEDED.ÃÆ'Æ'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'‚ÃÆ'â\

€šÃ‚  HOPE EVERYONE IS DOING WELL AND IS IN

> > > > > > GOOD SPIRITS! LET TODAY BE A GOOD

DAY!!ÃÆ'Æ'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'‚ÃÆ'ââ‚\

¬Å¡Ãƒâ€šÃ‚ ÃÆ'Æ'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'‚Ã\

ƒÆ'‚ :-DÃÆ'Æ'Æ'ÃÆ'¢â‚¬Å¡ÃÆ'Æ'ââ\

‚¬Å¡ÃÆ'‚ 

> > > > > >

> > > > > >

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